Recent Research and the PHA Registry – How PHAR have we come? How PHAR can we go?
Data from the registry encompasses multiple areas including, but not limited to: demographic characteristics, evaluation to diagnosis and treatment, and quality metrics. See for yourself some of the most recent data obtained from the registry. Gender Age at Enrollment Race Ethnicity Pulmonary Hypertension Diagnosis PAH Type Smoking History Body Mass Index (BMI) Diagnostic Evaluations Performed
What to Expect from the Federal Government Shutdown
The federal government shutdown disrupts business as usual for Congress and many federal agencies. Fortunately, however, there are some critical government activities that are able to continue. During a shutdown: Medicare recipients may continue to see their healthcare providers and have their claims submitted Social security benefit checks will still be mailed, though there may
2018 Comes with New PH Patient Assistance Funding News
PHA continues to update information on funding available to assist people living with PH who are in need of assistance to pay for their medications. As of Jan. 2, 2018, PHA has learned that the PAN Foundation is accepting applications from individuals whose PH medication is covered by Medicare. Initial grant is $5,300/year with option
Happy Holidays from the Pulmonary Hypertension Association
As Pulmonary Hypertension Association (PHA) staff members prepare for the holidays, we wish all in our community Season’s Greetings. While the PHA offices will be closed Dec. 25, 2017 through Jan. 1, 2018, we encourage you to Like the Pulmonary Hypertension Association Facebook page. That’s where we will provide periodic posts that will include any
Additional PH Patient Assistance Funding Available
Within an hour after issuing our Dec. 21 PHANews, PHA learned that the Patient Advocate Foundation (PAF)’s PH fund has been fully allocated and is not currently accepting applications. PHA will continue to share information about financial assistance opportunities for the PH community as we receive them. PHA has recently updated our financial assistance page:
PHA Volunteers and Support Group Leaders Bring a Year of Joy and Support to PH Community
PHA’s support services have reached record numbers of patients and families through our in-person, online and telephone services. More in-person support groups have met in 2017 than ever before! 240 active support groups in 2017 met over 700 times across the country, from the high desert of California to the western shores of Puerto Rico,
Living and Breathing through PH – and Hurricane Maria
by Luis Cortes I was born in 1976 and raised on the beautiful island of Puerto Rico with a congenital heart defect called, Tetralogy of Fallot. Since no open heart surgeries were done on the island back then, my parents took me to the Women & Children's Hospital of Buffalo in New York in
PHA PHriends: Handling Crisis Calls
Required Training for volunteers in the PHA PHriends Program. Please note, you will not need an access code; those directions, if mentioned, are for live event participants.