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So far PHA Staff has created 351 blog entries.

Stay Up to Date on PHA 2020 Announcements

2019-10-03T17:21:45+00:00October 3rd, 2019|

Are you looking for more information about the Pulmonary Hypertension Association (PHA) 2020 International Pulmonary Hypertension (PH) Conference and Scientific Sessions? Sign up for updated notifications and information to help you prepare for next year’s event, June 12-14, in Anaheim, Calif. As always, PHA 2020 includes a PH Conference for the patient community and

Pulmonary Hypertension Association’s On the Road Education Forum Arrives in Kansas City on Oct. 12

2019-09-26T21:56:33+00:00September 26th, 2019|

Free event offers education about pulmonary hypertension from local medical experts and networking opportunities for those with PH and their caregivers. Silver Spring, Md. (Sept 26, 2019) – The PHA on the Road Education Forum brings local medical experts and members of the pulmonary hypertension (PH) community to the Sheraton Overland Park Hotel at

Health Care Professionals Share Why They Participate in and Lead PHA Support Groups

2019-09-27T19:37:43+00:00September 26th, 2019|

Many of the 350 volunteers leading the Pulmonary Hypertension Association’s (PHA’s) more than 200 support groups are patients and caregivers. But there is also another group of these leaders who by pulmonary hypertension (PH) in a different way: they diagnose and treat it. Sarah Miranda, M.S.N, R.N., pulmonary vascular coordinator, Korman Respiratory Institute-Thomas Jefferson

Volunteer Spotlight: PHA Support Group Leader Loves Making an Impact in the PH Community

2019-09-26T18:21:56+00:00September 26th, 2019|

Heather Arena, Pulmonary Hypertension Association (PHA) Support Group of Michiana leader in St. Joseph, Mich., shares her passion and joy for being a support group leader and how it helps her connect with the pulmonary hypertension (PH) community. “I wanted to become a support group leader when I became involved with our patients who

Oxygen Survey May Lead to Better Technology and Advocacy

2019-09-26T20:37:06+00:00September 26th, 2019|

A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins pulmonologists in 2018. They were inspired to take action. They learned from individual patients about the impact current portable oxygen equipment has on living a normal lifestyle

Pulmonary Hypertension Expert: PHA on the Road Fantastic Opportunity to Learn about PH

2019-09-26T17:32:49+00:00September 26th, 2019|

PHA on the Road features educational sessions given by local experts that help people live their best lives with pulmonary hypertension (PH). At this FREE event coming to Kansas City, Kan., on Oct.12, attendees can also connect directly with these experts and get their questions answered. One of the experts who will be part

Share Your Hope with PHA for Pulmonary Hypertension Awareness Month

2019-09-20T17:09:47+00:00September 19th, 2019|

November is Pulmonary Hypertension Awareness Month. During this month, the Pulmonary Hypertension Association (PHA) also gives special recognition to one form of pulmonary hypertension (PH) on Nov. 13, CTEPH Awareness Day. Raising awareness is one of the most important things the PH community can do to help improve outcomes for individuals with PH. Although

Volunteer Spotlight: PHA Support Group Leader Lynn Bastian Shares Her Journey with PH

2019-09-24T17:10:21+00:00September 19th, 2019|

Lynn Bastian serves as the leader of the  Chicago South Side Pulmonary Hypertension Association (PHA) Support Group. In this story, she describes her journey from a newly diagnosed individual with pulmonary hypertension (PH) to taking an active role in the PH community. “I was diagnosed with pulmonary arterial hypertension (PAH) in 2005. I didn’t

Open Enrollment: Navigating the Road to Health Insurance Coverage

2019-09-23T19:40:50+00:00September 19th, 2019|

Editor’s Note: We are rapidly approaching the period of open enrollment for Medicare, the Marketplace and Medicare Advantage. This article first appeared in Pathlight, the flagship magazine of the Pulmonary Hypertension Association (PHA), and offers an overview of what you need to know about Open Enrollment. Learn more about Pathlight and how to get