Featured Article

Helping the PH Community Navigate Unprecedented Times

2020-07-02T11:27:10-04:00July 2nd, 2020|

As the holiday weekend approaches, the COVID-19 pandemic prevents us from enjoying activities normally associated with Independence Day. Instead of celebrating with picnics, parades and firework displays, we continue to physically distance ourselves from many friends and family. While this necessary precaution protects members of the pulmonary hypertension (PH) community from contracting the

Texas Support Group Leader Aims to Empower, Give Hope

2020-07-02T14:59:34-04:00July 2nd, 2020|

Estella Medina is a Pulmonary Hypertension Association (PHA) support group leader from El Paso, Texas. She shares her pulmonary hypertension (PH) journey from diagnosis to volunteerism. By Estella Medina I was a medical assistant until I had my first child in July 2000. Since then, I’ve been a stay-at-home mom. I have two children

Finding a Budget-Friendly Way to Brighten Future for PH Patients

2020-07-02T11:30:50-04:00July 2nd, 2020|

Ryan and Kenda James Ryan James joined the Pulmonary Hypertension Association (PHA)’s monthly giving program — the Sustainers Circle — in May because he felt a need to be more involved in causes he cared about. “I’ve started giving more money to charitable organizations since the COVID-19 pandemic started,” says

Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant

2020-07-02T12:17:56-04:00July 2nd, 2020|

“It was heartbreaking to leave our biggest supporters, but my family kept their faith strong.” By Jessica Romero I was born Oct. 26, 1983, at Denver General Hospital, now known as Denver Health, in Colorado. I was born three months prematurely and weighed 1 pound, 7 ounces. The Rocky Mountain News dubbed

Reconnect at PHA 2022. We’re going to Atlanta

2020-06-25T12:10:47-04:00June 25th, 2020|

As we look forward to a time when travel is safe again, the Pulmonary Hypertension Association (PHA) plans to welcome you in Atlanta. PHA 2022 International PH Conference and Scientific Sessions will be PHA’s most memorable event yet. Mark your calendars for this overdue opportunity to connect, celebrate survival and learn about advances in

Calling All PHashion Lovers: The Show Must Go Online

2020-06-25T10:18:10-04:00June 25th, 2020|

For years, the Pulmonary Hypertension Association (PHA)’s International PH Conference and Scientific Sessions has featured a fashion show to empower the pulmonary hypertension (PH) community. Attendees proudly flaunt or cleverly conceal the accoutrements of life with PH, transforming oxygen cannulas, mobility devices and medication pumps into symbols of strength and hope. Although COVID-19

PH Journey: A Patient and Nurse Practitioner Connection

2020-06-25T10:17:25-04:00June 25th, 2020|

Allison Dsouza (center) and Elizabeth Colglazier (left) like to say they “grew up together in PH.” Allison, a 22-year-old nursing student at the University of California-Los Angeles (UCLA), was diagnosed with pulmonary hypertension (PH) as a senior in high school. Elizabeth is a pediatric nurse practitioner at UCSF Benioff Children’s Hospital, where she specializes

Annual Gift Preserves Daughter’s Memory and Helps Other Patients

2020-06-25T10:16:13-04:00June 25th, 2020|

Randy Smith of Bloomington, Illinois, has been making donations to the Pulmonary Hypertension Association (PHA) for almost two decades in honor of his daughter, Ellen. Ellen was 13 years old when her primary care doctor heard a heart murmur. She was immediately referred to a cardiologist who diagnosed her with pulmonary hypertension (PH). “She

5 Great Stories Available Only in Pathlight, PHA’s Member Magazine

2020-06-18T13:43:49-04:00June 18th, 2020|

5 Great Stories Available Only in Pathlight, PHA’s Member Magazine The latest issue of Pathlight, the Pulmonary Hypertension Association (PHA)’s quarterly magazine, is hot off the press and in PHA members’ mailboxes. The June issue of Pathlight addresses many ways PHA has responded to the COVID-19 pandemic, as well as inspirational stories from the