Georgia Fun Walk Celebrates 15th Year on October 13

2018-09-14T21:38:38+00:00 September 14th, 2018|

The Georgia Fun Walk, launched by Sally Maddox, Ed.D., Pulmonary Hypertension Association (PHA) Board of Trustees secretary, celebrates its 15th walk October 13. This year’s milestone walk promises to be a special day for people living with pulmonary hypertension (PH), their families, caregivers, sponsors and health care providers in the greater Atlanta area. The

Sickle Cell Disease and PH are No Match for Kentucky Volunteer Nicole Creech

2018-09-14T20:42:15+00:00 September 14th, 2018|

September is Sickle Cell Disease Awareness Month. Sickle cell disease (SCD) is a blood disorder that affects approximately 100,000 Americans, of whom 6-11 percent may develop pulmonary hypertension (PH). The Pulmonary Hypertension Association (PHA) is recognizing SCD Awareness Month by highlighting a prominent PHA volunteer living with SCD-associated PH. Imagine a six-month-old screaming in

Pulmonary Pints Celebrates 10 Years in Baltimore

2018-09-07T20:05:52+00:00 September 7th, 2018|

Pulmonary Pints, an annual fundraiser in Baltimore to raise money and increase awareness of pulmonary hypertension (PH), will celebrate its milestone 10th anniversary Saturday, October 6. Participants will enjoy live music, raffles, amazing food and drink specials. This year’s attendees hope to celebrate the event’s 10-year anniversary by achieving a $100,000 fundraising milestone! Pulmonary

Seven-Year Old Jackson Shares Story and Hosts Event to Help PH Patients

2018-09-07T20:08:53+00:00 September 7th, 2018|

Jackson Wall, a seven-year old living with PH, was very busy at the Pulmonary Hypertension Association (PHA) 2018 International PH Conference and Scientific Sessions in Orlando, Fla., this summer, as he had many scheduled activities and speaking engagements. He squeezed in time between the Conference kids’ field trip and the fashion show to be

sMiles for Katie Honors Memory of Katie McCarthy Through Awareness-Raising and Fundraising

2018-08-31T15:43:49+00:00 August 30th, 2018|

sMiles for Katie’s 3rd Annual Fundraiser Honoring Katie McCarthy is a fundraising event organized to bring awareness to pulmonary hypertension (PH) and raise money to support the Pulmonary Hypertension Association’s (PHA’s) mission. The day is filled with live music, a silent auction, 50/50 raffle, food and drinks, gift baskets and more. Many Middletown, N.J.

Friends and Funds for PH at the Heart of the Nashville PHun Walk

2018-08-24T16:22:48+00:00 August 24th, 2018|

“We want to help PHind a cure for PH!” says Evette Britton, Nashville-area support group leader and event organizer for the Nashville PHun Walk, which will take place September 29 at Pinkerton Park in Franklin, Tenn. Now in its third year, Evette’s focus is on creating a positive, energetic day so that everyone in

PHA Provides Tools to Help Parents and Children With PH Prepare for New School Year

2018-08-10T21:00:50+00:00 August 10th, 2018|

The Pulmonary Hypertension Association (PHA) offers comprehensive resources for parents of children living with pulmonary hypertension (PH) to prepare for back-to-school season. These tools provide help for parents of children with PH to educate school administrators, teachers and school nurses about their child’s physical limitations, as well as safety precautions for them to be safe

PHA Brings Your Voice to Capitol Hill: Treatment Access and Quality Care

2018-07-27T17:43:24+00:00 July 27th, 2018|

During the past month, the Pulmonary Hypertension Association (PHA) and members of the pulmonary hypertension (PH) community have communicated with Congress in unique ways. Hundreds of attendees at PHA’s 2018 International PH Conference and Scientific Sessions signed a petition asking Congress to fund a PH program at the Centers for Disease Control and Prevention

O2 breathe™ Events Raise Funds and Awareness Across the Country

2018-07-20T20:27:18+00:00 July 19th, 2018|

During 2018, the Pulmonary Hypertension Association (PHA) will host twenty O2 breathe™ (pronounced: oh-to-breathe) fundraising events nationally. PHA works closely with local volunteers, PHA Support Group Leaders, Pulmonary Hypertension Care Centers (PHCCs) and PH treatment centers to host these signature events which include walks, runs, a golf tournament and more! O2 breathe™ events provide the