If someone you care about has been diagnosed with pulmonary hypertension, you may find yourself taking on unfamiliar responsibilities. Whether you’re a close family member or a friend, neighbor or teacher, you have the opportunity to provide much needed friendship and support. Chances are you have questions about PH and what you can do to help your loved one live a happy and full life.
Here you’ll find information and resources to help you care for your loved one without neglecting your own needs.
- Roadmap to Hope
Order this free information packet to learn about services to help you plan your next steps and to find important resources for yourself and your loved one.
- FAQs for Family and Friends
What you need to know if your loved one’s been diagnosed with PH.
- Caring for Your Loved One
Get practical advice about providing medical and emotional support to a PH patient.
- Coping as a Caregiver
The most effective and supportive caregivers are those who pay attention to their own needs to prevent caregiver burnout. Find ways to tend to your emotional health and family relationships.
- Caregiver Videos and Webinars Visit PHA Classroom to watch videos about PH, treatments and coping as a caregiver.
- Respite – Caregivers need – and deserve – breaks from providing care from time to time. That is what respite means. Find out more about respite services in your area at the ARCH National Respite Network.
Looking for someone to talk to?
Know that for every PH patient, there’s a PH caregiver who understands what you’re going through. PHA hosts virtual and local support groups where family and friends of PH patients share stories, advice and hope. Find support
Are you the parent of a child with PH?
Learn more about pediatric PH, connect with other families and become an informed advocate for your child. Visit PH Parents