CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

2018-03-13T16:55:07+00:00 March 9th, 2018|

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

2018-03-07T20:01:18+00:00 March 7th, 2018|

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level is $9,000 per year. Patient must be insured by Medicare, Medicaid, or Military Benefits and insurance must cover the medication for which patient seeks assistance. Learn

2018-03-01T16:25:51+00:00 March 1st, 2018|

PHA Supports Rare Disease Day with Social Media Awareness Push

Silver Spring, Md. (February 22, 2018) -- The Pulmonary Hypertension Association (PHA) joins global partners, Feb. 28, Rare Disease Day®, to bring attention to the hopes and needs of people living with conditions like pulmonary hypertension (PH), an often misunderstood and misdiagnosed deadly disease. PHA will use social media to also highlight data indicating

2018-02-26T15:39:19+00:00 February 23rd, 2018|

Seeking Financial Assistance Because of Caring Voice Developments? Previous CVC Clients Should Make That Clear When Contacting Manufacturers.

In January, the Department of Health and Humans Services informed companies that manufacture PH medications that they would be permitted to provide one year of free medication to some individuals who received assistance from the Caring Voice Coalition as of Nov. 28, 2017. To be eligible, a PH patient must have health insurance through a

2018-02-16T16:16:51+00:00 February 16th, 2018|

Legislation Passed to “Recognize, Assist, Include, Support and Engage” Family Caregivers

On Monday, January 15, 2018, President Trump signed into law the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act calling for a national strategy to address the needs of family caregivers. This bipartisan legislation directs the Department of Health and Human Services (HHS) to develop and make publicly available a National Family Caregiving Strategy that identifies recommended actions

2018-01-31T20:11:57+00:00 January 31st, 2018|

What to Expect from the Federal Government Shutdown

The federal government shutdown disrupts business as usual for Congress and many federal agencies. Fortunately, however, there are some critical government activities that are able to continue. During a shutdown: Medicare recipients may continue to see their healthcare providers and have their claims submitted Social security benefit checks will still be mailed, though there may

2018-01-22T17:45:17+00:00 January 22nd, 2018|

PHA Learns That PH Financial Assistance Fund Is Now Closed

PHA has learned that the Patient Advocate Foundation (PAF) PH fund has closed. The fund opened on the heels of the community learning that Caring Voice Coalition is no longer providing patient assistance funding for PH patients. PHA is providing continued updates on our patient assistance page as we learn of new funding sources. If you

2018-01-16T16:14:09+00:00 January 16th, 2018|

UPDATE PH Financial Assistance: The Patient Advocate Foundation

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with medicare, medicaid or military benefits is now open. More information at The Pulmonary Hypertension Association (PHA) will continue to post financial assistance resources on our website as we learn of them:

2018-01-12T17:56:39+00:00 January 12th, 2018|

UPDATE: Drug Companies May Assist Former CVC Clients

On January 4, 2018 the Department of Health and Human Services (HHS) issued a letter telling drug companies that they are permitted to provide free medication in 2018 to “federal healthcare program beneficiaries who were receiving cost sharing support for those drugs from CVC as of November 28, 2017.” For regulatory reasons drug companies typically

2018-01-10T20:40:57+00:00 January 10th, 2018|