The No Surprises Act took effect Jan. 1, thanks to the pulmonary hypertension and rare disease communities. The law applies to people with employer-provided or individual health insurance, such as marketplace plans. It protects them from being billed for out-of-network care in situations where they can’t choose providers, such as emergency care.

New videos are available from the Pulmonary Hypertension Association about the process of developing safe, effective pulmonary hypertension treatments. The videos are designed to help viewers understand the process to bring new treatments to consumers.

This year is off to a difficult start for people who seek financial assistance for pulmonary hypertension (PH) treatment. For much of December and January, PH copay assistance grants have been closed. The Pulmonary Hypertension Association is monitoring the funds daily and will notify the community when the funds reopen.

Mark your calendars for new events to bring together the pulmonary hypertension community and raise money. The Pulmonary Hypertension Association is planning O₂breathe events to support its patient and caregiver services, education programs and research initiatives.

As the 117th session of Congress continues in 2022, the Pulmonary Hypertension Association (PHA) is keeping pressure on legislators to improve the lives of people affected by pulmonary hypertension. PHA’s advocacy can’t be successful without the PH community. Learn about three PHA legislative priorities and how to join the fight.

If you plan to attend the Pulmonary Hypertension Association (PHA) 2022 International PH Conference and Scientific Sessions, it’s a good time to join PHA or renew your membership. Membership is required to apply for scholarships and receive discounted conference rates. For patients and caregivers, the $15 annual PHA membership rate saves at least $85 in registration fees. PHA 2022 is set for June 10-12 in Atlanta.

The beginning of a new year is always an exciting time. For me, 2022 marks the start of my second year at the Pulmonary Hypertension Association (PHA). When I joined PHA, my No. 1 goal was to ensure that patient care was at the center of our activities.

Mesha Guilloty wasn’t diagnosed with pulmonary hypertension (PH) until a decade after her symptoms began. Mesha’s story originally appeared in the December 2021 issue of Pathlight, PHA’s member magazine.

As we prepare for PHA 2022 International PH Conference and Scientific Sessions, the Pulmonary Hypertension Association has updated its safety precautions related to the COVID-19 pandemic. The conference is set for June 10-12 at the Hyatt Regency in Atlanta.

View the Dec. 8 PH and HIV webinar, which addresses cardiovascular disease related to longer life expectancy among people with human immunodeficiency virus. Plus, get links to all 2021 webinars.