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About James Wetherill

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So far James Wetherill has created 603 blog entries.

Advocates Make an Impact With World PH Day Legislative Visits

2023-06-08T10:28:41-04:00June 6th, 2023|

Pulmonary hypertension advocates met with congressional offices in May to request support for health care reforms. The advocates urged legislators to cosponsor the Safe Step and the H.E.L.P. Copays acts. They also discussed the need for supplemental oxygen access reform. Find out which senator signed on to the Safe Step Act a few days after hearing from a PHA advocate.

PHA Comments on ICER Review of Sotatercept

2023-06-08T10:21:10-04:00June 6th, 2023|

The Pulmonary Hypertension Association recently asked the Institute for Clinical and Economic Review to modify its draft document about sotatercept for pulmonary arterial hypertension (PAH). PHA seeks changes to language about medication side effects, supplemental oxygen access and sotatercept’s unique characteristics to potentially treat PAH.

Help Us Learn About People with PH and HHT

2023-06-08T10:18:17-04:00June 6th, 2023|

During HHT Awareness Month, the Pulmonary Hypertension Association joins Cure HHT to raise awareness of hereditary hemorrhagic telangiectasia, a condition that can cause pulmonary hypertension. We need your help to help educate others about PH and HHT. If you have HHT-related pulmonary arterial hypertension or want to understand your risks, complete our brief survey.

Support Group Leaders Enhance Skills at Training Workshop

2023-06-08T10:19:07-04:00June 6th, 2023|

Support group leaders from California and Arizona participated in the Pulmonary Hypertension Association’s most recent Support Group Leader Training Institute. The May 7 event in San Diego featured interactive activities to enhance participants’ skills in planning, promoting, hosting and managing support group meetings.

Advocacy Pays Off Now That Full Senate Will Consider Safe Step Act

2023-05-25T10:39:32-04:00May 24th, 2023|

Thanks to Pulmonary Hypertension Association (PHA) advocacy efforts, the Safe Step Act moves to the full Senate floor for the first time. “This is a huge step in the legislative process. While there is more work before this bill becomes law, PHA celebrates this milestone achievement,” says PHA President and CEO Matt Granato.

San Diego Workshop Provides Opportunities To Connect, Learn and Share

2023-05-25T10:38:20-04:00May 24th, 2023|

More than over 80 people attended the Pulmonary Hypertension Association’s recent education workshop. PHA Connects: PH Community Workshop addressed medication side effects, chronic thromboembolic pulmonary hypertension and blood abnormalities associated with PH, among other topics. The free, daylong event, formerly known as PHA On the Road, also included support group meetings.

PHA Educates Health Care Providers at ATS Conference

2023-05-25T10:35:35-04:00May 24th, 2023|

The Pulmonary Hypertension Association participated in the American Thoracic Society Conference this week to educate attendees about PHA resources and benefits for patients and professionals. PHA also met with industry partners and soaked science (including clinical trial results) presented at sessions. Learn more about benefits for health care professionals.

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