Featured Article

Advocacy Pays Off Now That Full Senate Will Consider Safe Step Act

2023-05-25T10:39:32-04:00May 24th, 2023|

Thanks to Pulmonary Hypertension Association (PHA) advocacy efforts, the Safe Step Act moves to the full Senate floor for the first time. “This is a huge step in the legislative process. While there is more work before this bill becomes law, PHA celebrates this milestone achievement,” says PHA President and CEO Matt Granato.

San Diego Workshop Provides Opportunities To Connect, Learn and Share

2023-05-25T10:38:20-04:00May 24th, 2023|

More than over 80 people attended the Pulmonary Hypertension Association’s recent education workshop. PHA Connects: PH Community Workshop addressed medication side effects, chronic thromboembolic pulmonary hypertension and blood abnormalities associated with PH, among other topics. The free, daylong event, formerly known as PHA On the Road, also included support group meetings.

Discover Tips to Care for Your Child with PH

2023-05-25T10:34:47-04:00May 24th, 2023|

Join our panel of experts at 2 p.m. EDT Thursday, June 22 as they share their experiences treating and caring for children with PH. Panelists include health care professionals Rachel Sullivan, M.D., and Melissa Magness, M.S.N., APRN, CNP-AC, and parents Jayna Wall and Jeff Harpp. Discover practical advice related to school, activities, health care and more.

Pandemic Didn’t Impede PAH Patients Enrolled in PHA Registry

2023-05-11T08:28:47-04:00May 10th, 2023|

A new-peer reviewed research paper showed that people with pulmonary arterial hypertension enrolled in the PHA Registry didn’t experience medication delays, increased emergency room visits or more hospital stays. The paper, which appeared in the April 18 issue of the Pulmonary Circulation Journal, is the 15th published paper based on PHA Registry data.

What You Need to Know About Medicaid Changes

2023-05-11T08:29:19-04:00May 10th, 2023|

Learn how to maintain insurance coverage now that the COVID-19 public health emergency is over. Join the Pulmonary Hypertension Association (PHA) at 2 p.m. EDT, Wednesday, May 31, for a free webinar on Medicaid disenrollment. Jaeger Spratt, PHA’s advocacy and treatment access manager, will explain how states are removing beneficiaries from Medicaid plans and how you can navigate the system.

Support Group Forms Book Club

2023-05-11T08:30:08-04:00May 10th, 2023|

The New York City-Manhattan Support Group recently launched a book club to provide new opportunities for people with pulmonary hypertension (PH) to engage online. Leader Alicia Kubes started the support group in 2018 and has been expanding its focus since the pandemic began. The online group aims to discuss books through the lens of living with PH; patients throughout the U.S. are welcome to attend the June 9 meeting.