Colleen Brunetti: Reflections on the Power of Telling Your Story

2018-11-29T21:50:21+00:00 November 29th, 2018|

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we stand on the shoulders of great leaders who have come

CTEPH Awareness Day Campaign Increases Overall PH Recognition

2018-11-16T23:14:53+00:00 November 16th, 2018|

The Pulmonary Hypertension Association (PHA) recognized Wednesday, Nov. 14, as CTEPH Awareness Day and responses show an eagerness to learn about chronic thromboembolic pulmonary hypertension (CTEPH). Social media graphics and messages were shared widely, creating an aura of enthusiasm around the day. PHA fed the excitement by providing a myriad of ways to engage and

Pulmonary Hypertension Community Raises Crucial Funds in 2018 to Support PHA’s Mission

2018-11-16T23:13:36+00:00 November 16th, 2018|

More than 12,500 volunteers throughout the country helped organize 49 events to raise funds that support the mission of the Pulmonary Hypertension Association (PHA). Nearly half of these events were part of PHA’s national O2 breatheTM program, our signature fundraising events. The O2 breatheTM program is supported through the generosity of our national sponsors:

Pulmonary Hypertension Awareness Month Outreach Makes a Big Impact

2018-11-09T22:51:13+00:00 November 9th, 2018|

Last week the Pulmonary Hypertension Association (PHA) launched its annual awareness campaign, Pulmonary Hypertension Awareness Month, to increase knowledge of pulmonary hypertension (PH) among the general public, people at risk for PH and those who unknowingly live with it, health care providers, the media and elected officials. PHA and its members and followers are

CEO Update: Join PHA in Raising Awareness of PH in November

2018-11-02T20:34:58+00:00 November 2nd, 2018|

In fulfilling our mission at the Pulmonary Hypertension Association (PHA) to extend and improve the lives of those affected by pulmonary hypertension (PH), awareness is key. Although most of us did not know much, if anything, about PH until we were affected personally as a patient, family member or friend, we know now that

It’s No Trick: These Kids with PH Are a Treat

2018-10-19T21:07:10+00:00 October 19th, 2018|

Pulmonary hypertension (PH) is not just a disease for adults, so the Pulmonary Hypertension Association (PHA) works hard to support children with PH and their families. In 2017, PHA established a Pediatric Task Force, which surveyed 200 patients, families and providers to learn more about their needs and concerns. PHA also launched a comprehensive

Raise Funds and Awareness to Support PHA’s Mission During Awareness Month This November

2018-10-12T21:30:32+00:00 October 12th, 2018|

November is Pulmonary Hypertension Awareness Month, presenting a great opportunity to raise money needed to fund the mission of the Pulmonary Hypertension Association (PHA), and to raise awareness of PH. PHA has made it easy to get involved! Last week’s PHANews featured fundraising events taking place across the U.S. throughout November. Many may not