Nicole Creech, support group leader of the Pulmonary Hypertension Association (PHA) Lexington, Ky., support group, recently hosted a meeting on cardiopulmonary rehabilitation featuring speaker Katelyn King, MSEP, pulmonary rehabilitation coordinator at the University of Kentucky/Gill Heart & Vascular Institute in Lexington. Katelyn brought with her special guest Carmine the Therapy Dog whose owner is
Dear PH Community, The past year has seen rapid expansion in the availability of generic therapy options for individuals with pulmonary arterial hypertension (PAH.) Four branded PAH therapies now have generic versions available on the market. Generic versions of a fifth, bosentan (Tracleer®), were approved by the Food and Drug Administration in April but
Last August, I made my first congressional visits. I was so nervous that I would forget what I wanted to say but once I started talking that changed. I was able to tell my story and talk about how important it is for PH patients to get proper care … The more of a
The Pulmonary Hypertension Association (PHA) has created three new Facebook groups to provide support for the pulmonary hypertension (PH) community! PHA’s Facebook groups provide members with a supportive space to share stories, updates, goals, worries and hopes, and ask questions and affirm others on their PH journeys. Members can share this information with others
Pulmonary Hypertension Association (PHA) members enjoy a host of benefits including discounted registration for the PH Professional Network (PHPN) Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension” Sept. 5-7, in Washington, D.C. Here’s a savings example: allied health professionals who become a PHPN member or renew their membership before
Throughout the month of May, the Pulmonary Hypertension Association (PHA) joined PH organizations around the world to celebrate World PH Day. During the month, the official website for the recognition day (WorldPHDay.org) received over 2.4K visitors. Pages on the website were viewed nearly 5,000 times with 85.4% of the traffic being new visitors. Social
The Pulmonary Hypertension Association (PHA) is excited to announce dates and cities for two PHA on the Road: PH Patients and Families Education Forums in 2019. PHA on the Road, a program of the PHA Community PH Education Fund,* is a unique opportunity for individuals with pulmonary hypertension (PH) and their families to
“Initial Triple vs. Sequential Combination PAH Therapy” will be debated at the PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension,” in Washington, D.C., Sept. 5-7. Ioana R. Preston, M.D., will be pitted against Jeffrey S. (Jeff) Sager, M.D., MSCE, on the second day of the Symposium, Sept. 6,
Caregivers who help individuals with rare diseases are often unpaid family members who rarely get a day off. In recognition of the significant time, attention, patience and dedication that caring for a loved one with a rare disease demands, the National Organization for Rare Disorders (NORD) recently launched the Rare Caregiver Respite Program. Designed
Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the American Thoracic Society (ATS) International Conference this week in Dallas. Michael Gray, vice president of quality care and research, shared research findings of current trends among physicians
