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Two years ago, Gary Atkinson created a fundraising team for the Boston O2breathe Walk to honor his daughter’s memory. Gary, a former resident of West Townsend, Massachusetts, named the team “Because of Sarah” for his daughter, who was born with pulmonary hypertension and died almost 21 years ago at age 18.
How far we’ve come since our beginnings at a kitchen table! As the Pulmonary Hypertension Association celebrates its 30th anniversary, we are proud to unveil an interactive timeline that provides the shared history of our organization and the PH community. Although we’ve accomplished far more than “30 Milestones in 30 Years,” the timeline highlights major achievements over our first three decades.
The Pulmonary Hypertension Association is launching a monthly telephone support group for Spanish-speaking patients. The first call is at 8 p.m. April 28 EDT. Future calls will be at 8 p.m. on the fourth Wednesday of every month. Register or join by phone or computer. Email us or call 301-565-3004 ext. 777 (in English).
Join Colleen Brunetti, M.Ed., C.H.C, at 8 p.m. EDT Friday, April 9 for a conversation about grief, hope and pulmonary hypertension (PH). Colleen, the second patient to chair the Pulmonary Hypertension Association Board of Trustees, will share her perspective as a PH patient and leader. Bring your questions, share your stories and connect with the community.
Candace and her family became involved in the Detroit O2breathe Walk to give back and get more involved in the PH community. She met others with PH like me through the walk, giving her hope and people to relate to.
As Congress develops the FY 2022 federal budget, ask your members of Congress to increase funding for the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention. Pulmonary hypertension researchers depend on NIH grants to support their work.
The Pulmonary Hypertension Association recently published a new resource about persistent pulmonary hypertension of the newborn. The handout is intended to educate health care providers and parents about the condition, risks and treatment.
Join the Pulmonary Hypertension Association (PHA) at 3 p.m. Wednesday, March 31 for “PH and Your Child.” Eric Austin, M.D., of Vanderbilt Children’s Hospital, will lead the Facebook Live discussion about heritable pulmonary arterial hypertension, persistent pulmonary hypertension of the newborn and how pediatric PH is treated.
Applying for Social Security Disability Insurance can seem intimidating, but the Pulmonary Hypertension Association (PHA) walks you through the process. Discover tips for building your case, information about the appeals process and more in PHA’s online insurance guide. SSDI is a cash benefit that helps cover expenses for people who no longer can work because of a medical disability.
The study, “Redefining Pulmonary Hypertension through Pulmonary Vascular Disease Phenomics (PVDOMICS),” aims to identify biomarkers to improve PH diagnosis and treatment.
