PHaces of Hope: Ralf Schmiedel
“I found that time gives a lot of hope. Time that you survived and not worsened.”
PHaces of Hope: Sydni Burgess – Caregiver
“My hope is that people see it like my mom did, not as a bump in the road but to just keep moving forward and take one day at a time…”
PHaces of Hope: Mona Singh
"My motto these days is: ‘Don't just survive but THRIVE!’ Thriving means raising awareness of this rare disease and raising funds for research.”
PHaces of Hope: Amanda Martin
“What gives me hope is seeing the continued education and research that medical professionals are doing to work towards improved treatments for this disease.”
PHaces of Hope: Rosemary Graham
“I am grateful and hopeful that despite the challenges, I am still able to push through to be as active as I can in my day-to-day life and ministry.”
Pulmonary Hypertension Awareness Month Inspires Hope, Education
Pulmonary Hypertension Awareness Month in November featured inspiring stories of hope and important educational messages, all of which could not be possible without the participation of everyone in the pulmonary hypertension (PH) community. PH Awareness Month served as an opportunity to raise awareness about pulmonary hypertension risk factors and symptoms and to rally the
PHA Donors Show Record Generosity on GivingTuesday
Thanks to the generosity of the pulmonary hypertension (PH) community, the Pulmonary Hypertension Association (PHA) raised $51,819.30 in donations on GivingTuesday. This year, the Doerge and Blesi families pledged to match every PHA donation dollar-for-dollar, up to $18,000, in honor of their daughter Zoe’s 18th birthday. With the $18,000 match from the Doerge
Copay Grant Applications and 2020 Re-Enrollment: The Assistance Fund
Enroll now for aid from The Assistance Fund, a nonprofit patient assistance foundation that helps patients and families with high medical out-of-pocket costs by providing financial assistance for copays, deductibles, coinsurance and other health-related expenses for FDA-approved medications for a variety of diseases, including pulmonary hypertension (PH). New Applications The Assistance Fund is currently
Last Chance for Open Enrollment
Open enrollment for two types of insurance ends soon: Medicare Open Enrollment ends Dec. 7, 2019. Visit Medicare.gov to learn more and choose coverage. Marketplace Open Enrollment ends Dec.15, 2019. Visit Healthcare.gov to learn more and choose coverage. At the conclusion of these open enrollment periods, purchasing or changing health insurance coverage through these
Dallas Training Session Helps Support Group Leaders Tackle Challenging Issues
With assistance from the PHA Support Group Leader Training Institute, endowed by United Therapeutics, the Pulmonary Hypertension Association (PHA) held a regional support group leader training in Dallas on Saturday, Nov. 16. Eleven support group leaders attended, representing nine support groups from Texas, Oklahoma and South Carolina. This rigorous day of educational and networking