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So far PHA Staff has created 187 blog entries.

CEO Update: Year of Hope Begins With New and Continuing Programs

2019-01-24T22:05:39+00:00 January 24th, 2019|

Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead and the chance to work with so many of our pulmonary hypertension (PH) community members and staff to realize the many goals we have set

Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely

2019-01-24T22:05:08+00:00 January 24th, 2019|

One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have found those born prematurely are three to five times more likely to develop pulmonary hypertension (PH) as adolescents or young adults. Less is known, however,

Professionals Give Insights on Adaptive Strollers and Push Chairs for Children with PH

2019-01-24T22:03:40+00:00 January 24th, 2019|

by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related disabilities. They provide enhanced postural support, stability and comfort over standard infant or toddler strollers. In addition, these devices may offer enhanced versatility for a

PHA Releases Updated Associated Condition Brochures

2019-01-24T22:04:34+00:00 January 24th, 2019|

The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or diseases known to be related to PH. The series includes PH&: Congenital heart disease Chronic obstructive pulmonary disease Chronic thromboembolic disease Hereditary hemorrhagic telangiectasia HIV

Share Your Story to Build New PH Champions in Congress

2019-01-17T21:59:53+00:00 January 17th, 2019|

The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent an advocacy opportunity since many of them are probably not familiar with PH. Compelling personal stories from constituents are all it takes to turn members

PHA’s Newest Publication Connects Pediatric Patients and Families to Vital Resources

2019-01-17T21:59:07+00:00 January 17th, 2019|

The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s pediatric community. The survey was conducted to learn more about the community’s challenges, needs and interests. PHA received responses from hundreds of health care providers,

PHA’s Telephone Support Groups: Support Is Just a Call Away

2019-01-10T22:28:43+00:00 January 10th, 2019|

The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary hypertension (PH), never misses his monthly caregiver support group. Since it meets by phone, it is easier for him to maintain the perfect attendance record

PHA Publishes New Online CME Courses for Health Care Professionals

2019-01-10T22:43:53+00:00 January 10th, 2019|

The Pulmonary Hypertension Association (PHA) recently published three new courses on PHA Online University, a program of PHA’s multi-sponsored Medical Education Fund and the go-to web platform for health care professionals to acquire relevant and reliable information about pulmonary hypertension (PH). The courses are part of the “Pulmonary Hypertension: The Basics” curriculum series to educate