FEATURED NEWS
Advisory: Reproductive Health and Pulmonary Hypertension
Pregnancy is considered high risk for people with pulmonary hypertension because their heart and lungs can’t easily adjust to the demands of pregnancy and childbirth.
New PHAR Remote Options
The PHA Registry Institutional Review Board approved additional options to remotely conduct PHAR data entry and informed consent during the pandemic. Learn about the remote informed consent and remote data entry options.
How to Conduct a PHCC Self-Study for Reaccreditation
Pulmonary Hypertension Care Center (PHCC) sites that do not participate in the PHA Registry (PHAR) are required to conduct a self-study for reaccreditation. A self-study is also required for PHAR participating sites with insufficient clinical data for re-evaluation. Learn about PHCC self-studies.
CEO Update: Annual Report Reflects Patient-Focused History and Future Impact
The Pulmonary Hypertension Association Annual Report 2021 is now online. The report reflects PHA’s achievements during the second year of the pandemic, the support of our members and selfless efforts of our volunteers. For the first time, PHA’s annual report is solely digital – and interactive. Although the format is new, the report acknowledges PHA’s proudly patient-focused, patient-driven history – and its impact and momentum into the future.
PHA Reignites Advocacy August Campaign
This year’s Pulmonary Hypertension Association’s Advocacy August campaign connected PH advocates with legislators by computer and in-person. Advocates from 10 states met with more than 20 congressional offices to ask for support of the Safe Step Act and H.E.L.P. Copays Act.
PHA Joins Health Care Advocates at White House
The Pulmonary Hypertension Association (PHA) joined health care advocates, lawmakers and others Tuesday on the White House lawn to celebrate the signing of the Inflation Reduction Act. PHA lobbied on behalf of the legislation, which will help people in the pulmonary hypertension (PH) community who receive Medicare benefits. It will also cap out-of-pocket costs and subsidize premium costs for those covered by marketplace insurance plans.
How You Can Support PHA Through Workplace Programs
Whether you’re an employee, retiree or spouse of an employee, workplace giving may be a simple and meaningful way to support the Pulmonary Hypertension Association. By participating in your employer’s giving program, you help extend and improve the lives of those affected by pulmonary hypertension.
Register for Open Enrollment Webinars
Learn how to choose a health insurance plan, and get your insurance questions answered in our PHA Live series on open enrollment. This four-part webinar series is set for 2 p.m. ET each Thursday in October. The series will provide key information to guide you through open enrollment for Medicare and other health insurance plans.
Help 11-Year-Old Baseball Player Strike Out PH
When Tyler Garigen was diagnosed with PH, he was only 4 years old. Thanks to the Pulmonary Hypertension Association (PHA), he and his family found hope for the future. “I can’t imagine living with PH without all the help from PHA.,” he says. Tyler, the face of PHA’s 30th anniversary fall fundraising campaign, encourages the PH community to help PHA continue providing support, education and research.
Georgette Recognized a Rare Catch on the Volleyball Court. His Rare Diseases Spiked Later
“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger
Patient’s Positive Attitude Inspires Nurse to Start Support Group
Debbie Kittel of Gahanna, Ohio, recently started a Pulmonary Hypertension Association support group at The Ohio State University, where she is the pulmonary arterial hypertension nursing program manager. “I am proud of how big the group has grown and how quickly it has taken off.”
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