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Nominations are now open for the Pulmonary Hypertension Association (PHA) Outstanding Member Awards. The Outstanding Member Awards honor people who raise awareness and give a voice and face to the pulmonary hypertension (PH) community. The awards recognize their advocacy, fundraising, promotion of quality patient care, and efforts to advance PH research. The Outstanding Member
When Gale Perkins was first diagnosed with pulmonary hypertension more than 30 years ago, she didn’t know whom to turn to. She struggled to find resources, educational materials, and fellow patients to talk to about PH. It wasn’t until nearly 10 years after her diagnosis that she found PHA. What started as a forum
A new issue of Advances in Pulmonary Hypertension is available at AdvancesinPH.org. The issue, Volume 18, No. 4, “Pulmonary Hypertension: Every Picture Tells a Story,” was edited by Jeffrey D. Edelman, M.D., and Harrison W. Farber, M.D. Drs. Edelman and Farber are members of the Advances in Pulmonary Hypertension Editorial Board. Radiology, echocardiography, cardiology
In celebration of Valentine’s Day, The Right Heart blog brings you a love story about Georgette and Dean Bridger, who have been married for nearly 27 years. Dean was diagnosed with scleroderma in 1996 and with pulmonary arterial hypertension (PAH) in 2016. Along the way, Georgette has been by his side through “this remarkable
This spring, the Pulmonary Hypertension Association (PHA) is bringing together the pulmonary hypertension (PH) community for a common goal: raising funds to help support those affected by PH and ultimately find a cure. PHA will host O2breathe events throughout the country to raise money to fund PHA’s support, education and research initiatives. Register for
Learn, connect and share our common “Vision for a Cure” at PHA 2020 International PH Conference and Scientific Sessions. Set for June 12-14 in Anaheim, California, the event is expected to bring together more than 1,400 individuals with pulmonary hypertension (PH), caregivers and health care professionals from all over the world. PHA 2020 is
Laura Camponeschi, leader of the Baltimore-Johns Hopkins PH Support Group, tries to ensure lively discussions in her quarterly meetings. The December 2019 meeting featured helpful travel suggestions from Julie Shamberger, R.N. Afterward, one member showed off a roller backpack she adapted to help her easily navigate with her oxygen. Another shared the name of
Jason Boehme, M.D., received the 2019 PHA Robyn J. Barst, M.D. Pediatric PH Research & Mentoring Grant in honor of Jackson Wall, one of three Pulmonary Hypertension Association (PHA) research grants awarded last year. An assistant professor of pediatrics at the University of California, San Francisco, Boehme is studying “Pulmonary Vascular Smooth Muscle Metabolic
The Social Security Administration (SSA) proposed changing the social security disability insurance (SSDI) process to make its eligibility review more frequent. PHA opposes the change and wrote to SSA in January to recommend that people with pulmonary hypertension (PH) undergo eligibility review less often. Currently, SSA reviews SSDI eligibility every year, every three years
In recognition of American Heart Month in February, the Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a story about Lisa Goldstein. She recently was diagnosed with pulmonary arterial hypertension (PAH) related to Scimitar Syndrome, a congenital heart defect she only learned about as an adult. Lisa was diagnosed with Scimitar Syndrome in 2013
