Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

2018-04-20T16:08:20+00:00 April 20th, 2018|

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects 25 million adults and children worldwide. On World PH Day, dozens of sister organizations will raise awareness for the need

Ask the Expert: Managing Seasonal Allergies in Patients With Pulmonary Hypertension (PH)

2018-04-20T14:04:36+00:00 April 20th, 2018|

By Nathan Verlinden, Cardiology Clinical Pharmacy Specialist, Allegheny General Hospital, Pittsburgh Nathan Verlinden received his PharmD from Drake University in Des Moines, Iowa, in 2013. He then completed a post-graduate year 1 (PGY-1) pharmacy practice residency at the University of Toledo Medical Center in Toledo, Ohio, followed by a PGY-2 specialty residency in cardiology at

Nadine Al-Naamani, M.D., M.S., Aldrighetti Research Award for Young Investigators Grant Recipient, Shares Research Journey and Hope for the Future

2018-04-13T14:26:59+00:00 April 11th, 2018|

Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, and Andrew Sweatt, M.D., Stanford University, were the research awardees of the 2017 Aldrighetti Research Award for Young Investigators and PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension, respectively. In this two-part series, the 2017 PHA Research Program awardees detail their journey to PH, and their hopes for

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

2018-04-10T15:29:35+00:00 April 10th, 2018|

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the Pulmonary Hypertension Association (PHA)’s online support community for individuals and

2017 PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension Award Grantee Discusses Work and Research

2018-04-09T19:20:14+00:00 April 6th, 2018|

Andrew Sweatt, M.D., Stanford University, and Nadine Al-Naamani, M.D., M.S., University of Pennsylvania, are the research awardees of the 2017 PHA/ATS Research Fellowship in Pulmonary Arterial Hypertension and Aldrighetti Research Award for Young Investigators, respectively. In the first of a two-part series, Dr. Sweatt discusses his research journey, grant awarded study and involvement with the

Clinicians Explore Mindfulness as a Possible Benefit to Complement Pulmonary Hypertension Treatments

2018-04-06T14:21:26+00:00 April 6th, 2018|

Note: PHA cautions PH patients to check with their doctor before taking up yoga, meditation and other mindfulness practices. Pulmonary hypertension (PH) is a progressive disease that affects the heart and the lungs (Lai, Potoka, Champion, Mora & Gladwin, 2014). Patients with this disease are treated to help control the pulmonary pressures and prevent

PHA Wants to Hear from Kids with PH, Parents and Providers

2018-04-06T13:30:44+00:00 April 6th, 2018|

The Pulmonary Hypertension Association (PHA) launched a survey of the pediatric PH community today to learn more about the needs of children with PH, their parents and providers. This brief survey closes on Friday, April 20, and should be taken by any member of the pediatric PH community. In 2016, PHA conducted a community-wide survey

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

2018-03-28T17:49:04+00:00 March 28th, 2018|

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ, where she taught physical education and health classes for 35 years, Sharyn Robbins was a role model for healthy, fit living. On top of teaching PE and Health classes, she coached girls’ field hockey, basketball, bowling and softball. During her

Pulmonary Hypertension Association Registry Gives People Living with Deadly Lung Disease a Chance to Advance Patient Care

2018-03-26T18:28:00+00:00 March 26th, 2018|

Silver Spring, Md. (March 23, 2018) – The Pulmonary Hypertension Association (PHA) patient registry is giving more than 500 people with two deadly, often-misdiagnosed breathing diseases a way to advance patient care – for themselves and others. The national nonprofit established the PHA Registry (PHAR) in 2015 as part of its PH Care Center (PHCC)