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Advocacy Day: Clinicians Share Patient Stories with Congress

2021-09-30T11:14:31-04:00September 30th, 2021|

Nearly 50 health care providers made virtual visits to their members of Congress today as part of PH Professional Network Advocacy Day. They shared their patients’ pulmonary hypertension (PH)-related challenges and asked Congress to help improve life for people with PH. It’s not too late to share your story and amplify their message.

PH Community Helps Win Connecticut Copay Accumulator Ban

2021-07-08T13:52:47-04:00July 8th, 2021|

State-regulated health insurance plans in Connecticut must count copay cards and other financial assistance toward deductibles and out-of-pocket maximums, thanks to the pulmonary hypertension (PH) community. The state law, enacted in June, is a major achievement for Connecticut residents with PH and other complex, costly health conditions.

Urgent: Ask Your Senators To Support Copay Assistance

2020-07-23T12:17:28-04:00July 23rd, 2020|

More health insurance plans are forcing people with pulmonary hypertension (PH) to pay twice for their medication. The plans require them to pay their full deductibles out of pocket while also using copay assistance. Some plans refuse to accept non-profit assistance grants to force people with expensive medications off the plan. In the next

How Does PH Affect Your Life? Tell Congress the Real Story

2020-07-16T13:05:16-04:00July 16th, 2020|

Pulmonary hypertension (PH) community members sent more than 500 messages to Congress during the Pulmonary Hypertension Association (PHA)’s "Together Through Advocacy" campaign. They asked lawmakers to protect people with PH during COVID-19 and beyond. But the need to share your PH story with Congress doesn’t stop there. Advocacy August is just around the corner. Members

California Family Fights for Improved Diagnosis and Treatment Through PH Bill

2020-12-21T14:32:06-05:00May 23rd, 2019|

Tracy Espinosa of Stockton, Calif., knows first-hand the need for better diagnosis and treatment of pulmonary hypertension (PH), especially when it comes to pediatric PH. Tracy lost her husband to PH and her two daughters, Lauren and TJ, now live with the disease. In late 2018, after the devastating loss of a friend’s young

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