This year’s Pulmonary Hypertension Association’s Advocacy August campaign connected PH advocates with legislators by computer and in-person. Advocates from 10 states met with more than 20 congressional offices to ask for support of the Safe Step Act and H.E.L.P. Copays Act.
The Pulmonary Hypertension Association (PHA) joined health care advocates, lawmakers and others Tuesday on the White House lawn to celebrate the signing of the Inflation Reduction Act. PHA lobbied on behalf of the legislation, which will help people in the pulmonary hypertension (PH) community who receive Medicare benefits. It will also cap out-of-pocket costs and subsidize premium costs for those covered by marketplace insurance plans.
Whether you’re an employee, retiree or spouse of an employee, workplace giving may be a simple and meaningful way to support the Pulmonary Hypertension Association. By participating in your employer’s giving program, you help extend and improve the lives of those affected by pulmonary hypertension.
Learn how to choose a health insurance plan, and get your insurance questions answered in our PHA Live series on open enrollment. This four-part webinar series is set for 2 p.m. ET each Thursday in October. The series will provide key information to guide you through open enrollment for Medicare and other health insurance plans.
When Tyler Garigen was diagnosed with PH, he was only 4 years old. Thanks to the Pulmonary Hypertension Association (PHA), he and his family found hope for the future. “I can’t imagine living with PH without all the help from PHA.,” he says. Tyler, the face of PHA’s 30th anniversary fall fundraising campaign, encourages the PH community to help PHA continue providing support, education and research.
“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean, live in Suffolk, Virginia. Together they have four children and a dog Annabell. Dean was diagnosed with scleroderma in 1997 and pulmonary arterial hypertension in
Debbie Kittel of Gahanna, Ohio, recently started a Pulmonary Hypertension Association support group at The Ohio State University, where she is the pulmonary arterial hypertension nursing program manager. “I am proud of how big the group has grown and how quickly it has taken off.”
After an introductory session by Jaeger Spratt, Danielle Burkett will present three PHA Live webinars on open enrollment. Join us at 2 p.m. ET each Thursday in October, and get your insurance questions answered. Danielle is a certified medical assistant at Duke University Hospital’s Pulmonary Vascular Disease Center, where she helps patients with insurance issues and financial assistance for medication.
The Pulmonary Hypertension Association joins the Pulmonary Fibrosis Foundation and Sickle Cell Disease Association of America in September in celebrating their awareness months. Learn more about the PH connection to pulmonary fibrosis and sickle cell disease, and spread awareness on social media with our sample posts and graphics.
Population: Adult patients with PAH who participated in the BREEZE clinical trial. Start Date: August 23, 2022 End Date: September 30, 2022 Phase: IV Institution: RTI Health Solutions, United Therapeutics International not-for-profit research organization, RTI Health Solutions (RTI-HS), in partnership with United Therapeutics is conducting interviews to gather patient feedback