PHA’s Newest Publication Connects Pediatric Patients and Families to Vital Resources

2019-01-17T21:59:07+00:00 January 17th, 2019|

The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s pediatric community. The survey was conducted to learn more about the community’s challenges, needs and interests. PHA received responses from hundreds of health care providers,

PHA’s Telephone Support Groups: Support Is Just a Call Away

2019-01-10T22:28:43+00:00 January 10th, 2019|

The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary hypertension (PH), never misses his monthly caregiver support group. Since it meets by phone, it is easier for him to maintain the perfect attendance record

Inside Pathlight, PHA’s Member Magazine

2019-01-10T22:40:24+00:00 January 10th, 2019|

Pathlight, the flagship magazine of the Pulmonary Hypertension Association, is published quarterly and sent to all members of PHA. Don’t miss the many interesting articles in the December 2018, Issue 4 magazine, including: “Living on Oxygen 24/7” Cover story: A progressive heart and lung disease and a PAH diagnosis isn’t stopping Alexis Trotter from

WSPH Report Explores Importance of Patient Perspectives in PH

2019-01-03T22:09:49+00:00 January 3rd, 2019|

In early 2018, a task force on the patient’s perspective was created at the sixth World Symposium on Pulmonary Hypertension (WSPH). This task force reviewed the role of patient associations such as the Pulmonary Hypertension Association (PHA) in supporting individuals with PH, examined how clinical teams can improve care and looked at improved access to

New Members Join 2018-20 Support Group Leader Advisory Board

2019-01-03T22:11:42+00:00 January 3rd, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines – new member Mike Robinson – new member Evette Britton Nicole Creech Chooda Khanal Pat Ofori Tina Stiyer Doug Taylor The board, made up of

PH Angel Families Would Give Anything to Do Anything ‘Normal’ for Their Kids

2018-12-19T17:57:50+00:00 December 19th, 2018|

“So, when you are thinking about all of the things you did for your kids today, think of all of the PH Angel families that would give anything to do anything "normal" for our kids. We have to find a cure.” “Our son, Weston, spent almost 3 years of his life inpatient

PHA Registry Expands Access to PH Data Service

2018-12-06T18:43:48+00:00 December 6th, 2018|

A new Data Analysis Service launched this week by the Pulmonary Hypertension Association (PHA) enables researchers and organizations not involved in PHA’s Pulmonary Hypertension Association Registry (PHAR) to use data from the multi-center patient registry. PHAR is part of an innovative and critical PHA initiative to improve care for persons with pulmonary hypertension (PH),

Pulmonary Hypertension Community Raises Crucial Funds in 2018 to Support PHA’s Mission

2018-11-16T23:13:36+00:00 November 16th, 2018|

More than 12,500 volunteers throughout the country helped organize 49 events to raise funds that support the mission of the Pulmonary Hypertension Association (PHA). Nearly half of these events were part of PHA’s national O2 breatheTM program, our signature fundraising events. The O2 breatheTM program is supported through the generosity of our national sponsors: