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So far PHA Staff has created 312 blog entries.

PHA on the Road – San Francisco Educates and Inspires

2019-08-15T17:34:19+00:00August 14th, 2019|

The PHA on the Road –San Francisco PH Patients and Families Education Forum drew almost 200 members of the pulmonary hypertension (PH) community to the San Francisco Westin Airport hotel for a day of education, inspiration and connecting. The event for individuals with PH and their families and caregivers featured informative sessions from local

Exercise and PH Topic of Newest Advances in Pulmonary Hypertension

2019-08-15T17:33:34+00:00August 14th, 2019|

Now online, Volume 18, Issue 2 of Advances in Pulmonary Hypertension, official journal of the Pulmonary Hypertension Association, is dedicated to the role of exercise in pulmonary hypertension (PH). “Exercise and PH: Nuts, Bolts and Clinical Uses” is guest edited by Ronald J. Oudiz, M.D., Director of the Liu Center for Pulmonary Hypertension at UCLA

Lee Ann and Chris Scott Walk in Philadelphia for Grandson Cayden

2019-08-15T17:35:16+00:00August 14th, 2019|

The Pulmonary Hypertension Association (PHA) will be hosting the annual Philadelphia O2breathe Walk on Saturday, Sept. 21, in Philadelphia, Pa. The walk allows individuals with pulmonary hypertension (PH), caregivers, friends, family and health care professionals to come together as a community for a fun and meaningful day. The goal of the walk is to

Volunteer Spotlight: Parent Telephone Support Group Facilitators

2019-08-15T17:31:58+00:00August 14th, 2019|

Jenn Garigen and Jane Northrop facilitate PHA’s monthly parent telephone support group, a place where parents of children with PH can connect and share experiences, challenges and triumphs. Jenn has been facilitating the telephone support group since it launched in early 2018. Jenn and Jane met at PHA’s International PH Conference and Scientific Sessions

CEO Update: Thanks to Our Volunteers Who Bring You PHA on the Road

2019-08-08T18:19:16+00:00August 8th, 2019|

Dear PHA Community, While we keep in regular touch with many in our Pulmonary Hypertension Association (PHA) PHamily online — through PHA News and other e-communications, our website, online support groups and our social media platforms — we are also highly committed to connecting with our Community in person – through more than 200

PHA Releases New Videos on Clinical Research

2019-08-14T17:01:01+00:00August 8th, 2019|

The Pulmonary Hypertension Association (PHA) recently released the final three of its six-part educational video series on clinical research. The full series, which is available free on PHA Classroom, covers a range of topics related to clinical research and developing new pulmonary hypertension (PH) therapies. The new video series is designed to complement PHA’s

Colleen Daniel Looks Forward to Her Third Southern California Walk

2019-08-14T17:23:34+00:00August 8th, 2019|

Individuals with pulmonary hypertension (PH), their friends, family and health care professionals who treat the disease will come together in Fountain Valley, Calif., on Sept. 14 to participate in the Pulmonary Hypertension Association’s (PHA’s) 2019 Southern California O2breathe Walk. “I have been involved in PHA’s Southern California O2breathe Walk for two years; the walk

PHPN Symposium Explores Latest in Implantable Pumps and Oxygen Delivery Devices

2019-08-12T18:14:34+00:00August 8th, 2019|

The PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” being held from Sept. 5-7 in Washington, D.C., will offer attendees informative sessions on the latest breakthroughs in PH research and treatment. Two sessions of note include updates on implantable pumps and oxygen delivery devices. Attendees to “Implantable

Volunteer Spotlight: The Texas Children’s Pediatric Support Group in Houston, Texas

2019-08-12T20:20:30+00:00August 8th, 2019|

The Texas Children’s Pediatric Support Group in Houston, Texas, hosted its first meet and greet meeting to create a family-centered support network. Approximately 30 people attended the event, and there were many conversations about different tips and tricks that parents have found helpful. “As one of the planners of this event, it was particularly