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The Pulmonary Hypertension Association recognizes the importance of in-person connections to health, wellbeing and care management and has resumed some in-person events, including our first PHA On The Road patient and caregiver workshop since late 2019.
Do the high costs of treatment prevent you from receiving treatment you need? The best solution for you depends on the kind of insurance you have, the type of medication you take and availability of financial assistance resources.
Meet the superstars of the pulmonary hypertension community. Watch a video of our Outstanding Member Award ceremony from PHA 2022 International PH Conference and Scientific Sessions. The awards recognize volunteer efforts in patient/caregiver support; advocacy; promotion of quality patient care; and advancing pulmonary hypertension research.
Planning to attend PHA on the Road in Louisville? Find out who’s speaking at this free, daylong workshop presented by the Pulmonary Hypertension Association.
The Pulmonary Hypertension Association (PHA)’s newest grant supports pediatric pulmonary hypertension research that addresses unmet needs or enhances knowledge of pediatric PH, including classification, diagnosis, treatment and quality improvement and care. The PHA Pediatric PH Research Award will support a pilot study for one year for up to $65,000. Apply by Sept. 12.
The Pulmonary Hypertension Association is looking for volunteers to lead support groups. By becoming a support group leader, you will join a nationwide team of volunteers who are passionate about supporting, educating and empowering the pulmonary hypertension community.
As the Congressional August recess approaches, legislators are making plans to meet with constituents in their home states. Make sure to schedule a summer advocacy visit with your members of Congress. Help promote legislation that will benefit those affected by PH.
Already scheduled your Advocacy August visit? Share your advocacy experiences with the Pulmonary Hypertension Association’s Right Heart Blog.
The Pulmonary Hypertension Association won a silver EXCEL award for “Navigating Pulmonary Hypertension” from the Software & Information Industry Association (SIIA) AM&P Network. The EXCEL awards recognize excellence and leadership in association media, publishing, marketing and communications.
As an intensive care pediatrician, Chandani Dezure, M.D., treats critically ill children. After one son was diagnosed with pulmonary hypertension, Dr. Dezure became a caregiver herself. She shares how her son's PH helped her become a better doctor. Her story appeared in the June 2022 issue of Pathlight.
