Hope for a Cure Looking to Recognize Outstanding Philadelphia-area PH Clinicians

Ahead of the biennial Philadelphia Hope for a Cure Gala, community members are nominating their favorite greater Philadelphia region pulmonary hypertension physicians and allied health care professionals for special recognition at the event. Hope for a Cure, the Philadelphia region’s marquee PHA fundraiser, is the brainchild of PHA board member Colleen Connor, who serves as

July 21st, 2017|

Victory: PH Community Speaks Out for Patient Protections

Four of the U.S. senators needed to pass the Better Care Reconciliation Act (BCRA) spoke out against the bill, blocking it from becoming law at this time. The BCRA aimed to dramatically cut Medicaid, opened a path for insurers to charge people with costly health conditions more, and permitted annual and lifetime insurance caps in some circumstances. Dozens of national health

July 20th, 2017|

What People Do At Support Group Meetings

by Michael Knaapen, Director, Patient & Caregiver Programs Support groups are a place for PH patients or their loved ones to meet one another at in-person meetings to find knowledge, encourage support, share hope and provide empowerment to all those affected by PH. There are nearly 300 support groups across the country, and at

July 20th, 2017|

Azalea Candelaria Joins PHA as Vice President, Development

The Pulmonary Hypertension Association (PHA) announces that Azalea Candelaria has joined the organization as Vice President of Development. Azalea will lead individual giving, events, planned giving and corporate and foundation grants programs to ensure financial resources to achieve PHA’s mission -- one of the organization’s strategic key focus areas (KFAs). Azalea brings a rich

July 18th, 2017|

Love and Compassion Fuel Lawrence, Mass., Coffee Café Owner’s Pulmonary Hypertension Association Advocacy and Activism

Lawrence, Mass. (July 13, 2017) –Frank Cann, owner of Coffee Cann Café in Lawrence, Mass. and F. H. Cann & Associates, Inc of North Andover, decided the best way to conquer the overwhelming and helpless feelings brought on by news that his daughter’s fiancé was battling pulmonary hypertension (PH), a progressive, debilitating and life-threatening

July 13th, 2017|

Making Connections: A Conference PHairytale

This article by Michael Knaapen, Director, Patient and Caregiver Programs, first appeared in the Spring 2017 issue of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. Gary first laid eyes on Debra during a breakfast at PHA’s 2016

July 6th, 2017|

A Roadmap for the Future: PH Community Input Guides PHA’s Strategic Plan to Advance Patient Care

I am happy to announce that the Pulmonary Hypertension Association (PHA) Board of Trustees has approved our first publicly-available strategic plan. As Mitch Koppleman, Board member and Chair of the new Strategic Planning Committee, shared earlier this month, this plan is based on the input provided by a comprehensive community-wide survey sent to approximately 13,000

June 29th, 2017|

ACTION ALERT: PHA Community Wins Temporary Victory For Patient Protections

Take Action Now to Keep Pressure on Congress! PHA joined more than a dozen national organizations on Capitol Hill to tell Congress to vote no on the Better Care Reconciliation Act (BCRA). However, this Senate health care proposal retains some protections for individuals with pre-existing conditions that the House tried to eliminate earlier this

June 29th, 2017|

Watch Sessions from PHA on the Road St. Paul and Register for an Event Near You

PHA on the Road is a FREE day-long education and networking program. This patient-focused program offers educational presentations by PH expert physicians, interactive question and answer sessions with health care professionals and other patients, opportunities for families to meet others living with PH. PHA on the Road is an opportunity to learn from PH experts

June 27th, 2017|

Advocacy Alert: Action Needed on Senate Health Care Bill

On June 22, the Senate released the Better Care Reconciliation Act (BCRA), an amended version of the American Health Care Act (AHCA) that passed the House in May. The proposal retains some protections for individuals with pre-existing conditions that the House tried to eliminate. However, it cuts Medicaid, loosens essential health benefit requirements and

June 27th, 2017|