Featured Article

Expert Panel Updates PAH Therapy Guidelines

2019-02-21T21:44:57+00:00 February 21st, 2019|

Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart Association and published in the CHEST Journal. The panel, which included several PHA members and a patient representative, looked at 300 recent studies to complete the update

YouTube Videos Frequently Contain Misinformation on Idiopathic Pulmonary Fibrosis

2019-02-21T21:44:11+00:00 February 21st, 2019|

Researchers and health care providers know that patients with rare diseases frequently rely on the internet for information on their condition, how it is diagnosed, how it is treated and how to live with a new condition. YouTube is frequently consulted, especially when tasks are being learned, such as mixing medications. But patient-directed

Happy Valentine’s Day: PHA Releases New Intimacy Guide

2019-02-14T19:16:18+00:00 February 14th, 2019|

What better way to celebrate Valentine’s Day than to announce a new Pulmonary Hypertension Association (PHA) resource on the topic of dating, relationships and intimacy? Today PHA releases “Living With PH: A Guide to Intimacy” in response to a known need for information and helpful tips to cope with and overcome the effects of

Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH

2019-02-07T19:29:29+00:00 February 7th, 2019|

Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is increasing recognition of unique genotypic and phenotypic subsets of the disease. This necessitates individualized and precision approaches to treatments for children with PH that will

Join the National Discussion on Heart Disease During American Heart Month

2019-02-07T19:30:26+00:00 February 7th, 2019|

February is American Heart Month and the Pulmonary Hypertension Association (PHA) encourages members to join the awareness campaign of the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH) to encourage people across the U.S. to reduce their risk for heart disease. In economically developed countries, pulmonary hypertension (PH)

PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies

2019-01-31T20:19:28+00:00 January 31st, 2019|

The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned pulmonary hypertension (PH) experts — includes an article by Brian Graham, M.D., Peter Fernandes, M. Pharm., and Sue Gu, M.D., that explores the barriers and solutions to

CEO Update: Year of Hope Begins With New and Continuing Programs

2019-01-24T22:05:39+00:00 January 24th, 2019|

Dear PH Community, For me, January always is inspiring and energizing, in part because the new year represents hope, possibility and anticipation. I look forward to the year ahead and the chance to work with so many of our pulmonary hypertension (PH) community members and staff to realize the many goals we have set

Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely

2019-01-24T22:05:08+00:00 January 24th, 2019|

One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have found those born prematurely are three to five times more likely to develop pulmonary hypertension (PH) as adolescents or young adults. Less is known, however,

Professionals Give Insights on Adaptive Strollers and Push Chairs for Children with PH

2019-01-24T22:03:40+00:00 January 24th, 2019|

by Nidhy Varghese, M.D., and Erin Ely, R.N., CPN, of Texas Children’s Hospital Adaptive seating systems, such as adaptive strollers or push chairs, are technology for children with mobility-related disabilities. They provide enhanced postural support, stability and comfort over standard infant or toddler strollers. In addition, these devices may offer enhanced versatility for a