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So far Archivist PHA has created 843 blog entries.

Baltimore Leader Finds Timely Topics

2020-02-13T18:14:13-05:00February 13th, 2020|

Laura Camponeschi, leader of the Baltimore-Johns Hopkins PH Support Group, tries to ensure lively discussions in her quarterly meetings. The December 2019 meeting featured helpful travel suggestions from Julie Shamberger, R.N. Afterward, one member showed off a roller backpack she adapted to help her easily navigate with her oxygen. Another shared the name of

Jason Boehme Awarded Grant to Fund Study in Pediatric PAH

2020-02-06T16:57:04-05:00February 6th, 2020|

Jason Boehme, M.D., received the 2019 PHA Robyn J. Barst, M.D. Pediatric PH Research & Mentoring Grant in honor of Jackson Wall, one of three Pulmonary Hypertension Association (PHA) research grants awarded last year. An assistant professor of pediatrics at the University of California, San Francisco, Boehme is studying “Pulmonary Vascular Smooth Muscle Metabolic

PHA Opposes Increased Eligibility Review for Disability Assistance

2020-02-06T16:56:05-05:00February 6th, 2020|

The Social Security Administration (SSA) proposed changing the social security disability insurance (SSDI) process to make its eligibility review more frequent. PHA opposes the change and wrote to SSA in January to recommend that people with pulmonary hypertension (PH) undergo eligibility review less often. Currently, SSA reviews SSDI eligibility every year, every three years

Recent PAH Diagnosis Related to Congenital Heart Defect

2020-02-06T16:54:39-05:00February 6th, 2020|

In recognition of American Heart Month in February, the Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Lisa Goldstein. She recently was diagnosed with pulmonary arterial hypertension (PAH) related to Scimitar Syndrome, a congenital heart defect she only learned about as an adult. Lisa was diagnosed with Scimitar Syndrome in 2013

Volunteer Spotlight: New South Dakota Support Group Launches

2020-02-06T17:03:11-05:00February 6th, 2020|

When Jeri Nudell was at the Pulmonary Hypertension Association’s (PHA’s) International PH Conference and Scientific Sessions in Orlando in 2018, she met an inspiring fellow attendee. In their long conversation, Charlotte Gilbert told Jeri that she was no longer blogging because her PH had progressed too much. Jeri shared that she had never been

Lisa Goldstein: Congenital Heart Defect Leads to Recent PAH Diagnosis

2020-02-06T16:51:17-05:00February 6th, 2020|

“This year, 2020, has brought me new challenges, but it has also brought me new hope. I feel connected to patients like me, patients I can finally relate to.” I was diagnosed with pulmonary arterial hypertension (PAH) on Dec. 18, 2019, which came about by a congenital heart defect, Scimitar Syndrome. My

Research Room Brings Community Together to Advance PH Studies

2021-12-14T12:36:45-05:00January 30th, 2020|

Researchers who study pulmonary hypertension (PH) can apply now to advance their research at the PHA 2020 International PH Conference and Scientific Sessions, which brings the PH community to Anaheim, California, to learn, connect and share a focus on a common “Vision for a Cure.” In addition, all attendees at PHA 2020 may take

Young Investigator’s Research Looks at Vascular Remodeling in PAH

2021-12-14T12:36:46-05:00January 30th, 2020|

Ke Yuan, Ph.D., received the 2019 PHA Aldrighetti Research Award for Young Investigators, with sponsorship support provided by Actelion Pharmaceuticals, U.S. The award, one of three Pulmonary Hypertension Association (PHA) research grants awarded last year, funds Yuan’s proposal, “SDF1 signaling: A Master Regulator of Mural Cell-Dependent Vascular Remodeling in PAH.” Yuan is an associate

10 Years Since Diagnosis and Life Is Getting Better

2021-12-14T12:36:46-05:00January 30th, 2020|

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Aubrey Stout, who lives with idiopathic pulmonary arterial hypertension (PAH). Life hasn’t always been easy for Aubrey over the last 10 years since was diagnosed with PAH. She has experienced multiple life changes as she has adapted to her life