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My Miracle Baby: A Story of Surrogacy

By |January 20th, 2023|

Skye Ellison will never forget the day she found out she and her husband and I were going to have a baby. Their fertility clinic called to let them know their surrogate’s pregnancy test had come back positive. After almost a lifetime of hearing, “You won’t be able to have children,” Skye felt like she had achieved the impossible.

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Share Your Story for American Heart Month

By |January 18th, 2023|

Spread pulmonary hypertension (PH) awareness by sharing your story for American Heart Month in February. Heart disease can lead to PH or exacerbate symptoms. Help us call attention to the importance of cardiovascular health. Share how you manage your PH and heart disease or your tips for improving heart health.

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Find Resources for Copay Assistance

By |January 18th, 2023|

The new year can be challenging for finding financial assistance for pulmonary hypertension (PH) medications. Although charitable assistance foundations with PH funds currently are closed, other avenues for assistance are available. Visit the Pulmonary Hypertension Association’s financial assistance page for more information.

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PHPN Symposium to Feature Lead Author of New PH Guidelines

By |January 18th, 2023|

Pulmonary hypertension (PH) health professionals can meet the primary author of recently released PH guidelines at the PH Professional Network Symposium. Dr. Marc Humbert will discuss the new PH guidelines during the Sept. 28-30 PHA event in Arlington, Virginia. The guidelines, developed by a taskforce from the European Society of Cardiology and European Respiratory Society, were published in August 2022.

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CEO Update: Seeking New Possibilities in a New Year

By |January 4th, 2023|

While the world seems to have moved on from the pandemic, many in the pulmonary hypertension community are trying to catch up. Because PH makes people more vulnerable to serious COVID side effects, the community remains cautious about how to proceed. This year, the Pulmonary Hypertension Association wants to help you transition from pandemic mode to more familiar routines.

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Familial PAH Affects 4 Generations

By |January 4th, 2023|

Whitney Whited was 10 when her father died of pulmonary arterial hypertension (PAH) complications. Recently, she learned about the BMPR2 gene and sought genetic testing for her 11-year-old daughter. Whitney, 34, who doesn’t have PAH, shared her family’s story in the winter 2022 issue of Pathlight, the Pulmonary Hypertension Association’s member magazine.

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Apply for new PHA Research Grant

By |January 4th, 2023|

The Pulmonary Hypertension Association is accepting applications for a new grant to support junior pulmonary hypertension researchers. Apply now, or spread the word about PHA’s Early Career Mentored Scientist Award. The one-year grant covers up to $65,000 for PH-related research projects that have been favorably reviewed but not funded by the National Institutes of Health. Apply by March 20.

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Retiree Stays Active as She Adapts to CTEPH

By |January 4th, 2023|

Joyce Sandberg of Port St. Lucie, Florida, noticed shortness of breath nine years ago while biking. A few years later, she developed blood clots and chronic thromboembolic pulmonary hypertension. But she doesn’t let her conditions stop her from enjoying life, taking cruises and attending classic car shows with her husband.

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Fulfill a New Year’s Resolution: Become a PHA Support Volunteer

By |January 4th, 2023|

The Pulmonary Hypertension Association seeks empathetic volunteers eager to support their peers in the pulmonary hypertension community. As the year begins, we have several volunteer shifts for our in-person, phone and online support services. Tiffany Gunville of Minot, North Dakota, encourages others to get involved. “Others were there for me. Now it’s my turn to give back.”

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