Advisory: Reproductive Health and Pulmonary Hypertension
Pregnancy is considered high risk for people with pulmonary hypertension because their heart and lungs can’t easily adjust to the demands of pregnancy and childbirth.
New Challenges Threaten Care Access Since Pandemic
Five years after the World Health Organization declared COVID-19 to be a pandemic, new challenges threaten access to affordable health care, critical research and the wellbeing of the PH community. During these unsettling times, the Pulmonary Hypertension Association continues to advocate for policies that guarantee access to quality care.
A decade of impact: PHAR marks 10 years of PH advancing PH research
This year marks the 10th anniversary of the Pulmonary Hypertension Association Registry, a critical resource that now includes data from more than 3,500 patients. Over the past decade, PHAR has empowered health care providers and researchers to drive evidence-based practice, improve patient care and fuel innovations in treatment.
Flashback Thursday: 8 Reminders of Resilience During the Pandemic
Five years ago, the World Health Organization declared a new, rapidly spreading respiratory virus to be a pandemic. While physically distancing themselves, the pulmonary hypertension community came together in mind and spirit. The Pulmonary Hypertension Association captured those stories and more. Read on to revisit eight accounts of how the PH community adapted to the pandemic.
Time is Running Out To Register for PH Community Workshop
Have you secured your spot at PHA’s March 22 PH Community Workshop in Charlotte, North Carolina? Register online by Friday, March 14 to secure your spot. Space is limited, so don’t miss this opportunity to connect with the PH community , hear from PH experts, and discover invaluable resources.
Researchers: Apply for PHA Grants
The Pulmonary Hypertension Association encourages PH professionals to apply for two research grants: the Health Disparities in PH Research and Innovation in PH Research awards. The Health Disparities in PH Research grant supports projects that addresses early diagnosis, education and improving clinical outcomes and treatments for people with PH who may be affected by health inequities.
Hobbies Help College Student Develop Leadership, Life Skills
Jaylin Binkley, a first-year student at Indiana University-South Bend, is majoring in radiography and exercise science. The 19-year-old is on her college cheer team, participates in pageants and competes in 4-H, a youth program to learn about science, agriculture and civic engagement. She developed PH as a baby and relies on subcutaneous treprostinil.
Urge Congress to Preserve Medicaid, CHIP, NIH Funding
Urge your lawmakers to preserve Medicaid, NIH and CHIP funding. Congress is considering billions of dollars in cuts to Medicaid, the Children’s Health Insurance Program and the National Institutes of Health.
Diane Ramirez To Share Transplant Journey at Charlotte Workshop
Diane Ramirez lived with pulmonary arterial hypertension for 36 years before her September 2023 heart and lung transplant. On March 22, Ramirez will share her story as keynote speaker at the PHA Connects: PH Community Workshop in Charlotte, North Carolina. Register by March 14.
CEO Update: Spread Awareness About PH Link During American Heart Month
This month, PHA encourages people with PH, family members, friends and health care professionals to raise awareness about the link between pulmonary hypertension and heart failure. Join us in promoting heart health for American Heart Month and PH awareness on Rare Disease Day.
Holiday Horrors: Battery Limits Disrupt Oxygen Users’ Travel Plans
A newly enforced limit on lithium-ion battery power in carry-on luggage has upended travel plans for Cathy Brown of Phoenix and other portable oxygen users. Although federal regulations allow certain portable oxygen concentrators in flight, guidance for 160-watt batteries isn’t as clear. Some airlines enforce the regulations more strictly than others, causing confusion. As a result, travelers face potential travel and treatment disruptions
Health care providers: Find your next career opportunity
Whether you're a physician, nurse, researcher or allied health professional, we make it easy to explore new job opportunities. Keep your resume/CV anonymous, and decide which employers can view your information. Find new opportunities through the PHA Career Center.
Plan Now To Make Health Care Access a World PH Day Priority
Celebrate World PH Day by joining the Pulmonary Hypertension Association in May to advocate for the pulmonary hypertension community. PHA is organizing an in-person event on Capitol Hill and virtual meetings to ensure as many people as possible can participate.
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