Caregivers

Family

Joe Haan, Outstanding Caregiver 2008, with his loving family

If someone you care about has been diagnosed with pulmonary hypertension, you may find yourself taking on unfamiliar responsibilities. Whether you’re a close family member or a friend, neighbor or teacher, you have the opportunity to provide much needed friendship and support. Chances are you have questions about PH and what you can do to help your loved one live a happy and full life.

Here you’ll find information and resources to help you care for your loved one without neglecting your own needs.

  • Envelope of Hope
    Order this free information packet to learn about services to help you plan your next steps and to find important resources for yourself and your loved one.
  • FAQs for Family and Friends
    What you need to know if your loved one’s been diagnosed with PH.
  • Coping as a Caregiver
    The most effective and supportive caregivers are those who pay attention to their own needs to prevent caregiver burnout. Find ways to tend to your emotional health and family relationships.

Looking for someone to talk to?

Know that for every PH patient, there’s a PH caregiver who understands what you’re going through. PHA hosts virtual and local support groups where family and friends of PH patients share stories, advice and hope. Find support

Are you the parent of a child with PH?

Learn more about pediatric PH, connect with other families and become an informed advocate for your child. Visit PH Parents