Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

2018-04-20T16:08:20+00:00 April 20th, 2018|

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects 25 million adults and children worldwide. On World PH Day, dozens of sister organizations will raise awareness for the need

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

2018-04-10T15:29:35+00:00 April 10th, 2018|

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the Pulmonary Hypertension Association (PHA)’s online support community for individuals and

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

2018-03-28T17:49:04+00:00 March 28th, 2018|

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ, where she taught physical education and health classes for 35 years, Sharyn Robbins was a role model for healthy, fit living. On top of teaching PE and Health classes, she coached girls’ field hockey, basketball, bowling and softball. During her

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

2018-03-21T14:07:01+00:00 March 21st, 2018|

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from city to city -- in her job as a client

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

2018-03-13T16:55:07+00:00 March 9th, 2018|

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

2018-03-05T21:59:52+00:00 March 5th, 2018|

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face. Like them, he walks there just about every morning, except the summer months, as the sun is rising, taking advantage of Tucson’s relatively cooler seasons.

PHA Supports Rare Disease Day with Social Media Awareness Push

2018-02-26T15:39:19+00:00 February 23rd, 2018|

Silver Spring, Md. (February 22, 2018) -- The Pulmonary Hypertension Association (PHA) joins global partners, Feb. 28, Rare Disease Day®, to bring attention to the hopes and needs of people living with conditions like pulmonary hypertension (PH), an often misunderstood and misdiagnosed deadly disease. PHA will use social media to also highlight data indicating

Researchers: Collect Data at Unique Opportunity in PH Field

2018-02-01T17:37:14+00:00 February 1st, 2018|

Investigator Applications are now being accepted for the Research Room at PHA’s 2018 International PH Conference and Scientific Sessions. The Research Room helps researchers further their studies by providing the opportunity for collection of data, including phenotypic information and biological specimens, from the largest gathering of pulmonary hypertension patients in the world. Impact the field

Webinar for Medical Professionals CTEPH: Finding, Treating and Future Directions

2018-02-09T03:44:57+00:00 January 31st, 2018|

Friday, February 9th, 2018, 3:00 p.m. ET Josanna M. Rodriguez-Lopez, M.D., Massachusetts General Hospital This webinar will focus on WHO Group 4 pulmonary hypertension (PH), chronic thromboembolic pulmonary hypertension (CTEPH), and will include information about what makes CTEPH unique from other types of PH and why it is important to rule out CTEPH in

CEO Update: 2018 PHA International PH Conference and Scientific Sessions Registration and Scholarship Applications Are Open

2018-02-02T14:17:23+00:00 January 25th, 2018|

Dear PHA Community, I’ll never forget my first experience with the PH Community and the Pulmonary Hypertension Association (PHA). It was day one of the 2016 PHA International PH Conference and Scientific Sessions. Today, after nearly two years of serving as your president and CEO, I’ve come to appreciate just how much our biennial