Marcie McGregor treasures every opportunity to wrap her arms around her granddaughters. After her pulmonary arterial hypertension (PAH) diagnosis in 2012, she didn’t think she’d live to see grandchildren. Marcie shares how the Pulmonary Hypertension Association (PHA) helped through every step of PH journey through its resources, support group and biennial conference. Her story is a reminder that when you give to PHA, you’re giving people with PH hope for the future.
Congress is already working on the budget for fiscal year 2023. That’s why it’s important to ask lawmakers now to increase investment in the National Institutes of Health (NIH). Increased funding will ensure life-saving research can continue.
The Pulmonary Hypertension Association (PHA) is accepting applications for its new Innovation Research Award. The award supports new areas of pulmonary hypertension research that couldn’t have been explored without PHA funding. Any areas of innovative pulmonary hypertension research will be accepted. Up to $60,000 a year for two years is available.
The Pulmonary Hypertension Association will join more than 80 organizations around the world May 5 to mark World PH Day. PHA’s World PH Day theme this year is “Pulmonary Hypertension Has No Borders.” PH can affect anyone regardless of age, sex, race, social or ethnic background. New in 2022, PHA and the Pulmonary Vascular Research Institute are jointly focusing on treatment access, particularly for those affected by war and tragedy.
Nadine Al-Naamani, M.D., was inspired to become a doctor after growing up in Beirut during the civil war in Lebanon. She knew then that she wanted to help people around her. Today, she treats people with pulmonary hypertension (PH) and other serious lung conditions at Penn Medicine and conducts PH research. She is an assistant professor of medicine at University of Pennsylvania Hospital, a Pulmonary Hypertension Association-accredited PH Care Center. She originally shared her story with Pathlight, PHA’s quarterly member magazine.
Celebrate World PH Day by enlisting elected officials in the fight against pulmonary hypertension (PH). Some advocates are meeting with legislators May 5 to ask them to advance the Pulmonary Hypertension Association’s priority bills. Amplify their impact by sharing your message with Congress from home.
Twelve years after her pulmonary hypertension diagnosis, Marcie McGregor credits her faith in God, her doctors and the Pulmonary Hypertension Association (PHA) for where she is today. Marcie shares her story for PHA’s spring fundraising campaign, which begins April 29.
This month, the Pulmonary Hypertension Association (PHA) joined the Foundation for Sarcoidosis Research and the Sjogren’s Foundation to awareness months for the rare diseases that can cause pulmonary hypertension.
Show how you dress up or conceal your infusion pumps/tubes or portable oxygen canisters at the PHA 2022 fashion show. The June 11 event is a popular feature of the Pulmonary Hypertension Association’s biannual International PH Conference and Scientific Sessions. Choose from four categories to style your outfit: formal wear, pulmonary hypertension pride, sports and superheroes. All patient attendees are eligible to participate, including children.