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The National Heart, Lung, and Blood Institute’s (NHLBI’s) Division of Lung Diseases celebrated its 50th anniversary April 9 with an NIH Symposium on lung research followed by a reception at the Rayburn House Office Building on Capitol Hill, Washington, D.C. The anniversary’s theme is “Celebrating 50 Years of Progress in Pulmonary Science.” Staff from
Health care professionals can register today for the Pulmonary Hypertension Association’s (PHA’s) 2019 PH Professional Network (PHPN) Symposium Sept. 5-7 in Washington, D.C., and take advantage of their proximity to Capitol Hill during Advocacy Day on Sept. 5. Nurses, respiratory therapists and physicians can advocate for their patients and their practice in facilitated, small
National Donate Life Month continues to showcase the impact of registering to become an organ donor. This simple act can bring hope to patients on the National Transplant Registry waiting for an organ. This month, the Pulmonary Hypertension Association (PHA) has highlighted amazing stories of how organ donation provides recipients with a second chance
New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th International Society for Heart and Lung Transplantation Annual Meeting and Scientific Sessions in Orlando, Fla., by principal investigator Nicholas Hill, M.D., from Tufts University School of Medicine
The U.S. Food and Drug Administration (FDA) reports that the in-person registration for their April 29 public meeting “Patient Perspectives on the Impact of Rare Diseases” is full. However, interested persons can still register to attend via webcast. In addition, the FDA invites those interested in attending in-person to join the waitlist. The FDA
National Donate Life Month continues to celebrate the capacity we all possess to give life and hope by registering to become an organ donor. Every ten minutes, someone is added to the National Transplant Registry. Depending on the availability of necessary organs, wait times for patients on the list can be anywhere from days
The Pulmonary Hypertension Association (PHA) currently hosts five specific Facebook groups for people living with PH. These groups provide members with a supportive space to share stories, updates, goals, worries and hopes, and ask questions and affirm others on their journeys. PHA hosts the following groups: Long Term Thrivers – for people living with
April is National Donate Life Month and all month long the Pulmonary Hypertension Association (PHA) is bringing awareness to transplant recipients, individuals still on the waiting list for a transplant, donors and donor families and registered donors. The awareness month, established in 2003 by Donate Life America, supports organizations nationwide in their efforts to
The Pulmonary Hypertension Association’s (PHA’s) PH Care Centers (PHCC) Program recently accredited five new centers in support of its commitment to promoting quality care practices through PH center accreditation. Interest in PHA’s continuous quality improvement initiative remains high as PH programs seek accreditation as Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP).
Generic treprostinil, the pulmonary arterial hypertension--targeted therapy currently sold as Remodulin®, is now available for individuals using the medication delivered intravenously. Generic treprostinil injection is approved by the U.S. Food and Drug Administration for both intravenous and subcutaneous use. However, generic treprostinil for subcutaneous use is not available at this time due to the
