Featured Article

PHA Registry Enrolls 1,000 Patients Across U.S.

2019-08-22T16:03:09+00:00August 21st, 2019|

The Pulmonary Hypertension Association's (PHA's) patient registry reached a significant milestone this month with the enrollment of its 1,000th patient. The PHA Registry (PHAR) continues to expand its important role in improving pulmonary hypertension (PH) research, the patient experience and quality of care for those with pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary

Last Chance to Register Online for PHPN Symposium

2019-08-22T16:04:14+00:00August 21st, 2019|

The final countdown is on for the Pulmonary Hypertension Association’s PHPN Symposium, “Influencing the Practice: The Art and Science of Treating Pulmonary Hypertension.” It takes place from Sept. 5-7 in Washington, D.C. The Symposium is recognized as one of the premier networking and CME/CE-earning events for health care professionals who treat pulmonary hypertension

Join Declan and Haylee at Walk4Hay in St. Louis

2019-08-22T16:05:08+00:00August 21st, 2019|

Declan Powers and Haylee York met at the church their families attend. Beyond their play dates and day-to-day activities together, one special day for them is the annual Pulmonary Hypertension Association (PHA) Walk4Hay O2breathe event. It takes place on Sept. 21 in St. Louis to raise funds and awareness for pulmonary hypertension (PH). Haylee

PHA Facebook Groups Offer Connections, Support

2019-08-22T15:32:56+00:00August 21st, 2019|

The Pulmonary Hypertension Association’s (PHA’s) Facebook groups provide individuals affected by pulmonary hypertension (PH) with a supportive space to share their PH stories, updates, goals, concerns and hopes with those who understand their unique experiences. Lynn Bastian, moderator of the PHA Newly Diagnosed with PH group, says, “This year, I started moderating the Facebook

PHA on the Road – San Francisco Educates and Inspires

2019-08-15T17:34:19+00:00August 14th, 2019|

The PHA on the Road –San Francisco PH Patients and Families Education Forum drew almost 200 members of the pulmonary hypertension (PH) community to the San Francisco Westin Airport hotel for a day of education, inspiration and connecting. The event for individuals with PH and their families and caregivers featured informative sessions from local

Exercise and PH Topic of Newest Advances in Pulmonary Hypertension

2019-08-15T17:33:34+00:00August 14th, 2019|

Now online, Volume 18, Issue 2 of Advances in Pulmonary Hypertension, official journal of the Pulmonary Hypertension Association, is dedicated to the role of exercise in pulmonary hypertension (PH). “Exercise and PH: Nuts, Bolts and Clinical Uses” is guest edited by Ronald J. Oudiz, M.D., Director of the Liu Center for Pulmonary Hypertension at UCLA

Lee Ann and Chris Scott Walk in Philadelphia for Grandson Cayden

2019-08-15T17:35:16+00:00August 14th, 2019|

The Pulmonary Hypertension Association (PHA) will be hosting the annual Philadelphia O2breathe Walk on Saturday, Sept. 21, in Philadelphia, Pa. The walk allows individuals with pulmonary hypertension (PH), caregivers, friends, family and health care professionals to come together as a community for a fun and meaningful day. The goal of the walk is to

Volunteer Spotlight: Parent Telephone Support Group Facilitators

2019-08-15T17:31:58+00:00August 14th, 2019|

Jenn Garigen and Jane Northrop facilitate PHA’s monthly parent telephone support group, a place where parents of children with PH can connect and share experiences, challenges and triumphs. Jenn has been facilitating the telephone support group since it launched in early 2018. Jenn and Jane met at PHA’s International PH Conference and Scientific Sessions

CEO Update: Thanks to Our Volunteers Who Bring You PHA on the Road

2019-08-08T18:19:16+00:00August 8th, 2019|

Dear PHA Community, While we keep in regular touch with many in our Pulmonary Hypertension Association (PHA) PHamily online — through PHA News and other e-communications, our website, online support groups and our social media platforms — we are also highly committed to connecting with our Community in person – through more than 200