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Bring Awareness Home

Use the Pulmonary Hypertension Association’s PH Awareness Month wallpaper for your desktop computer to remind you to visit the Discover PH calendar each day in November. Check back later this week for phone and tablet versions. Our interactive calendar reveals a new fact, resource or activity daily about pulmonary hypertension to raise awareness. Bookmark this page and download the wallpaper. Then visit our toolkit to change your Facebook, Instagram, LinkedIn or Twitter cover photo or profile picture for November. computer wallpaper

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Raise Awareness at Your Virtual Meetings

Raise awareness of pulmonary hypertension when you talk to family, friends and colleagues on Zoom or Skype. With virtual meetings for everything from work to book club and happy hours, a PH Awareness Month background photo is a great opportunity to share information about PH to a larger community. Start the conversation with your choice of backgrounds.

Download our PH Awareness Month Zoom or Skype background image for your next meeting or virtual social gathering. (Remember if you mirror your screen the image will look backwards to you but normal to everyone else.) Also, visit our downloadable toolkit to add a PH Awareness Month footer to your email signature.

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Vote and Stay Safe

I votedHappy Election Day 2020! Stay safe: wear your mask, maintain social distance and wash your hands frequently if you are voting in person.

After you vote, share this social media graphic and learn how you can share your story with Congress to make a difference for all those with pulmonary hypertension on our Day of Action on Tuesday, Nov. 10. Make your voice heard.

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Take Awareness With You

Our PH Awareness Month wallpaper for your phone or tablet will remind you to visit PHAssociation.org every day in November. Our interactive calendar reveals a new daily fact, resource or activity about pulmonary hypertension that you can use to raise awareness.Download our PH Awareness Month wallpaper for your phone or tablet. Then visit our downloadable toolkit and share the fliers we’ve prepared for PH Awareness Month. phone wallpaper 1

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A Pulmonary Embolism May Lead to CTEPH

cteph day
Up to 5% of pulmonary embolism patients may develop chronic thromboembolic pulmonary hypertension (CTEPH). Learn more about the warning signs of CTEPH at and join us on CTEPH Awareness Day on Nov. 11 for a live Facebook Live Q&A:

Use this graphic to raise awareness about the risk of CTEPH. Did you know that treatments are available that can help many CTEPH patients? Watch this CTEPH video on PHA Classroom to learn more about possible treatments.

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Learn the Connection Between Scleroderma and PH

scleroderma graphicConnective tissue diseases such as lupus or scleroderma increase the risk for pulmonary hypertension. Find out more about connective tissue diseases and PH in a Facebook Live event with Kristin Highland, M.D., at 2:30 p.m. EST.

Use this graphic to raise awareness about the risk for PH from a connective tissue disease like scleroderma. and join us today for a Facebook Live event on Facebook or the PHA website.

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Show Your PH Colors

coloring book graphicDownload our coloring pages and let your creativity shine. Make it a family or school activity. Display your finished product on your window, your refrigerator and share on online anytime during November, using the hashtags #ShowYourPHColors and #PHAwarenessMonth.

Did you know that PHA has resources for the entire family, including tips for parents, school age children, teens and caregivers? Visit the Families pages to learn more

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Wearing a Mask Over a Cannula

Did you know most pulmonary hypertension patients can safely wear a mask over their cannulas to protect yourself from the coronavirus? Watch this video to see how “Zebra Lady” Barbara Thompson does it. Barbara also encourages everyone to take part in sharing your PH story with Congress on Nov. 10.

Here are more tips for making and wearing a mask if you wear a cannula:

  • Try a roomier pleated facemask pattern and use two or three layers of a breathable fabric such as cotton.
  • Make sure the mask covers your nose, mouth and chin.
  • Use a mask with a bendable wire or pipe cleaner at the top to ensure a close fit around your nose.
  • Pull off your mask carefully without touching the front and wash your hands afterwards.
  • If you have trouble breathing with a mask, call your health care provider for advice.
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PHA Pocket Card

wallet cardsWe’ve gone digital with one of our most popular PH Awareness Month products. Download a PHA pocket card with facts about pulmonary hypertension and the Pulmonary Hypertension Association to print at home. Print additional cards for family and friends to raise awareness. These cards can help introduce PH to others who have never heard of the disease and don’t “see” a disability. For best results, use card stock when printing.

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Keep PH in the Conversation

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Share your story with Congress on this Pulmonary Hypertension Association Day of Action by visiting our Advocacy Action Center. With just a few clicks, you can educate your representatives in Congress about the health and lifestyle impacts of pulmonary hypertension and how the laws elected officials pass can improve quality of life for the entire PH community.

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Today is CTEPH Awareness Day!

