Rochester PH Community Launches Pediatric Support Group

2021-12-14T11:10:29-05:00September 4th, 2019|

The Rochester, N.Y., pulmonary hypertension (PH) community held the first meeting of its pediatric support group on Saturday, Aug. 24. Children with PH and their families were invited to join a painting studio and paint zebras on canvas. Jenn Garigen, Rochester support group leader, reports, “Our first pediatric support group meeting was a success!

On Grief and Giving Back

2021-12-14T10:23:32-05:00June 26th, 2019|

This article originally appeared in the June issue of Pathlight. Jackie Woosley is a Pulmonary Hypertension Association (PHA) support group leader who also facilitates the monthly PHA Bereavement Telephone Support Group. She was the caregiver for her adult daughter Karen, who passed away in 2016, and has taken on multiple volunteer roles with PHA to carry

Volunteer Spotlight: Iowa Support Group Learns About Palliative Care

2021-12-14T10:23:33-05:00June 26th, 2019|

Karen Fragale and Traci Stewart, Pulmonary Hypertension Association support group leaders of the Pulmonary Hypertension (PH) Iowa Support Group, hosted a meeting on palliative care on June 8. At the meeting, Jen Krier, a palliative care nurse from Mercy Clinic in Iowa, offered insights to the group about palliative care, including how palliative care

Volunteer Spotlight: Cardio Rehab Speaker and Therapy Pooch Present at Support Group Meeting

2021-12-14T10:23:37-05:00June 12th, 2019|

Nicole Creech, support group leader of the Pulmonary Hypertension Association (PHA) Lexington, Ky., support group, recently hosted a meeting on cardiopulmonary rehabilitation featuring speaker Katelyn King, MSEP, pulmonary rehabilitation coordinator at the University of Kentucky/Gill Heart & Vascular Institute in Lexington. Katelyn brought with her special guest Carmine the Therapy Dog whose owner is

PHA Launches Three New Facebook Groups to Support the PH Community

2021-12-14T10:23:39-05:00June 5th, 2019|

The Pulmonary Hypertension Association (PHA) has created three new Facebook groups to provide support for the pulmonary hypertension (PH) community! PHA’s Facebook groups provide members with a supportive space to share stories, updates, goals, worries and hopes, and ask questions and affirm others on their PH journeys. Members can share this information with others

Learning to Live Your Best Life with PH: Join PHA on the Road in 2019

2020-12-21T14:32:04-05:00May 30th, 2019|

The Pulmonary Hypertension Association (PHA) is excited to announce dates and cities for two PHA on the Road: PH Patients and Families Education Forums in 2019. PHA on the Road, a program of the PHA Community PH Education Fund,* is a unique opportunity for individuals with pulmonary hypertension (PH) and their families to