Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead and the chance to work with so many of our pulmonary hypertension (PH) community members and staff to realize the many goals we have set
One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have found those born prematurely are three to five times more likely to develop pulmonary hypertension (PH) as adolescents or young adults. Less is known, however,
“Thank God for the grants that help pay for specialized medication!” “I was undiagnosed for several months. I was getting shorter of breath every day. I was almost to the point of not being able to get a breath before I saw a cardiologist who put me right in the hospital and
by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related disabilities. They provide enhanced postural support, stability and comfort over standard infant or toddler strollers. In addition, these devices may offer enhanced versatility for a
The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or diseases known to be related to PH. The series includes PH&: Congenital heart disease Chronic obstructive pulmonary disease Chronic thromboembolic disease Hereditary hemorrhagic telangiectasia HIV
“The reason I am sharing this story is awareness. I want as many people I know to be aware of this diagnosis in honor of [my son] … in hopes that such a tragedy is decreased, and early detection and diagnosis is obtained so that treatment can begin early and hopefully a better outcome.”
The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent an advocacy opportunity since many of them are probably not familiar with PH. Compelling personal stories from constituents are all it takes to turn members
The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s pediatric community. The survey was conducted to learn more about the community’s challenges, needs and interests. PHA received responses from hundreds of health care providers,
The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary hypertension (PH), never misses his monthly caregiver support group. Since it meets by phone, it is easier for him to maintain the perfect attendance record
The Pulmonary Hypertension Association (PHA) recently published three new courses on PHA Online University, a program of PHA’s multi-sponsored Medical Education Fund and the go-to web platform for health care professionals to acquire relevant and reliable information about pulmonary hypertension (PH). The courses are part of the “Pulmonary Hypertension: The Basics” curriculum series to educate