CTEPH Day graphicBreathlessness and fatigue are common symptoms of chronic thromboembolic pulmonary hypertension (CTEPH), a condition in which old blood clots in the lungs make it hard to breathe. Learn more about the warning signs and treatments for CTEPH and use our downloadable toolkit to raise awareness.

Use this graphic to share awareness of CTEPH and join us today for a Facebook Live “Ask the Expert” Q&A:

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Spread Awareness, Not Germs!

tie dye maskMasks are a wardrobe staple for now, so make yours special. Use these instructions to make your groovy tie-dyed mask to stay safe and raise awareness of pulmonary hypertension with a colorful statement.

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Stimulant Use May Lead to PH

dsfStimulants such as certain diet pills and methamphetamine have been linked to an increased risk of pulmonary arterial hypertension. Use this graphic to share awareness of the link between PH and meth use and learn more about the risk from methamphetamine use in one of two Facebook Live “Ask the Expert” Q&As:

You can also watch the events here on the PHA Awareness Month website if you don’t have a Facebook account.

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What Causes PH?

left heartThere are five different groups of pulmonary hypertension based on different causes. Many underlying diseases and conditions can cause PH. It also occurs without any known reason or may be inherited through genes from family members. The most common cause of PH in the U.S. is congestive heart failure, or Group 2 PH. To learn more, watch our new video on Group 2 PH in PHA Classroom and share this graphic on social media to raise awareness. Mark your calendars for a Facebook Live “Ask the Expert” Q&A to learn more about PH:

You can also watch the events on the PHA website if you don’t have a Facebook account.

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What Symptom Is Reported by 86% of PH Patients?

syptoms graphicBreathlessness is the most common symptom reported by individuals with pulmonary hypertension. Individuals become short of breath because high blood pressure in the lungs interferes with the blood pumped from the right side of the heart, which pushes blood to the lungs to gather oxygen. Often brief physical activity or climbing stairs will cause extreme shortness of breath, a symptom that is sometimes confused with being out of shape or asthma. If left untreated, the extra burden on the right heart can weaken the heart, leading to a worse prognosis. Share this graphic to raise awareness of this common and serious symptom.

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Be Part of PHA’s Mission

ticket boothWhen you join the Pulmonary Hypertension Association, you join a vibrant community that supports pulmonary hypertension patients, their families, caregivers, physicians and researchers. We empower patients to live their best life with PH and we work with leading scientists to bring us closer to a cure. Patients and caregivers can join PHA for only $15 (which includes a subscription to our quarterly print magazine, Pathlight) and be part of our work to change the future of PH.
Already a member? Find out how to get involved in PHA.

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What Are the Symptoms of PH?

fatigue graphicFatigue is one symptom of pulmonary hypertension (PH). Prior to diagnosis, 27% of PH patients reported fatigue. No matter what the cause of PH, high blood pressure in the lungs leads to similar symptoms, including fatigue and breathlessness. Learn more about the symptoms of PH and share this graphic to raise awareness of symptoms, which are often misdiagnosed as asthma or being out of shape.

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Newly Diagnosed? Get Your Questions Answered

roadmap to hope bookIf you or someone you love has been recently diagnosed with pulmonary hypertension (PH), PHA has free digital resources that can help. Download a free copy of Roadmap to Hope: A guide for people who are newly diagnosed with pulmonary hypertension (PH).

Whether you’re new to PH or you’re a long-term survivor, get your PH questions answered at our “Ask the Expert” Facebook Live Q&A:

You can also watch the events on the PHA website if you don’t have a Facebook account.

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Depression Common Among PH Patients

holiday headspaceDepression is estimated to affect 5 to 6 percent of the general population but may be as high as 26 percent among individuals with pulmonary hypertension (PH). The holiday season often exacerbates feelings of loneliness. With the COVID-19 pandemic restricting travel and family gatherings, the 2020 holiday season creates even greater challenges. The Pulmonary Hypertension Association offers resources for those who are experiencing stress, anxiety and depression. Learn more about PH, depression and mental health screening  and watch our Holiday Headspace video for advice from a clinical psychologist and a PH patient on navigating this time of year.

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Excessive Nosebleeds May Indicate PH Risk

PH Risk graphicHHT, a genetic disorder that can result in excessive bleeding, can lead to elevated pulmonary artery pressure and, ultimately, PH. Frequent nosebleeds are one sign of HHT. Not everyone with PH may realize they have HHT, and those with HHT may not know the risks of developing PH. Share this graphic about HHT and PH and learn more about the connection between HHT and PH.

