CEO Update: Year of Hope Begins With New and Continuing Programs

2019-01-24T22:05:39+00:00 January 24th, 2019|

Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead and the chance to work with so many of our pulmonary hypertension (PH) community members and staff to realize the many goals we have set

Share Your Story to Build New PH Champions in Congress

2019-01-17T21:59:53+00:00 January 17th, 2019|

The government shutdown does not stop pulmonary hypertension (PH) advocacy. In fact, the nearly 100 new senators and representatives sworn into office at the beginning of the month represent an advocacy opportunity since many of them are probably not familiar with PH. Compelling personal stories from constituents are all it takes to turn members

PHA’s Telephone Support Groups: Support Is Just a Call Away

2019-01-10T22:28:43+00:00 January 10th, 2019|

The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary hypertension (PH), never misses his monthly caregiver support group. Since it meets by phone, it is easier for him to maintain the perfect attendance record

Inside Pathlight, PHA’s Member Magazine

2019-01-10T22:40:24+00:00 January 10th, 2019|

Pathlight, the flagship magazine of the Pulmonary Hypertension Association, is published quarterly and sent to all members of PHA. Don’t miss the many interesting articles in the December 2018, Issue 4 magazine, including: “Living on Oxygen 24/7” Cover story: A progressive heart and lung disease and a PAH diagnosis isn’t stopping Alexis Trotter from

New Members Join 2018-20 Support Group Leader Advisory Board

2019-01-03T22:11:42+00:00 January 3rd, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines – new member Mike Robinson – new member Evette Britton Nicole Creech Chooda Khanal Pat Ofori Tina Stiyer Doug Taylor The board, made up of

Colleen Brunetti: Reflections on the Power of Telling Your Story

2018-11-29T21:50:21+00:00 November 29th, 2018|

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we stand on the shoulders of great leaders who have come

CTEPH Awareness Day Campaign Increases Overall PH Recognition

2018-11-16T23:14:53+00:00 November 16th, 2018|

The Pulmonary Hypertension Association (PHA) recognized Wednesday, Nov. 14, as CTEPH Awareness Day and responses show an eagerness to learn about chronic thromboembolic pulmonary hypertension (CTEPH). Social media graphics and messages were shared widely, creating an aura of enthusiasm around the day. PHA fed the excitement by providing a myriad of ways to engage and

Pulmonary Hypertension Community Raises Crucial Funds in 2018 to Support PHA’s Mission

2018-11-16T23:13:36+00:00 November 16th, 2018|

More than 12,500 volunteers throughout the country helped organize 49 events to raise funds that support the mission of the Pulmonary Hypertension Association (PHA). Nearly half of these events were part of PHA’s national O2 breatheTM program, our signature fundraising events. The O2 breatheTM program is supported through the generosity of our national sponsors:

Pulmonary Hypertension Awareness Month Outreach Makes a Big Impact

2018-11-09T22:51:13+00:00 November 9th, 2018|

Last week the Pulmonary Hypertension Association (PHA) launched its annual awareness campaign, Pulmonary Hypertension Awareness Month, to increase knowledge of pulmonary hypertension (PH) among the general public, people at risk for PH and those who unknowingly live with it, health care providers, the media and elected officials. PHA and its members and followers are