Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known as high blood pressure of the lungs. To help

2018-03-13T19:40:26+00:00 March 13th, 2018|

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

2018-03-13T16:55:07+00:00 March 9th, 2018|

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

2018-03-07T20:01:18+00:00 March 7th, 2018|

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best life with PH. By Raele Robison I remember the way that the paper on the examination table kept making a

2018-03-01T18:02:07+00:00 March 1st, 2018|

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level is $9,000 per year. Patient must be insured by Medicare, Medicaid, or Military Benefits and insurance must cover the medication for which patient seeks assistance. Learn

2018-03-01T16:25:51+00:00 March 1st, 2018|

PHA Supports Rare Disease Day with Social Media Awareness Push

Silver Spring, Md. (February 22, 2018) -- The Pulmonary Hypertension Association (PHA) joins global partners, Feb. 28, Rare Disease Day®, to bring attention to the hopes and needs of people living with conditions like pulmonary hypertension (PH), an often misunderstood and misdiagnosed deadly disease. PHA will use social media to also highlight data indicating

2018-02-26T15:39:19+00:00 February 23rd, 2018|

The Barefoot Movement: PHighting for a Cure for Jackson

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for pulmonary hypertension (PH). It’s December. I’m writing from the “comfort”

2018-01-12T15:59:50+00:00 January 11th, 2018|

Financial Assistance Update and Action Opportunity

PHA and the pulmonary hypertension (PH) community recently learned that co-pay assistance previously offered by the Caring Voice Coalition (CVC) is now uncertain. In light of this development and the news that Good Days will offer limited co-pay assistance only to previous clients on Medicare, PHA has sought additional information to include in the PHA

2017-12-21T19:11:54+00:00 December 18th, 2017|

2018 Conference Theme Selected: PHA’s International PH Conference and Scientific Sessions Update

Congratulations to Nicole Phillips, the winner of PHA’s International PH Conference and Scientific Sessions Theme Contest. Her winning submission, PHinding Your Hope, was selected from more than 50 submissions. Nicole has been an active member in the PH community since her niece, Haylee, was diagnosed with a complete AV canal defect and pulmonary hypertension on

2017-12-15T20:04:11+00:00 December 15th, 2017|

Call for Abstracts for PHA’s 2018 Scientific Sessions Committee and CTEPH Grants Opportunity

Call for Abstracts Do you have an abstract from CHEST or ACC? The Pulmonary Hypertension Association’s 2018 Scientific Sessions Committee is accepting encore and new abstract and case study submissions for PHA’s 2018 International PH Conference and Scientific Sessions to be held June 29-July 1, 2018, in Orlando, Florida. Abstract submissions are invited in the areas of basic

2017-12-14T17:21:32+00:00 December 14th, 2017|