Riders Rally in Memory of Jonah

2018-07-13T19:37:46+00:00 July 13th, 2018|

More than 500 people gathered June 23 in Murfreesboro, TN, to honor the memory of Jonah Guider at a fundraising event unlike any other Pulmonary Hypertension Association (PHA) event across the country. This year’s “RideJonahRide” event, one of 20 PHA O2Breathe (pronounced: oh-to-breathe) events that are supported by PHA’s national sponsors, Actelion Pharmaceuticals Ltd.,

2018 PHA Outstanding Members Awards Presented During Conference

2018-07-13T19:33:58+00:00 July 12th, 2018|

The Pulmonary Hypertension Association (PHA) would not be able to achieve its work without the dedication and excellence of the entire PH community. The individuals recognized during a June 30 awards ceremony at PHA’s 2018 International PH Conference and Scientific Sessions have exemplified dedication and service to the community and the association. They have

Rare Disease Caregiving Report Paints a Portrait of PH Caregivers in the U.S.

2018-07-06T21:06:10+00:00 July 6th, 2018|

This article by Mike Knaapen, Director, Patient and Caregiver Programs and Lisa Weber, Vice President, Greenwald and Associates, first appeared in Issue 2 2018 of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. It is well known

Post-Transplant Life is an Unexpected Adventure

2018-07-11T20:00:47+00:00 June 27th, 2018|

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference I’ve attended, and the first I’ll attend without pulmonary arterial

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

2018-06-22T18:27:02+00:00 June 20th, 2018|

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I

Switching Gears, a Different Kind of Support Group Leader

2018-06-15T20:37:12+00:00 June 14th, 2018|

This article by Emily K. Outtarac, Administrative Assistant, Medical Services, first appeared in Issue 1 2018 of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. The PHA Support Group program offers in-person meetings to exchange tips, learn

2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference

2018-05-16T14:49:05+00:00 May 16th, 2018|

Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the opening session. Don’t miss out on meeting Elvis and also the opportunity to connect with other PH community members for

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00 May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and

Early Intervention: Better Clinical and Economic Outcomes

2018-05-09T18:26:10+00:00 May 9th, 2018|

by Phyllis Hanlon, Contributing Writer   Researchers who study WHO Group 1 PH (PAH, pulmonary arterial hypertension) have shown that drugs may delay progression of the disease, reduce symptoms and improve quality of life. More recently, scientists have found that using more than one drug early when a patient is newly diagnosed can produce an even