Two caregivers meet at a PHA event

PHA Caregiver Telephone Support Group

What to expect from a PHA telephone support group

  • A positive place to connect, find support and ask questions.
  • A PHA volunteer will read a confidentiality statement and facilitate introductions and open discussion.
  • We share the space so everyone has a chance to speak, though you may also just listen.
  • Avoid discussing controversial topics, such as politics and religion.

How to participate

  • Register for a meeting.
  • Receive an email with the meeting phone number and a computer link. PHA uses RingCentral software to conduct the calls.
  • Join the meeting by dialing the phone number or clicking the link to join the video chat.
  • Mute yourself when you’re not speaking.

Upcoming Schedule:

Click on an event and register

Caregiver Telephone Support Group
Wednesday, October 20, 8:00 PM - 9:00 PM EDT
Caregiver Telephone Support Group
Wednesday, November 17, 8:00 PM - 9:00 PM EST
Caregiver Telephone Support Group
Wednesday, December 15, 8:00 PM - 9:00 PM EST
Caregiver Telephone Support Group
Wednesday, January 19, 8:00 PM - 9:00 PM EST
Caregiver Telephone Support Group
Wednesday, February 16, 8:00 PM - 9:00 PM EST
Caregiver Telephone Support Group
Wednesday, March 16, 8:00 PM - 9:00 PM EDT

Open the full calendar

PHA Email PHriends

PHA’s Email PHriends are volunteers who are available to answer your questions by email. They can’t provide medical advice, but they can share their experiences caring for loved ones with PH and help you find resources to ensure your loved one receives the best care possible. Request an Email PHriend.

In-Person Support Groups

PHA Support Groups offer education, support, hope and empowerment. There are more than 200 in-person PHA support groups. You are not alone and there’s a good chance there’s a group meeting near you. Find a local support group.

Looking for other parents of children who have PH? Find more resources for support here.

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