Featured Article

Turn Your Elected Officials Into PH Allies

2020-06-19T13:42:04-04:00June 18th, 2020|

Your senators and representatives become allies in the fight against pulmonary hypertension (PH) when they hear personal stories of people affected by the disease. Rep. Jamie Raskin (D-Maryland) became a PH champion after connecting with a patient and caregiver in his district. More recently, he shared this message with the PH community: “When

Discover Tactics to Manage Your Stress and Anxiety

2020-06-13T10:37:16-04:00June 11th, 2020|

The Pulmonary Hypertension Association hosted a June 12 virtual town hall on “Managing Stress and Anxiety” with psychiatrist Genie Priddy, social worker Marty Rice and PH patients and PHA support group leaders Joanne Sperando and Doug Taylor. Drawing on their professional and personal experiences, they discussed the mental health challenges of living with PH,

Get Help for Your Insurance Questions

2020-06-11T12:24:49-04:00June 11th, 2020|

The Pulmonary Hypertension Association (PHA) has overhauled its online Insurance and Treatment Access resources, previously known as the Online Insurance Guide. The section has easier navigation and an “Insurance 101” page about insurance types and how to choose coverage. It includes information on financial assistance, Medicare, Social Security Disability, troubleshooting insurance problems, oxygen access

Georgette Recognized a Rare Catch on the Volleyball Court. His Rare Diseases Spiked Later

2020-06-11T12:44:16-04:00June 11th, 2020|

“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean, live in Suffolk, Virginia. Together they have four children and a dog Annabell. Dean was diagnosed with scleroderma in 1997 and pulmonary arterial hypertension in

Help End Surprise Billing and Step Therapy

2020-06-11T13:30:36-04:00June 11th, 2020|

Thekla McGinley (right) shares PH materials with Anna Wilbourn in the district office of Rep. French Hill (R-Arkansas). As Congress debates what the next COVID-19 legislative package should include, the Pulmonary Hypertension Association urges the pulmonary hypertension (PH) community to contact its legislators. Ask lawmakers to end surprise medical billing and life-threatening

Is Your PH Caused by Chronic Lung Disease? See Our New Video

2020-06-11T14:02:59-04:00June 11th, 2020|

The Pulmonary Hypertension Association (PHA) recently released a new PHA Classroom video about Group 3 Pulmonary Hypertension. In the video, Shipla Johri, M.D., of Pulmonary Associates of Richmond, explains lung diseases that lead to high blood pressure in the lungs. Discover more PHA Classroom  videos and resources about PH diagnosis and treatment, living with

Why the Parents of an Adult PH Patient Support PHA

2020-06-04T10:22:32-04:00June 4th, 2020|

Aleksandra was a “beautiful, but sickly little blue baby” when her parents Svjetlana and Spaso Ivanko came to the United States in 1993 as refugees from Bosnia and Herzegovina. Doctors in the former Yugoslavia couldn’t figure out what was wrong. Soon after their arrival, Aleksandra was diagnosed with pulmonary arterial hypertension (PAH) and