Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart Association and published in the CHEST Journal. The panel, which included several PHA members and a patient representative, looked at 300 recent studies to complete the update
Researchers and health care providers know that patients with rare diseases frequently rely on the internet for information on their condition, how it is diagnosed, how it is treated and how to live with a new condition. YouTube is frequently consulted, especially when tasks are being learned, such as mixing medications. But patient-directed
“I had noticed for almost a year now that I had shortness of breath. I thought it was because I had gained some weight.” “I am a 62-year-old woman. I had noticed for almost a year now that I had shortness of breath. I thought it was because I had gained some
What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living With PH: A Guide to Intimacy” in response to a known need for information and helpful tips to cope with and overcome the effects of
Advocates across the U.S. are participating in free state advocacy events now through mid-March in collaboration with the National Organization for Rare Disorders (NORD) to celebrate Rare Disease Day Feb. 28. Rare Disease Day is celebrated each year on the last day of February, a month known for having a rare number of days.
“I want to take this opportunity to give hope to those people newly diagnosed.” “When I was first diagnosed and read about PH [pulmonary hypertension] online, I was very scared. My doctor sent me to Stanford where I was prescribed the treatment of sildenafil and simvastatin, and I've continued with that for
Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is increasing recognition of unique genotypic and phenotypic subsets of the disease. This necessitates individualized and precision approaches to treatments for children with PH that will
February is American Heart Month and the Pulmonary Hypertension Association (PHA) encourages members to join the awareness campaign of the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH) to encourage people across the U.S. to reduce their risk for heart disease. In economically developed countries, pulmonary hypertension (PH)
“I am not sure what to expect. Will these symptoms stop or am I going to have to live with them?” “I am a 78-year-old lady. I have been having symptoms of pulmonary hypertension (PH) for quite some time. I kept thinking that there was nothing wrong and I was imagining the
The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned pulmonary hypertension (PH) experts — includes an article by Brian Graham, M.D., Peter Fernandes, M. Pharm., and Sue Gu, M.D., that explores the barriers and solutions to
