PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00 May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and

PH Support Group Raises Awareness for PH at Teaching Hospital Staff Safety and Quality Event

2018-05-03T17:47:29+00:00 May 3rd, 2018|

March 13th may have brought a nor’easter to New Hampshire, but that didn’t stop Jane Armstrong and Deb Cantlin RN, MS from promoting awareness of pulmonary hypertension at a Staff Safety and Quality event held at a large teaching hospital.  The Dartmouth-Hitchcock (NH) PH Support Group created a large and very detailed poster which

PHA Joins Hearts with Global Community in May to Raise Awareness of Pulmonary Hypertension

2018-04-27T18:19:20+00:00 April 27th, 2018|

Dear PHA Community, May 5 is World PH Day, when organizations and individuals around the globe join hearts to raise awareness of pulmonary hypertension (PH), a complex, life-threatening, progressive illness that affects adults and children of all ages and nationalities worldwide. Throughout May, beginning on World PH Day, the Pulmonary Hypertension Association (PHA) and our

World PH Day Toolkit with Resources, Templates and Memes

2018-04-27T15:46:42+00:00 April 27th, 2018|

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will share photos, stories and social media messages linked by an image of two linked hearts, the 2018 World PH Day

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

2018-04-20T16:08:20+00:00 April 20th, 2018|

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects 25 million adults and children worldwide. On World PH Day, dozens of sister organizations will raise awareness for the need

PHA Wants to Hear from Kids with PH, Parents and Providers

2018-04-06T13:30:44+00:00 April 6th, 2018|

The Pulmonary Hypertension Association (PHA) launched a survey of the pediatric PH community today to learn more about the needs of children with PH, their parents and providers. This brief survey closes on Friday, April 20, and should be taken by any member of the pediatric PH community. In 2016, PHA conducted a community-wide survey

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

2018-03-13T16:55:07+00:00 March 9th, 2018|

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

2018-03-07T20:01:18+00:00 March 7th, 2018|

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

2018-03-01T16:25:51+00:00 March 1st, 2018|

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level is $9,000 per year. Patient must be insured by Medicare, Medicaid, or Military Benefits and insurance must cover the medication for which patient seeks assistance. Learn