Cardiovascular Institute of North Colorado Receives PHA’s PHCC Accreditation

2019-01-03T22:08:43+00:00 January 3rd, 2019|

The Pulmonary Hypertension Association’s (PHA’s) Pulmonary Hypertension Care Centers (PHCC) program granted Regional Clinical Program (RCP) accreditation to the Cardiovascular Institute of North Colorado in December. PHA launched the PHCC accreditation program in 2014 to improve the quality of care and outcomes for people with pulmonary hypertension (PH). Nationwide, PHCCs provide treatment for more

WSPH Report Explores Importance of Patient Perspectives in PH

2019-01-03T22:09:49+00:00 January 3rd, 2019|

In early 2018, a task force on the patient’s perspective was created at the sixth World Symposium on Pulmonary Hypertension (WSPH). This task force reviewed the role of patient associations such as the Pulmonary Hypertension Association (PHA) in supporting individuals with PH, examined how clinical teams can improve care and looked at improved access to

PH with COPD: Is Sildenafil an Effective Treatment Option?

2018-10-26T20:46:19+00:00 October 26th, 2018|

by Phyllis Hanlon, Contributing Writer All of the 14 targeted therapies for pulmonary hypertension (PH) are approved for use in patients with World Health Organization (WHO) Group 1 PH (pulmonary arterial hypertension, or PAH), with one therapy also approved for use in patients with inoperable or recurrent WHO Group 4 PH (chronic thromboembolic pulmonary hypertension,

PHA Recognizes Respiratory Care Week

2018-10-19T21:08:49+00:00 October 19th, 2018|

In recognition of Respiratory Care Week Oct. 21-27, the Pulmonary Hypertension Association (PHA) interviewed a registered respiratory therapist and certified pulmonary function technician. Tonya Zeiger, R.R.T., CPFT, is the pulmonary hypertension (PH) coordinator and associate in pulmonary medicine at the Mayo Clinic’s Jacksonville, Fla. campus, a PHA-accredited Center of Comprehensive Care (CCC). In this interview,

Using a Risk Score Calculator to Predict Survival Rates

2018-10-12T21:31:14+00:00 October 12th, 2018|

by Phyllis Hanlon, Contributing Writer The Registry to Evaluate Early and Long-term PAH Disease Management (REVEAL registry) is a study of approximately 3,500 people with World Health Organization (WHO) Group 1 pulmonary hypertension (pulmonary arterial hypertension, or PAH) in the U.S. Study participants who were followed 2006-2011 contributed important information to the pulmonary hypertension (PH)

PHA on the Road – Long Beach Welcomes More Than 200 PH Community Members

2018-10-05T20:42:05+00:00 October 5th, 2018|

The Pulmonary Hypertension Association (PHA) hosted a PHA on the Road: PH Patients and Families Education Forum Saturday, Sept. 29, in Long Beach, Calif. The forum brought together people with pulmonary hypertension (PH), their caregivers, families and friends, and PH-treating health care professionals for a day of learning and networking. The forum’s opening session

Availability of Implantable System for Remodulin Likely Late 2019

2018-09-14T20:49:14+00:00 September 14th, 2018|

The Food and Drug Administration (FDA) recently approved the Implantable System for Remodulin® (ISR), a collaboration between United Therapeutics Corporation and Medtronic. The ISR is approved for adults with functional class I, II and III pulmonary arterial hypertension (PAH) who are receiving intravenous (IV) treprostinil therapy. There are a very limited number of ISRs currently

Navigating Access to Generic Therapy

2018-09-14T20:44:07+00:00 September 14th, 2018|

The Pulmonary Hypertension Association (PHA) reported Aug. 17 that generic tadalafil was approved by the Food and Drug Administration (FDA) and suggested that pulmonary hypertension (PH) patients taking Adcirca® discuss the implications with their care teams. Since then, generic tadalafil has become available through many health insurance plans. In addition, PHA has been advised

Treating PH: Joint Symposium Discusses Options

2018-09-07T20:04:55+00:00 September 7th, 2018|

by Phyllis Hanlon, Contributing Writer Although there are 14 different Food and Drug Administration (FDA)-approved therapies for treating World Health Organization (WHO) Group 1 pulmonary hypertension (PH) (pulmonary arterial hypertension, or PAH), there remains a need for treatments that can be used across varying classifications of PH. In 2017, the Critical Care Medicine Department of

Share Your Oxygen Experiences: PHA Responds to Proposed Changes to Medicare Oxygen Coverage

2018-11-05T13:47:03+00:00 September 7th, 2018|

The Centers for Medicare and Medicaid Services (CMS) has proposed significant changes to how home oxygen (also known as supplemental oxygen) is regulated and paid for. The Pulmonary Hypertension Association (PHA) is taking action to improve the pulmonary hypertension (PH) community’s experience accessing home oxygen. If you have been prescribed home oxygen, you can help