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Ahead of the biennial Philadelphia Hope for a Cure Gala, community members are nominating their favorite greater Philadelphia region pulmonary hypertension physicians and allied health care professionals for special recognition at the event. Hope for a Cure, the Philadelphia region’s marquee PHA fundraiser, is the brainchild of PHA board member Colleen Connor, who serves as
Four of the U.S. senators needed to pass the Better Care Reconciliation Act (BCRA) spoke out against the bill, blocking it from becoming law at this time. The BCRA aimed to dramatically cut Medicaid, opened a path for insurers to charge people with costly health conditions more, and permitted annual and lifetime insurance caps in some circumstances. Dozens of national health
by Michael Knaapen, Director, Patient & Caregiver Programs Support groups are a place for PH patients or their loved ones to meet one another at in-person meetings to find knowledge, encourage support, share hope and provide empowerment to all those affected by PH. There are nearly 300 support groups across the country, and at
The Pulmonary Hypertension Association (PHA) announces that Azalea Candelaria has joined the organization as Vice President of Development. Azalea will lead individual giving, events, planned giving and corporate and foundation grants programs to ensure financial resources to achieve PHA’s mission -- one of the organization’s strategic key focus areas (KFAs). Azalea brings a rich
Good Days has informed PHA that, beginning with the 2018 grant cycle, its PH copay assistance programs will be limited to patients receiving Medicare. According to Good Days, non-Medicare recipients currently being assisted will maintain their assistance through 2017. However, Good Days will not accept non-Medicare PH patients for re-enrollment in the assistance program in
Lawrence, Mass. (July 13, 2017) –Frank Cann, owner of Coffee Cann Café in Lawrence, Mass. and F. H. Cann & Associates, Inc of North Andover, decided the best way to conquer the overwhelming and helpless feelings brought on by news that his daughter’s fiancé was battling pulmonary hypertension (PH), a progressive, debilitating and life-threatening
by Phyllis Hanlon, Contributing Writer Much research has been done on symptoms that affect quality of life in patients with chronic medical conditions like cancer and diabetes. But until 2016 no studies on this issue had been done in patients with pulmonary arterial hypertension (PAH). Reducing symptom burden is an important part of treatment
This article by Michael Knaapen, Director, Patient and Caregiver Programs, first appeared in the Spring 2017 issue of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. Gary first laid eyes on Debra during a breakfast at PHA’s 2016
I am happy to announce that the Pulmonary Hypertension Association (PHA) Board of Trustees has approved our first publicly-available strategic plan. As Mitch Koppleman, Board member and Chair of the new Strategic Planning Committee, shared earlier this month, this plan is based on the input provided by a comprehensive community-wide survey sent to approximately 13,000
Take Action Now to Keep Pressure on Congress! PHA joined more than a dozen national organizations on Capitol Hill to tell Congress to vote no on the Better Care Reconciliation Act (BCRA). However, this Senate health care proposal retains some protections for individuals with pre-existing conditions that the House tried to eliminate earlier this
