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FEATURED NEWS

Going to PHA 2024? Help Build Stuffed Animals for Kids

By |May 20th, 2024|

PHA 2024 International PH Conference and Scientific Sessions attendees will have a new experience at this year’s conference, Aug. 15-18, in Indianapolis. On the last day of PHA 2024, the Pulmonary Hypertension Association will host a community project to unite attendees and host city Indianapolis. Participants will build stuffed animals for sick and needy children.

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Fashion Designer Crusades for PH Awareness In Nigeria

By |May 20th, 2024|

Ayotunde Omitogun faced a lack of resources, medication and knowledge about PH when she was diagnosed 10 years ago. “Everybody here knows about malaria or about cancer, but PH is an invisible disease,” says the 36-year-old founder of Yo Sabi PH. Omitogun shares her journey in PHA News and Pathlight for World PH Day.

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Can Exercise Boost Your 6-Minute Walk Distance? Find Out in Pathlight

By |May 20th, 2024|

The June issue of Pathlight focuses on “Enhancing the Quality of Life.” In our cover story, we examine the ways exercise can improve quality of life through advice from two people with PH -- Sydney Lewis and Joanne Szelag -- and three physicians.

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How We United for World PH Day

By |May 8th, 2024|

The Pulmonary Hypertension Association joined the international PH community May 5 to celebrate World PH Day. To raise awareness, the PH community shared social media posts about common symptoms, facts and conditions associated with PH. See some posts from around the world.

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Help PHA Educate Lawmakers About Treatment-Access Challenges

By |May 8th, 2024|

The Pulmonary Hypertension Association is bringing the concerns of the PH community to Congress. On June 5, PHA will host a legislative briefing for lawmakers and their legislative staff. We need your help to ensure the briefing is well attended. Invite your elected officials to attend with PHA’s pre-written template.

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Join Us for Webinar on Heritable PAH

By |May 8th, 2024|

Join the Pulmonary Hypertension Association, TBX4Life and Fundación Contra la Hipertensión Pulmonar Tuesday, June 11 for a new PHA Live webinar. The Fundamentals of Genetic Testing webinar will address heritable pulmonary arterial hypertension. Learn more about types of genetic testing for PAH, benefits and risks and understanding your test results.

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Make PHA 2024 a Family Vacation To Remember

By |May 8th, 2024|

Thinking of attending PHA 2024? Consider making your trip a family vacation. All children are welcome to join the fun in Indianapolis Aug. 15-18, whether they have PH or are children of a patient, caregiver or health care provider. PHA 2024 International PH Conference and Scientific Sessions includes activities in our Kids Room, a field trip to the Indianapolis Children’s Museum and more.

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