Riders Rally in Memory of Jonah

2018-07-13T19:37:46+00:00 July 13th, 2018|

More than 500 people gathered June 23 in Murfreesboro, TN, to honor the memory of Jonah Guider at a fundraising event unlike any other Pulmonary Hypertension Association (PHA) event across the country. This year’s “RideJonahRide” event, one of 20 PHA O2Breathe (pronounced: oh-to-breathe) events that are supported by PHA’s national sponsors, Actelion Pharmaceuticals Ltd.,

Rare Disease Caregiving Report Paints a Portrait of PH Caregivers in the U.S.

2018-07-06T21:06:10+00:00 July 6th, 2018|

This article by Mike Knaapen, Director, Patient and Caregiver Programs and Lisa Weber, Vice President, Greenwald and Associates, first appeared in Issue 2 2018 of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. It is well known

PHA Educates Congress about PH During Capitol Hill Lunch

2018-06-08T21:12:43+00:00 June 8th, 2018|

The Pulmonary Hypertension Association (PHA) hosted a lunch briefing in Washington, DC, Wednesday, June 6, for members of Congress and their staff. Oksana A. Shlobin, MD, FCCP, a director of the Pulmonary Hypertension Program at Inova Fairfax Hospital, educated attendees about pulmonary hypertension (PH), what it is and how it is treated. PH community

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00 May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and

PH Support Group Raises Awareness for PH at Teaching Hospital Staff Safety and Quality Event

2018-05-03T17:47:29+00:00 May 3rd, 2018|

March 13th may have brought a nor’easter to New Hampshire, but that didn’t stop Jane Armstrong and Deb Cantlin RN, MS from promoting awareness of pulmonary hypertension at a Staff Safety and Quality event held at a large teaching hospital.  The Dartmouth-Hitchcock (NH) PH Support Group created a large and very detailed poster which

World PH Day, May 5, Reminds Us the PH Community is Global: Q&A With Dr. Jeffrey Sager

2018-05-09T20:24:38+00:00 May 3rd, 2018|

In honor of World PH Day, the  Pulmonary Hypertension celebrates the work of individuals and organizations that work globally to advance PH care, research and treatment access. As part of PHA’s new PHour Questions feature in its Pathlight membership quarterly magazine, the June issue will highlight Dr. Jeffrey Sager, director of the Pulmonary Hypertension

PHA Joins Hearts with Global Community in May to Raise Awareness of Pulmonary Hypertension

2018-04-27T18:19:20+00:00 April 27th, 2018|

Dear PHA Community, May 5 is World PH Day, when organizations and individuals around the globe join hearts to raise awareness of pulmonary hypertension (PH), a complex, life-threatening, progressive illness that affects adults and children of all ages and nationalities worldwide. Throughout May, beginning on World PH Day, the Pulmonary Hypertension Association (PHA) and our

World PH Day Toolkit with Resources, Templates and Memes

2018-04-27T15:46:42+00:00 April 27th, 2018|

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will share photos, stories and social media messages linked by an image of two linked hearts, the 2018 World PH Day

Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

2018-04-20T16:08:20+00:00 April 20th, 2018|

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects 25 million adults and children worldwide. On World PH Day, dozens of sister organizations will raise awareness for the need