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So far PHA Staff has created 152 blog entries.

In Memoriam: Sarah K. “Sally” Maddox, Ed.D.

2018-12-06T18:54:15+00:00 December 6th, 2018|

We are deeply saddened by the passing of PHA Board of Trustees member and longtime volunteer Sally K. Maddox on Saturday, Dec. 1, 2018, in Atlanta. Diagnosed with idiopathic pulmonary hypertension at the age of 21 in 1990, Sally was a dedicated volunteer and passionate supporter of the Pulmonary Hypertension Association (PHA) since its

PHA Registry Expands Access to PH Data Service

2018-12-06T18:43:48+00:00 December 6th, 2018|

A new Data Analysis Service launched this week by the Pulmonary Hypertension Association (PHA) enables researchers and organizations not involved in PHA’s Pulmonary Hypertension Association Registry (PHAR) to use data from the multi-center patient registry. PHAR is part of an innovative and critical PHA initiative to improve care for persons with pulmonary hypertension (PH),

Prepare Now for Insurance and Financial Assistance Changes

2018-12-06T21:48:59+00:00 December 6th, 2018|

Many individuals with pulmonary hypertension (PH) experience changes in their health insurance coverage or charitable assistance grants at the beginning of the year. In many cases, these changes mean that doctors’ offices and specialty pharmacies must take additional steps before prescriptions can be filled. Contact your PH doctor and specialty pharmacy now to reduce

Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room

2018-11-29T21:44:15+00:00 November 29th, 2018|

Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research study published using data collected through the Research Room at the Pulmonary Hypertension Association’s (PHA’s) 2018 International PH Conference and Scientific Sessions in Orlando, Fla. By collecting

PHantastic Response to Giving Tuesday Campaign

2018-11-29T21:45:42+00:00 November 29th, 2018|

Two families offered a match for this week’s 2018 Giving Tuesday campaign, helping boost the Pulmonary Hypertension Association’s (PHA) total donations to a record-breaking $61,882 for the annual giving event. The Doerge and Blesi families, who were first touched by pulmonary hypertension (PH) when daughter Zoe Doerge was diagnosed, offered a $17,000 match in

PH Community Steps Up to Increase Pulmonary Hypertension Awareness

2018-11-29T21:47:03+00:00 November 29th, 2018|

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart campaign delivered a big impact during Pulmonary Hypertension Awareness Month, thanks to the efforts of the PH community. With the help of individuals with PH, families, caregivers, volunteers and health care providers, PHA raised awareness of PH in many ways, including special events and support group

Pulmonary Hypertension Awareness Month Announced in Congress

2018-11-29T21:48:31+00:00 November 29th, 2018|

U.S. Rep. Jamie Raskin (D-MD), submitted remarks earlier this month recognizing November as Pulmonary Hypertension Awareness Month. His full comments, included below, informed Congress about the severity of pulmonary hypertension and the importance of prompt diagnosis, effective treatment and a cure. HON. JAMIE RASKIN of Maryland in the house of representatives Friday, November 16,