FEATURED NEWS
Michigan Family Shares Daughter’s PH Journey
Cheryl Wegener felt grateful when her daughter’s former classmates chose PHA as a recipient of their senior class fundraiser. She thought the donation was a fitting tribute to Madison, who died during her freshman year of high school. Cheryl shares Madison’s story for PHA's spring fundraising campaign. She and her husband will present the check from the fundraiser at PHA 2022 International PH Conference and Scientific Sessions, Aug. 15-18 in Indianapolis.
PHA 2024 Scientific Sessions You Don’t Want to Miss
Mark your calendars for PHA 2024 International PH Conference and Scientific Sessions, Aug. 15-18 in Indianapolis. Themed “Stronger Together,” the conference is a large gathering of health care professionals, patients and caregivers.
Oxygen Access Bill Introduced in Senate
Thanks to PHA and other patient organizations, a bill to improve oxygen access has been introduced in Congress. The legislation would remove supplemental oxygen from Medicare’s competitive bidding process, among other reforms. The bill’s introduction in the Senate is just the first step,” says Katie Kroner, the Pulmonary Hypertension Association’s vice president of advocacy and patient engagement. “Advocate voices are essential to drive the new bill through the legislative process.”
2 Papers That Show How PHA Supports PH Research
New research papers that increase understanding of pulmonary hypertension are linked to PHA research initiatives. One paper was authored by Catherine Simpson of Johns Hopkins University, the recipient of a Pulmonary Hypertension Association research grant. The other, by Jacqueline DesJardin of University of California-San Francisco and colleagues, was based on data from the PHA Registry.
Start a PHA Support Group
Leading a support has more benefits than you might expect. “I wanted to help bring hope to PH patients, but what I learned is that they actually have given me hope,” says Monica Penaranda, leader of PHA’s Greater Los Angeles Support Group. “It’s a beautiful thing.” Learn how to start a PHA support group in your area.
Tampa Walk Raises $20K
The sixth annual Tampa O2breathe 5K and Walk was raised more than $20,000 for the Pulmonary Hypertension Association. The Feb. 18 event at Al Lopez Park in Tampa, Florida, memorialized Missy Stok Rizzo.
Don’t Snooze on This: March 10-16 is Sleep Awareness Week
This week, the Pulmonary Hypertension Association partners with the National Sleep Foundation and Project Sleep to spread sleep apnea awareness. Learn more about sleep apnea and its connection to PH.
Risk and Resilience in Pulmonary Arterial Hypertension and Genetically Susceptible Individuals (RARE PAH)
Population: Individuals with HPAH and their family members Start Date: March 5, 2024 End Date: April 1, 2024 Phase:
Insurers Must Apply Copay Assistance Toward Your Health Care Costs
Insurance companies must now count copay assistance toward deductibles and out-of-pocket costs. Health and Human Services recently stopped fighting a 2020 federal court ruling that prevents insurance companies from shifting health care costs on patients through copay accumulators. The Pulmonary Hypertension Association has worked for years to end copay accumulators, which allowed insurance companies to profit from copay assistance without reducing patients’ financial burdens.
Game, Set, Match: Tennis Buff ‘Smashes’ PH
When Kathryn Buffington was diagnosed with PH, a doctor said she’d never play tennis again. Her response? “Watch me.” Buffington, 73, shares her exercise and medication regimens and positive thinking with the Pulmonary Hypertension Association’s Right Heart Blog.
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