PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease

Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease are getting care from clinicians who specialize in their often-misdiagnosed condition. Pulmonary hypertension (PH), also known as high blood pressure of the lungs, affects adults

2018-02-16T16:07:20+00:00 February 16th, 2018|

Seeking Financial Assistance Because of Caring Voice Developments? Previous CVC Clients Should Make That Clear When Contacting Manufacturers.

In January, the Department of Health and Humans Services informed companies that manufacture PH medications that they would be permitted to provide one year of free medication to some individuals who received assistance from the Caring Voice Coalition as of Nov. 28, 2017. To be eligible, a PH patient must have health insurance through a

2018-02-16T16:16:51+00:00 February 16th, 2018|

Researchers: Collect Data at Unique Opportunity in PH Field

Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room helps researchers further their studies by providing the opportunity for collection of data, including phenotypic information and biological specimens, from the largest gathering of pulmonary hypertension patients in the world. Impact the field

2018-02-01T17:37:14+00:00 February 1st, 2018|

Legislation Passed to “Recognize, Assist, Include, Support and Engage” Family Caregivers

On Monday, January 15, 2018, President Trump signed into law the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act calling for a national strategy to address the needs of family caregivers. This bipartisan legislation directs the Department of Health and Human Services (HHS) to develop and make publicly available a National Family Caregiving Strategy that identifies recommended actions

2018-01-31T20:11:57+00:00 January 31st, 2018|

CEO Update: 2018 PHA International PH Conference and Scientific Sessions Registration and Scholarship Applications Are Open

Dear PHA Community, I’ll never forget my first experience with the PH Community and the Pulmonary Hypertension Association (PHA). It was day one of the 2016 PHA International PH Conference and Scientific Sessions. Today, after nearly two years of serving as your president and CEO, I’ve come to appreciate just how much our biennial

2018-02-02T14:17:23+00:00 January 25th, 2018|

PH FINANCIAL ASSISTANCE UPDATE: The Patient Advocate Foundation Assistance Fund Is Now Open

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with Medicare (including Medicare Advantage), Medicaid or military benefits is open as of Jan. 24, 2018. More information at https://www.copays.org/diseases/pulmonary-hypertension. Call 1-866-512-3861 or apply online at www.copays.org. The Pulmonary Hypertension Association (PHA) will continue to post financial assistance resources on our website as we learn of them: www.PHAssociation.org/Patients/Insurance/Financial-Assistance.

2018-01-24T17:39:02+00:00 January 24th, 2018|

PHA Learns That PH Financial Assistance Fund Is Now Closed

PHA has learned that the Patient Advocate Foundation (PAF) PH fund has closed. The fund opened on the heels of the community learning that Caring Voice Coalition is no longer providing patient assistance funding for PH patients. PHA is providing continued updates on our patient assistance page as we learn of new funding sources. If you

2018-01-16T16:14:09+00:00 January 16th, 2018|

UPDATE PH Financial Assistance: The Patient Advocate Foundation

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with medicare, medicaid or military benefits is now open. More information at https://www.copays.org/diseases/pulmonary-hypertension. The Pulmonary Hypertension Association (PHA) will continue to post financial assistance resources on our website as we learn of them: www.PHAssociation.org/Patients/Insurance/Financial-Assistance.

2018-01-12T17:56:39+00:00 January 12th, 2018|

The Barefoot Movement: PHighting for a Cure for Jackson

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for pulmonary hypertension (PH). It’s December. I’m writing from the “comfort”

2018-01-12T15:59:50+00:00 January 11th, 2018|

Six Things to Know About PHA’s Conference Scholarships

PHA's International PH Conference and Scientific Sessions bring together more than 1,500 patients, caregivers, medical professionals and other friends of PHA every two years to share information on the latest PH research, treatments and lifestyle issues. The 2018 Conference is fewer than 200 days away! Registration will open by the end of January 2018 for

2018-01-10T22:07:04+00:00 January 10th, 2018|