2018 PHA Celebrity Champion Charity Tillemann-Dick to Speak at PHA’s 2018 Conference

2018-05-16T20:09:19+00:00 May 16th, 2018|

Top-selling classical recording artist and PHA celebrity champion Charity Tillemann-Dick will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to talk about her being a rising opera star diagnosed with PH. Don’t miss meeting Charity and getting a signed copy her new book, The Encore: A Memoir in Three Acts. Register today at PHAssociation.org/Conference.

2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference

2018-05-16T14:49:05+00:00 May 16th, 2018|

Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the opening session. Don’t miss out on meeting Elvis and also the opportunity to connect with other PH community members for

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00 May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and

Early Intervention: Better Clinical and Economic Outcomes

2018-05-09T18:26:10+00:00 May 9th, 2018|

by Phyllis Hanlon, Contributing Writer   Researchers who study WHO Group 1 PH (PAH, pulmonary arterial hypertension) have shown that drugs may delay progression of the disease, reduce symptoms and improve quality of life. More recently, scientists have found that using more than one drug early when a patient is newly diagnosed can produce an even

Diagnosing and Treating Older Patients with PH: A Complex Process

2018-05-09T18:01:42+00:00 May 9th, 2018|

by Phyllis Hanlon, Contributing Writer   In 2016, the Population Reference Bureau released a report that projects the number of people age 65 and older will more than double from 46 million currently to over 98 million by 2060. Age can bring many changes in health and physical conditions. According to the National Council on

PH Support Group Raises Awareness for PH at Teaching Hospital Staff Safety and Quality Event

2018-05-03T17:47:29+00:00 May 3rd, 2018|

March 13th may have brought a nor’easter to New Hampshire, but that didn’t stop Jane Armstrong and Deb Cantlin RN, MS from promoting awareness of pulmonary hypertension at a Staff Safety and Quality event held at a large teaching hospital.  The Dartmouth-Hitchcock (NH) PH Support Group created a large and very detailed poster which

World PH Day, May 5, Reminds Us the PH Community is Global: Q&A With Dr. Jeffrey Sager

2018-05-09T20:24:38+00:00 May 3rd, 2018|

In honor of World PH Day, the  Pulmonary Hypertension celebrates the work of individuals and organizations that work globally to advance PH care, research and treatment access. As part of PHA’s new PHour Questions feature in its Pathlight membership quarterly magazine, the June issue will highlight Dr. Jeffrey Sager, director of the Pulmonary Hypertension

World PH Day Toolkit with Resources, Templates and Memes

2018-04-27T15:46:42+00:00 April 27th, 2018|

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will share photos, stories and social media messages linked by an image of two linked hearts, the 2018 World PH Day

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

2018-04-20T19:57:22+00:00 April 26th, 2018|

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and a half, she was jumping on a trampoline, struggling to

PHA’s Pathlight Membership Magazine to Highlight PHCC Clinicians

2018-04-25T20:19:04+00:00 April 25th, 2018|

The upcoming issue of Pathlight, a complementary quarterly magazine for Pulmonary Hypertension Association (PHA) members, introduces a new feature called, PHour Questions. The segment  will introduce clinicians from Pulmonary Hypertension Care Center (PHCCs), including Pulmonary Hypertension Association Registry (PHAR)-participating centers. The new feature asks four insightful questions about how these experts are advancing, PH