“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in hopes that such a tragedy is decreased, and early detection and diagnosis is obtained so that treatment can begin early and hopefully a better outcome.”
The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent an advocacy opportunity since many of them are probably not familiar with PH. Compelling personal stories from constituents are all it takes to turn members
The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s pediatric community. The survey was conducted to learn more about the community’s challenges, needs and interests. PHA received responses from hundreds of health care providers,
The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary hypertension (PH), never misses his monthly caregiver support group. Since it meets by phone, it is easier for him to maintain the perfect attendance record
The Pulmonary Hypertension Association (PHA) recently published three new courses on PHA Online University, a program of PHA’s multi-sponsored Medical Education Fund and the go-to web platform for health care professionals to acquire relevant and reliable information about pulmonary hypertension (PH). The courses are part of the “Pulmonary Hypertension: The Basics” curriculum series to educate
Pathlight, the flagship magazine of the Pulmonary Hypertension Association, is published quarterly and sent to all members of PHA. Don’t miss the many interesting articles in the December 2018, Issue 4 magazine, including: “Living on Oxygen 24/7” Cover story: A progressive heart and lung disease and a PAH diagnosis isn’t stopping Alexis Trotter from
Since the first Pulmonary Hypertension Association (PHA) Conference in 1994, the Research Room at PHA’s International PH Conference and Scientific Sessions has offered a dedicated space for individuals with pulmonary hypertension (PH) and their families to participate in research by leading physicians and scientists. This participation furthers the researchers’ studies through the collection of
Last year’s most popular PHA News articles focused on Pulmonary Hypertension Association (PHA) patient resources; treatments, clinical care and research in pulmonary hypertension (PH); and stories about individuals with PH. Here are the 10 most popular PHA News articles from 2018, in descending order: Study Finds Inhaled Nitric Oxide May Benefit Patients with COPD
“Although having CTEPH has caused me a lot of pain, sadness and anger, it has allowed me the opportunity to meet such amazing, supportive, people through conferences and support groups. These wonderful people gave me the hope and strength I needed to beat this disease.” by Jamie Prettner “I was diagnosed with pulmonary
The Pulmonary Hypertension Association’s (PHA’s) Pulmonary Hypertension Care Centers (PHCC) program granted Regional Clinical Program (RCP) accreditation to the Cardiovascular Institute of North Colorado in December. PHA launched the PHCC accreditation program in 2014 to improve the quality of care and outcomes for people with pulmonary hypertension (PH). Nationwide, PHCCs provide treatment for more
