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So far PHA Staff has created 244 blog entries.

Blog Focuses on the Challenges of Fighting Lupus and PH

2019-05-16T15:45:30+00:00May 16th, 2019|

The Pulmonary Hypertension Association (PHA) is recognizing both World PH Day and Lupus Awareness Month throughout the month of May. Lupus is a long-term autoimmune disease in which the body's immune system becomes hyperactive and attacks normal, healthy tissue. Symptoms include inflammation, swelling and damage to the joints, skin, kidneys, blood, heart and lungs.

Ambrisentan Options for Individuals with Pulmonary Arterial Hypertension

2019-05-16T15:43:36+00:00May 16th, 2019|

At the end of March, the Food and Drug Administration (FDA) approved four generic versions of ambrisentan, the pulmonary arterial hypertension-targeted therapy marketed as the brand name Letairis®. All the new generic ambrisentan products (and Letairis) will be available through specialty pharmacies. At least one will also be available at retail locations. REMS Enrollment

Limerick-filled Debate on Treatment Is Sure to Inform and Amuse

2019-05-16T15:46:16+00:00May 16th, 2019|

The Pulmonary Hypertension Association’s (PHA’s) PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” Sept. 5-7, will feature a “limerick showdown” between Robert P. (Bob) Frantz, M.D., and Victor F. “Vic” Tapson, M.D. The two physicians will debate the hot topic, “To Treat or Not Treat mPAP of 20-24.” Dr.

Boston O2breathe Walk Team Commemorates ‘Vivacious’ Teenager

2019-05-16T15:44:56+00:00May 16th, 2019|

Despite being diagnosed with idiopathic pulmonary arterial hypertension as an infant in the mid-80s, Sarah Atkinson lived a happy childhood. “She rode her bike, swam in the pool, we traveled a little and she tortured her siblings…Sarah could surprise others with unexpected acts of love, such as rubbing my forehead when I wasn't feeling

Celebrate Nurses Week and Sign Up for Symposium

2019-05-09T15:42:19+00:00May 9th, 2019|

In honor of National Nurses Week, May 5-12, the Pulmonary Hypertension Association (PHA) extends its heartfelt thanks to the many nurses worldwide who assist pulmonary hypertension (PH) patients and their families every day. We hope that many nurses will take advantage of early-bird registration for our PH Professional Network (PHPN) Symposium, “Influencing the Practice:

Advocacy Success: Three States Pass Laws to Protect Patients Using Copay Cards

2019-05-09T20:15:01+00:00May 9th, 2019|

This year, Virginia and West Virginia passed legislation that requires all forms of copay assistance to count toward an individual’s deductible. Arizona passed more limited legislation that is a step in the right direction. Arizona requires copay assistance to be counted when no generic equivalent is available or when a patient has undergone step

FDA Comment Period on Life with a Rare Disease Still Open

2019-05-14T13:11:47+00:00May 9th, 2019|

Individuals with pulmonary hypertension (PH) and staff from the Pulmonary Hypertension Association (PHA) weighed in during a recent public meeting about living with a rare disease. The meeting was hosted by the U.S. Food and Drug Administration (FDA) and was designed to give people living with rare diseases and their family caregivers an opportunity