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So far Archivist PHA has created 449 blog entries.

PH Angel Families Would Give Anything to Do Anything ‘Normal’ for Their Kids

2020-07-19T13:32:08-04:00December 19th, 2018|

“So, when you are thinking about all of the things you did for your kids today, think of all of the PH Angel families that would give anything to do anything "normal" for our kids. We have to find a cure.” “Our son, Weston, spent almost 3 years of his life inpatient

Is Race a Risk Factor for Pulmonary Hypertension?

2020-07-19T13:32:09-04:00December 13th, 2018|

by Phyllis Hanlon, Contributing Writer Few studies have examined whether race makes a difference in how often pulmonary hypertension (PH) occurs and what causes it. These questions prompted a specialist team at Vanderbilt University Medical Center, an accredited Pulmonary Hypertension Care Center (PHCC), to explore the issue. Overall, the team found that the African

In Memoriam: Sarah K. “Sally” Maddox, Ed.D.

2020-07-19T13:32:10-04:00December 6th, 2018|

We are deeply saddened by the passing of PHA Board of Trustees member and longtime volunteer Sally K. Maddox on Saturday, Dec. 1, 2018, in Atlanta. Diagnosed with idiopathic pulmonary hypertension at the age of 21 in 1990, Sally was a dedicated volunteer and passionate supporter of the Pulmonary Hypertension Association (PHA) since its

PHA Registry Expands Access to PH Data Service

2020-07-19T13:32:11-04:00December 6th, 2018|

A new Data Analysis Service launched this week by the Pulmonary Hypertension Association (PHA) enables researchers and organizations not involved in PHA’s Pulmonary Hypertension Association Registry (PHAR) to use data from the multi-center patient registry. PHAR is part of an innovative and critical PHA initiative to improve care for persons with pulmonary hypertension (PH),