PH Professionals: Learn Best Risk Assessment Practices at Symposium
Discover new ideas for pulmonary arterial hypertension (PAH) risk assessment at the Pulmonary Hypertension Association’s PH Professional Network Symposium. The Sept. 28-30 event in Arlington, Virginia, will feature a session on “Balancing the Art and Science of PAH Risk Stratification,” presented by Susanne McDevitt, D.N.P., ANCP-BC and Melisa Wilson, D.N.P., ACNP, APRN-BC. Learn more about the session and how to submit a late-breaking abstract.
What’s the State of PH? Find Out in the New Issue of Pathlight
The spring 2023 issue of Pathlight examines the state of pulmonary hypertension (PH). Our cover story details how artist Suzanne Miller manages her PH by focusing on mind and body wellness. The issue also includes an in-depth look at new guidelines for PH treatment and diagnosis. Pathlight is an exclusive benefit of Pulmonary Hypertension Association membership.
Be Like Kevin. Host a Fundraising Event in Your Community
Kevin Heyen, vice president of development and industry relations for the Pulmonary Hypertension Association, recently stepped behind the bar in his hometown to support PHA. Kevin’s celebrity bartender stint was an example of creative ways the PHA community raises money to support pulmonary hypertension research and awareness.
PHA Statement on Alliance for Hippocratic Medicine v. FDA
The Pulmonary Hypertension Association joins many health care organizations concerned about the April 7 Alliance for Hippocratic Medicine v. FDA ruling. The ruling aims to block access to mifepristone used in medicated abortion and sets a dangerous precedent that erodes the Food and Drug Administration’s approval authority.
Help Us Advocate for Improved Oxygen Access
The Pulmonary Hypertension Association (PHA) needs your help to demand reform for challenges associated with supplemental oxygen. PHA, along with a coalition that includes the American Lung Association and other patient organizations, is bringing forward legislation this year to address the need for oxygen-access reform. Share your stories to educate lawmakers about this important issue.
It’s Easier Than Ever to Join an Online PHA Support Group. Just Zoom In!
Did you know that the Pulmonary Hypertension Association merged its telephone support groups with its online nationwide support groups? All nationwide meetings now take place through Zoom calls. PHA support groups are designed for people with common interests, such as parents, young adults, bereaved families, Spanish speakers, etc., to connect. Participants receive call-in numbers after registering for specific meetings.
Join us for PHPN Symposium
Health care professionals: Register for the Pulmonary Hypertension Association PH Professional Network Symposium. If you’re a doctor, nurse or other health care professional who cares for people with pulmonary hypertension, join us Sept. 28-30 in Arlington, Virginia, or online.
Prepare Now for Medicaid and CHIP Coverage Changes
Take steps to keep you and your family insured in case you’re no longer eligible for pandemic-related health care coverage. During the COVID-19 pandemic, people who no longer were eligible for Medicaid or the Children’s Health Insurance Program (CHIP) could keep their coverage. However, continuous CHIP coverage ends in May, and some states will start to disenroll people from Medicaid on April 1.
Family Shares Story To Help Other Bereaved Caregivers
Joanna Grey found hope in her doctors, her family and the pulmonary hypertension community after her 2016 diagnosis. Since her 2021 death from transplant complications, her family has been striving to keep her memory alive. Joanna's family shared her story with the Pulmonary Hypertension Association for the spring issue of Pathlight, PHA's quarterly magazine, and PHA's spring fundraising campaign.
Your Voice Has Power
When the Pulmonary Hypertension Association (PHA) board met in early March, immediate past chair Colleen Brunetti made time to visit Capitol Hill. She visited lawmakers and legislative staff and created a powerful video from her time in Washington, D.C.
Charitable Assistance Access Chosen as 2023 Legislative Priority
Participants in the Pulmonary Hypertension Association (PHA)’s first Advocacy Town Hall selected PHA’s top legislative priority for this year: protecting patient access to charitable assistance. The town hall also focused on another legislative priority: oxygen access.
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