Lead a Support Group in Your Area
The Pulmonary Hypertension Association is looking for volunteers to lead support groups. By becoming a support group leader, you will join a nationwide team of volunteers who are passionate about supporting, educating and empowering the pulmonary hypertension community.
Don’t Miss Your Chance to Participate in Advocacy August
As the Congressional August recess approaches, legislators are making plans to meet with constituents in their home states. Make sure to schedule a summer advocacy visit with your members of Congress. Help promote legislation that will benefit those affected by PH.
Share Your Story for Advocacy August
Already scheduled your Advocacy August visit? Share your advocacy experiences with the Pulmonary Hypertension Association’s Right Heart Blog.
‘Navigating Pulmonary Hypertension’ Wins EXCEL award
The Pulmonary Hypertension Association won a silver EXCEL award for “Navigating Pulmonary Hypertension” from the Software & Information Industry Association (SIIA) AM&P Network. The EXCEL awards recognize excellence and leadership in association media, publishing, marketing and communications.
Press Release: Pulmonary Hypertension Education Workshop, PHA On the Road, Comes to Louisville on Sept. 17
PHA On the Road is a free one-day event that offers educational sessions on pulmonary hypertension (PH). Presented by local medical experts and patients, the event provides networking opportunities for people living with PH.
Olaparib for PAH: a Multicenter Clinical Trial (OPTION)
Population: PAH Start Date: August 1, 2022 End Date: January 4, 2023 Phase: I AND II Institution: University
Apabetalone for Pulmonary Arterial Hypertension: a Pilot Study (APPRoAcH-p)
Population: PAH Start Date: June 14, 2022 End Date: October 14, 2022 Phase: Observational Institution: NIH The
Inflammatory Biomarkers of Pediatric Pulmonary Hypertension
Population: PATIENTS COMING FOR CARDIAC CATHETERIZATION AND HEALTHY CONTROLS COMING FOR UROLOGY SURGERY Start Date: July 25, 2022 End Date:
Son’s PH Helps Pediatrician Better Understand Her Patients
As an intensive care pediatrician, Chandani Dezure, M.D., treats critically ill children. After one son was diagnosed with pulmonary hypertension, Dr. Dezure became a caregiver herself. She shares how her son's PH helped her become a better doctor. Her story appeared in the June 2022 issue of Pathlight.
Patient-Caregiver Workshops Resume
On the Road, the Pulmonary Hypertension Association (PHA)’s daylong, regional workshops for patients and caregivers resume this fall. Registration is open for the Sept. 17 PHA On the Road in Louisville, Kentucky.
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