Dear Pulmonary Hypertension Community, All of us in the pulmonary hypertension community have a shared concern over the spread of a new respiratory illness called COVID-19, caused by the novel coronavirus, “SARS-CoV-2.” The health and safety of our patients, caregivers, family members and health care professionals are the top priority of the Pulmonary Hypertension
“Before the ACA, I watched the lifetime coverage cap very closely. My daughter with pulmonary hypertension (PH) and heart disease had used almost half her cap before the passage of the ACA, and she was a toddler. I didn't know what we'd do if she hit the cap, which she would have done in
The much-anticipated Art Gallery returns to PHA 2020 International PH Conference and Scientific Sessions June 12-14 in Anaheim, California. The Art Gallery’s successful debut was at the 2018 PHA Conference in Orlando, Florida. The Art Gallery will feature original artwork created by members of the pulmonary hypertension (PH) community. Submissions for the Art Gallery
“There is light at the end of the tunnel, and you are more than just PH. We will fight and we will win!” Chelsea Kennedy, 27, has been living with pulmonary hypertension (PH) since 2018. She lives with her five children, husband and three dogs in Winston-Salem, North Carolina. She is studying cardiovascular
The Pulmonary Hypertension Association (PHA) will host the annual PHA St. Louis Area Trivia Night Friday, March 27, in Maryland Heights, Missouri. The trivia night will bring together people with pulmonary hypertension (PH), friends, family and health care providers for fun, friendly competition. Teams will work together to answer eight rounds of trivia questions.
“If I didn’t advocate for myself and put matters in my own hands, I would still be suffering until this day.” By Robert Stewart On March 17, 2017, I could hardly breathe as I played my third day straight of tennis. My tennis partner thought I was having a heart attack. On
Tara Suplicki decided to start volunteering when she learned she had pulmonary hypertension (PH). Today, she leads the Morristown, New Jersey, Pulmonary Hypertension Association (PHA) support group with Patrick Mellin. Tara describes how she got involved: “I was in the hospital with a stroke and this illness. My mother said, ‘You can either go
Dear PH Community,Every year, the Pulmonary Hypertension Association (PHA) participates in a global campaign to draw attention to rare diseases. We mark Rare Disease Day – the last day in February – by engaging the PH community and joining more than 800 other organizations from 70 countries on social media to draw attention to rare
“I thought my life was over, but through the PHA and friends and family and doctors, I found the help I needed.” In recognition of Rare Disease Day and American Heart Month in February, the Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a video featuring Quinland Folkestad. Quinland has pulmonary arterial
Holly Szmutko is a passionate volunteer and advocate on behalf of the pulmonary hypertension (PH) community. She became involved after she was diagnosed with pulmonary hypertension in January 2019 after several misdiagnoses. Then she had to try multiple therapy options before finding a combination that made her feel better instead of worse. She was
