Openings Still Available for Webinar Participation in FDA Meeting to Gather Input on Living With a Rare Disease

2019-04-11T15:59:10+00:00April 11th, 2019|

The U.S. Food and Drug Administration (FDA) reports that the in-person registration for their April 29 public meeting “Patient Perspectives on the Impact of Rare Diseases” is full. However, interested persons can still register to attend via webcast. In addition, the FDA invites those interested in attending in-person to join the waitlist. The FDA

PHA Helps Highlight the Importance of Organ Donation During National Donate Life Month

2019-04-04T18:35:43+00:00April 4th, 2019|

April is National Donate Life Month and all month long the Pulmonary Hypertension Association (PHA) is bringing awareness to transplant recipients, individuals still on the waiting list for a transplant, donors and donor families and registered donors. The awareness month, established in 2003 by Donate Life America, supports organizations nationwide in their efforts to

PHA’s PH Care Centers (PHCC) Program Accredits Five New Centers

2019-04-04T19:08:22+00:00April 4th, 2019|

The Pulmonary Hypertension Association’s (PHA’s) PH Care Centers (PHCC) Program recently accredited five new centers in support of its commitment to promoting quality care practices through PH center accreditation. Interest in PHA’s continuous quality improvement initiative remains high as PH programs seek accreditation as Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP).

Inside Pathlight, PHA’s Member Magazine

2019-04-04T19:10:13+00:00April 4th, 2019|

Pathlight, the flagship magazine of the Pulmonary Hypertension Association (PHA), is published quarterly and sent to all PHA members. Don’t miss the many compelling and informative articles in the March 2019 Issue 1 magazine, including: “Game, Set Hatch” Cover story: Angela Hatch, P.A.-C explains how attending a medical course led to her PAH diagnosis

New Online Tool Simplifies Clinical Trial Search

2019-03-13T20:28:27+00:00March 13th, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website, PHAssociation.org. PHA provides this tool to help participants learn more about ongoing PH research. The tool includes filters to narrow search results to fit an individual’s personal needs.

Happy Valentine’s Day: PHA Releases New Intimacy Guide

2019-02-14T19:16:18+00:00February 14th, 2019|

What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living With PH: A Guide to Intimacy” in response to a known need for information and helpful tips to cope with and overcome the effects of

Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH

2019-02-07T19:29:29+00:00February 7th, 2019|

Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is increasing recognition of unique genotypic and phenotypic subsets of the disease. This necessitates individualized and precision approaches to treatments for children with PH that will

Professionals Give Insights on Adaptive Strollers and Push Chairs for Children with PH

2019-01-24T22:03:40+00:00January 24th, 2019|

by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related disabilities. They provide enhanced postural support, stability and comfort over standard infant or toddler strollers. In addition, these devices may offer enhanced versatility for a

PHA Releases Updated Associated Condition Brochures

2019-01-24T22:04:34+00:00January 24th, 2019|

The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or diseases known to be related to PH. The series includes PH&: Congenital heart disease Chronic obstructive pulmonary disease Chronic thromboembolic disease Hereditary hemorrhagic telangiectasia HIV