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Your senators and representatives become allies in the fight against pulmonary hypertension (PH) when they hear personal stories of people affected by the disease. Rep. Jamie Raskin (D-Maryland) became a PH champion after connecting with a patient and caregiver in his district. More recently, he shared this message with the PH community: “When
When Victoria McVie was diagnosed with pulmonary hypertension (PH) at age 27, she was a newlywed and new homeowner. The PH diagnosis was a huge shock for the Monroe, Connecticut, woman, her husband Matt, and their family and friends. “She was just embarking on a new chapter of her life when she found out
The Pulmonary Hypertension Association hosted a June 12 virtual town hall on “Managing Stress and Anxiety” with psychiatrist Genie Priddy, social worker Marty Rice and PH patients and PHA support group leaders Joanne Sperando and Doug Taylor. Drawing on their professional and personal experiences, they discussed the mental health challenges of living with PH,
The Pulmonary Hypertension Association (PHA) has overhauled its online Insurance and Treatment Access resources, previously known as the Online Insurance Guide. The section has easier navigation and an “Insurance 101” page about insurance types and how to choose coverage. It includes information on financial assistance, Medicare, Social Security Disability, troubleshooting insurance problems, oxygen access
“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean, live in Suffolk, Virginia. Together they have four children and a dog Annabell. Dean was diagnosed with scleroderma in 1997 and pulmonary arterial hypertension in
Thekla McGinley (right) shares PH materials with Anna Wilbourn in the district office of Rep. French Hill (R-Arkansas). As Congress debates what the next COVID-19 legislative package should include, the Pulmonary Hypertension Association urges the pulmonary hypertension (PH) community to contact its legislators. Ask lawmakers to end surprise medical billing and life-threatening
When Melanie Brown faced a pulmonary hypertension (PH) diagnosis at age 22, she knew her family would be with her every step of the way. But doctors were stumped about why Melanie had a disease the family had never heard of, yet her identical twin Melissa Dale was healthy. Since then, Melanie, of Gladstone, Oregon,
The Pulmonary Hypertension Association (PHA) recently released a new PHA Classroom video about Group 3 Pulmonary Hypertension. In the video, Shipla Johri, M.D., of Pulmonary Associates of Richmond, explains lung diseases that lead to high blood pressure in the lungs. Discover more PHA Classroom videos and resources about PH diagnosis and treatment, living with
Aleksandra was a “beautiful, but sickly little blue baby” when her parents Svjetlana and Spaso Ivanko came to the United States in 1993 as refugees from Bosnia and Herzegovina. Doctors in the former Yugoslavia couldn’t figure out what was wrong. Soon after their arrival, Aleksandra was diagnosed with pulmonary arterial hypertension (PAH) and
Many of us are apart from our loved ones during the pandemic, but we’re not alone. Working together, we can improve life for those with pulmonary hypertension (PH) during the COVID-19 pandemic and beyond. Turn your members of Congress into champions in the fight against PH. Share your PH story with lawmakers through a
