Gwendolyn Brown has lived with pulmonary arterial hypertension (PAH) for more than 40 years. She has survived a heart attack, three strokes and 11 mini strokes. She leads the Pulmonary Hypertension Association (PHA)’s Cleveland Community Support Group and is a minister at Zion Pentecostal Church of Christ.
A month before Genevieve Hughes turned 50, severe shortness of breath forced her to seek emergency treatment. “I thought I was just getting older and out of shape,” says Genevieve, who later learned she had idiopathic pulmonary arterial hypertension and eventually would need a double-lung transplant. Now two years post-transplant, she’s breathing deeply and enjoying her gift of life.
Two years ago, Gary Atkinson created a fundraising team for the Boston O2breathe Walk to honor his daughter’s memory. Gary, a former resident of West Townsend, Massachusetts, named the team “Because of Sarah” for his daughter, who was born with pulmonary hypertension and died almost 21 years ago at age 18.
How far we’ve come since our beginnings at a kitchen table! As the Pulmonary Hypertension Association celebrates its 30th anniversary, we are proud to unveil an interactive timeline that provides the shared history of our organization and the PH community. Although we’ve accomplished far more than “30 Milestones in 30 Years,” the timeline highlights major achievements over our first three decades.
Diane Ramirez of Lexington, North Carolina, was diagnosed with pulmonary arterial hypertension in 1987. At the time, fewer than 200 cases were known of the disease then known as primary pulmonary hypertension (PH). Diane originally shared her PH journey in the December 2020 Pathlight magazine, which launched the Pulmonary Hypertension Association’s 30th anniversary celebration.
Sarah Donoughue was terrified in 2018 when her care team suggested a lung transplant. Three years later, the 17-year-old Texan says she is living, loving and thriving at life. She shares her transplant journey for Donate Life Month in April.
The Pulmonary Hypertension Association is launching a monthly telephone support group for Spanish-speaking patients. The first call is at 8 p.m. April 28 EDT. Future calls will be at 8 p.m. on the fourth Wednesday of every month. Register or join by phone or computer. Email us or call 301-565-3004 ext. 777 (in English).
Join Colleen Brunetti, M.Ed., C.H.C, at 8 p.m. EDT Friday, April 9 for a conversation about grief, hope and pulmonary hypertension (PH). Colleen, the second patient to chair the Pulmonary Hypertension Association Board of Trustees, will share her perspective as a PH patient and leader. Bring your questions, share your stories and connect with the community.
Candace and her family became involved in the Detroit O2breathe Walk to give back and get more involved in the PH community. She met others with PH like me through the walk, giving her hope and people to relate to.