30th Anniversary

2021-10-28T10:08:26-04:00March 30th, 2021|

30 Years of PHA: Hope, Visions and Stories From simple beginnings – four women who met around a kitchen table in Florida in 1991 – the Pulmonary Hypertension Association (PHA) has evolved into an international community of more than 16,000 pulmonary hypertension (PH) patients, caregivers, family members and healthcare professionals. To commemorate our

Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant

2021-03-31T11:39:55-04:00July 2nd, 2020|

I was told I would never see my childhood years, but I defeated that. Over time, I developed the nickname “Bones.” When my weight hit 100 pounds, my family celebrated. I was told that I would never see my teenage years, but I defeated that, too. I was told I would never get to see my adulthood. I’m now 36.

Sydni Burgess (caregiver)

2021-12-14T12:28:24-05:00November 26th, 2019|

My mother fought PH for six years, and it wasn't until I got older that I realized what PH patients truly go through and how much I admire the strength they show every day. My mom is the strongest woman I know. She didn’t look at PH as a downfall, and she never talked negative about what was happening to her body. She faced it head on with a smile on her face, and she knew that she had a family to fight for.