April is National Donate Life Month and all month long the Pulmonary Hypertension Association (PHA) is bringing awareness to transplant recipients, individuals still on the waiting list for a transplant, donors and donor families and registered donors. The awareness month, established in 2003 by Donate Life America, supports organizations nationwide in their efforts to
The Pulmonary Hypertension Association’s (PHA’s) PH Care Centers (PHCC) Program recently accredited five new centers in support of its commitment to promoting quality care practices through PH center accreditation. Interest in PHA’s continuous quality improvement initiative remains high as PH programs seek accreditation as Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP).
Pathlight, the flagship magazine of the Pulmonary Hypertension Association (PHA), is published quarterly and sent to all PHA members. Don’t miss the many compelling and informative articles in the March 2019 Issue 1 magazine, including: “Game, Set Hatch” Cover story: Angela Hatch, P.A.-C explains how attending a medical course led to her PAH diagnosis
Meet up with Pulmonary Hypertension Association (PHA) staff as we head out across the nation with information and resources to help people living with conditions which may put them at increased risk of developing PH. PHA is committed to doing outreach and education so people with associated conditions know what to look out for,
The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website, PHAssociation.org. PHA provides this tool to help participants learn more about ongoing PH research. The tool includes filters to narrow search results to fit an individual’s personal needs.
What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living With PH: A Guide to Intimacy” in response to a known need for information and helpful tips to cope with and overcome the effects of
Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is increasing recognition of unique genotypic and phenotypic subsets of the disease. This necessitates individualized and precision approaches to treatments for children with PH that will
by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related disabilities. They provide enhanced postural support, stability and comfort over standard infant or toddler strollers. In addition, these devices may offer enhanced versatility for a
The Pulmonary Hypertension Association (PHA) updated and redesigned its PH& brochures, a series of 13 educational pamphlets that discuss the relationship of pulmonary hypertension (PH) and other conditions or diseases known to be related to PH. The series includes PH&: Congenital heart disease Chronic obstructive pulmonary disease Chronic thromboembolic disease Hereditary hemorrhagic telangiectasia HIV
The Pulmonary Hypertension Association (PHA) has produced a new resource, “Pediatric Pulmonary Hypertension: A Guide to Resources for Parents and Families,” in response to 2017 survey results of PHA’s pediatric community. The survey was conducted to learn more about the community’s challenges, needs and interests. PHA received responses from hundreds of health care providers,