PHA on the Road – Milwaukee: Topics of Interest for All Participants

2018-09-14T20:47:57+00:00 September 14th, 2018|

The Pulmonary Hypertension Association (PHA) will host PHA on the Road: PH Patients and Families Education Forum in Milwaukee Saturday, Oct. 27. PHA on the Road is a unique education and networking event that provides structured sessions for patients, their families and caregivers to learn more about pulmonary hypertension (PH) and have questions answered by local PH

Georgia Fun Walk Celebrates 15th Year on October 13

2018-09-14T21:38:38+00:00 September 14th, 2018|

The Georgia Fun Walk, launched by Sally Maddox, Ed.D., Pulmonary Hypertension Association (PHA) Board of Trustees secretary, celebrates its 15th walk October 13. This year’s milestone walk promises to be a special day for people living with pulmonary hypertension (PH), their families, caregivers, sponsors and health care providers in the greater Atlanta area. The

Make the Most of Your Health Insurance: Prepare Now for Open Enrollment

2018-09-14T20:40:03+00:00 September 14th, 2018|

Most types of health insurance limit when participants may enroll or make changes to their coverage. During most of the year, changes and additions are restricted to major life events such as losing a job, getting married or having a child. Open enrollment, or annual enrollment, is a period of time each year when

Tampa Bay PHA Support Group Shares Experience Weathering Hurricane Irma

2018-09-14T20:46:18+00:00 September 14th, 2018|

As the 2018 hurricane season begins, the PHA community reflects on the anniversary of last year’s terrible storms with an empowering tale of community, resourcefulness and courage. By Jodi Hamel and Carolyn Sheehy (aka. Peas and Carrots) Tampa Bay PHA support group leaders As we write this, it is exactly one year to the

Share Your Oxygen Experiences: PHA Responds to Proposed Changes to Medicare Oxygen Coverage

2018-09-07T20:07:48+00:00 September 7th, 2018|

The Centers for Medicare and Medicaid Services (CMS) has proposed significant changes to how home oxygen (also known as supplemental oxygen) is regulated and paid for. The Pulmonary Hypertension Association (PHA) is taking action to improve the pulmonary hypertension (PH) community’s experience accessing home oxygen. If you have been prescribed home oxygen, you can help

Pulmonary Pints Celebrates 10 Years in Baltimore

2018-09-07T20:05:52+00:00 September 7th, 2018|

Pulmonary Pints, an annual fundraiser in Baltimore to raise money and increase awareness of pulmonary hypertension (PH), will celebrate its milestone 10th anniversary Saturday, October 6. Participants will enjoy live music, raffles, amazing food and drink specials. This year’s attendees hope to celebrate the event’s 10-year anniversary by achieving a $100,000 fundraising milestone! Pulmonary

Seven-Year Old Jackson Shares Story and Hosts Event to Help PH Patients

2018-09-07T20:08:53+00:00 September 7th, 2018|

Jackson Wall, a seven-year old living with PH, was very busy at the Pulmonary Hypertension Association (PHA) 2018 International PH Conference and Scientific Sessions in Orlando, Fla., this summer, as he had many scheduled activities and speaking engagements. He squeezed in time between the Conference kids’ field trip and the fashion show to be

sMiles for Katie Honors Memory of Katie McCarthy Through Awareness-Raising and Fundraising

2018-08-31T15:43:49+00:00 August 30th, 2018|

sMiles for Katie’s 3rd Annual Fundraiser Honoring Katie McCarthy is a fundraising event organized to bring awareness to pulmonary hypertension (PH) and raise money to support the Pulmonary Hypertension Association’s (PHA’s) mission. The day is filled with live music, a silent auction, 50/50 raffle, food and drinks, gift baskets and more. Many Middletown, N.J.

Caution: Accumulator Adjustment Programs at Work

2018-08-31T15:46:44+00:00 August 30th, 2018|

Accumulator adjustment programs are a cost-management strategy some pharmacy benefit managers (PBMs) are using that may place a significant financial burden on individuals with pulmonary hypertension (PH) and other complex, costly health conditions. When an insurance plan uses an accumulator adjustment program, copay discount cards and other forms of manufacturer assistance do not apply