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Get Support Online Through PHA Support Groups

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More than 200 Pulmonary Hypertension Association support groups within the 50 states and Puerto Rico provide knowledge, support and empowerment to pulmonary hypertension patients and their families and caregivers. All support groups are now virtual, so individuals can join groups located anywhere. There are also opportunities to receive support by email or phone. Download our brochure to learn more about virtual support and subscribe to PHA News to get a weekly listing of upcoming meetings you can join.

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Home Is Where the (Healthy) Heart Is

PHun at homeThe safest place during the pandemic may be home, but it can also feel isolating and alone. How are you managing your time at home? Have you started a project, created a new tradition with your family or worked on a new goal? How are you planning to celebrate the holidays? Share your tips on social media with the hashtags #PHunatHome and #PHAwarenessMonth so your fellow PHers can see the activities that have helped you get through this time. If you have a bigger story to tell, participate in PHA’s Right Heart Blog. Inspire others by sharing your journey of diagnosis, treatment and managing the challenges of life with PH. 

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Meth Use, HIV and Liver Disease Raise Risk for PAH

PHA Risks graphicDid you know that individuals with idiopathic (no known cause) pulmonary hypertension (PH) are 7 times more likely to report stimulant use than those with PH associated with other conditions? Those who are infected with HIV have roughly six to 12 times the occurrence of PAH than the general population. Those with advanced liver disease can suffer from portal hypertension, which can cause blood to bypass the liver and bring toxins to the lungs. PHA’s series of free materials explains risks from associated conditions and diseases. Download your free copies in the PHA store. 
Learn more about the connection between methamphetamine use and PH in a Facebook Live Q&A:

If you can’t make the live event, you can watch it later on the PHA website or on Facebook

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Eat Healthy During the Holidays

holiday recipesMaintaining a low-sodium diet is important for PH patients. Consuming large amounts of sodium can cause fluid retention and edema. Follow these tips on sodium, diet and nutrition , and try these low-sodium recipes for your holiday meal, and watch the accompanying PHA Classroom video

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PH Affects People of All Ages

chd patientsIndividuals born with congenital heart disease such as ventricular or atrial septal defects may develop pulmonary hypertension. Up to 10% of congenital heart disease patients may develop PH. These patients may be infants, children or adults. Sometimes heart problems go undiagnosed and an adult is diagnosed with CHD and PH at the same time. Early diagnosis can lead to better outcomes. Share this graphic to raise awareness of congenital heart disease and PH.

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Giving Thanks

We are thankful for all of the health care providers who care for us every day with selfless dedication and compassion. Download our special “Thank you” coloring page and use the hashtags #ShareYourPHColors and #PHoreverThankful to thank your care team.

Happy Thanksgiving!

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Look for Signs of PH With Sleep Apnea

sleep apeneaPH is a common complication of sleep apnea. Sleep apnea-associated pulmonary hypertension is usually mild to moderate. Often, effective treatment of sleep apnea with continuous positive airway pressure (CPAP) can help improve your PH. Talk to your doctor if you have sleep apnea and are experiencing PH symptoms (breathlessness, fatigue, light headedness, swelling in the ankles, legs, abdomen or arms, and chest pain). Share our social media graphic to raise awareness of this common condition and the risk for PH and download our free brochure to learn more. . Watch our new PHA Classroom video that explains Group 3 PH caused by chronic lung disease and hypoxia (low oxygen levels) including sleep apnea.

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Discover How to Be Involved in Research

clinical trialPH patients can participate in clinical trials that investigate potential new therapies. Visit our Clinical Trial Finder to learn out about ongoing PH research and discuss your options with your care team. Learn about the full lifecycle of drug development, from inception in the laboratory through clinical trials to FDA approval: watch the PHA webinar, “Drug Discovery From Lab to Consumer.”

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Help PHA Make a Difference

giving Tuesday
Make a different in the lives of pulmonary hypertension patients by supporting the Pulmonary Hypertension Association’s work on Giving Tuesday. Your donation Dec. 1 helps PHA raise awareness, provide support to patients, families and caregivers, and fund research that moves us closer to a cure. Donate to provide hope to those with pulmonary hypertension.

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30th Anniversary

It’s been nearly 30 years since Pat Paton and her husband Jerry joined with her sister Judy Simpson, Teresa Knazik and Dorothy Olson at their kitchen table to lay the groundwork for the Pulmonary Hypertension Association. Since then, PHA has brought together thousands of pulmonary hypertension (PH) patients, caregivers and health care professionals to build a community of support. We’ve come a long way in the past 30 years, and we look forward to future advances and continuing to grow and strengthen our community. What do you envision for the future? Share your vision and hopes for the years ahead with us. We’ll share your thoughts with the community as we celebrate our 30th anniversary in 2021. 30th anniversary