Nearly 50 health care providers made virtual visits to their members of Congress today as part of PH Professional Network Advocacy Day. They shared their patients’ pulmonary hypertension (PH)-related challenges and asked Congress to help improve life for people with PH. It’s not too late to share your story and amplify their message.
Allied health professionals, nurses, physicians and researchers: Join us Sept. 30 to advocate on behalf of the pulmonary hypertension (PH) community. Make virtual visits with congressional offices on Advocacy Day, which starts the Pulmonary Hypertension Association PH Professional Network Symposium.
State-regulated health insurance plans in Connecticut must count copay cards and other financial assistance toward deductibles and out-of-pocket maximums, thanks to the pulmonary hypertension (PH) community. The state law, enacted in June, is a major achievement for Connecticut residents with PH and other complex, costly health conditions.
During the COVID-19 pandemic, Medicare coverage of telehealth services increased. For the first time, people insured by Medicare became eligible for telehealth coverage no matter where they lived. The pandemic changes allowed telehealth visits from beneficiaries’ homes instead of approved telehealth locations.
As Congress develops the FY 2022 federal budget, ask your members of Congress to increase funding for the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention. Pulmonary hypertension researchers depend on NIH grants to support their work.
More health insurance plans are forcing people with pulmonary hypertension (PH) to pay twice for their medication. The plans require them to pay their full deductibles out of pocket while also using copay assistance. Some plans refuse to accept non-profit assistance grants to force people with expensive medications off the plan. In the next
Pulmonary hypertension (PH) community members sent more than 500 messages to Congress during the Pulmonary Hypertension Association (PHA)’s "Together Through Advocacy" campaign. They asked lawmakers to protect people with PH during COVID-19 and beyond. But the need to share your PH story with Congress doesn’t stop there. Advocacy August is just around the corner. Members
“Before the ACA, I watched the lifetime coverage cap very closely. My daughter with pulmonary hypertension (PH) and heart disease had used almost half her cap before the passage of the ACA, and she was a toddler. I didn't know what we'd do if she hit the cap, which she would have done in
Last August, I made my first congressional visits. I was so nervous that I would forget what I wanted to say but once I started talking that changed. I was able to tell my story and talk about how important it is for PH patients to get proper care … The more of a
Tracy Espinosa of Stockton, Calif., knows first-hand the need for better diagnosis and treatment of pulmonary hypertension (PH), especially when it comes to pediatric PH. Tracy lost her husband to PH and her two daughters, Lauren and TJ, now live with the disease. In late 2018, after the devastating loss of a friend’s young
