The National Heart, Lung, and Blood Institute’s (NHLBI’s) Division of Lung Diseases celebrated its 50th anniversary April 9 with an NIH Symposium on lung research followed by a reception at the Rayburn House Office Building on Capitol Hill, Washington, D.C. The anniversary’s theme is “Celebrating 50 Years of Progress in Pulmonary Science.” Staff from
Health care professionals can register today for the Pulmonary Hypertension Association’s (PHA’s) 2019 PH Professional Network (PHPN) Symposium Sept. 5-7 in Washington, D.C., and take advantage of their proximity to Capitol Hill during Advocacy Day on Sept. 5. Nurses, respiratory therapists and physicians can advocate for their patients and their practice in facilitated, small
National Donate Life Month continues to showcase the impact of registering to become an organ donor. This simple act can bring hope to patients on the National Transplant Registry waiting for an organ. This month, the Pulmonary Hypertension Association (PHA) has highlighted amazing stories of how organ donation provides recipients with a second chance
“The change in my life and my recovery is nothing short of amazing. I will be forever grateful to my donor and her family for the precious gifts they gave me. I will cherish our organs forever…” "I am Michelle, a single mom of two, Michela, 17 and Mikhail, 10. We are
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th International Society for Heart and Lung Transplantation Annual Meeting and Scientific Sessions in Orlando, Fla., by principal investigator Nicholas Hill, M.D., from Tufts University School of Medicine
The U.S. Food and Drug Administration (FDA) reports that the in-person registration for their April 29 public meeting “Patient Perspectives on the Impact of Rare Diseases” is full. However, interested persons can still register to attend via webcast. In addition, the FDA invites those interested in attending in-person to join the waitlist. The FDA
National Donate Life Month continues to celebrate the capacity we all possess to give life and hope by registering to become an organ donor. Every ten minutes, someone is added to the National Transplant Registry. Depending on the availability of necessary organs, wait times for patients on the list can be anywhere from days
The Pulmonary Hypertension Association (PHA) currently hosts five specific Facebook groups for people living with PH. These groups provide members with a supportive space to share stories, updates, goals, worries and hopes, and ask questions and affirm others on their journeys. PHA hosts the following groups: Long Term Thrivers – for people living with
The Pulmonary Hypertension Association (PHA) listens to the health care community’s comments about the topics they want to learn about at PHA’s educational programs. That’s why the 2019 Pulmonary Hypertension Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” will feature a variety of sessions on pediatric topics
“I feel so blessed to have been given this second chance opportunity. It never would have happened had it not been for someone who became an organ donor.” "You may remember my 1,200-mile trip from Florida to Massachusetts, by train, in September 2017. A lot has happened since then and I thought
