Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

2018-04-20T19:57:22+00:00 April 26th, 2018|

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and a half, she was jumping on a trampoline, struggling to

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

2018-04-10T15:29:35+00:00 April 10th, 2018|

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the Pulmonary Hypertension Association (PHA)’s online support community for individuals and

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

2018-03-28T17:49:04+00:00 March 28th, 2018|

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ, where she taught physical education and health classes for 35 years, Sharyn Robbins was a role model for healthy, fit living. On top of teaching PE and Health classes, she coached girls’ field hockey, basketball, bowling and softball. During her

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

2018-03-21T14:07:01+00:00 March 21st, 2018|

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from city to city -- in her job as a client

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

2018-03-13T16:55:07+00:00 March 9th, 2018|

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

2018-03-05T21:59:52+00:00 March 5th, 2018|

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face. Like them, he walks there just about every morning, except the summer months, as the sun is rising, taking advantage of Tucson’s relatively cooler seasons.

The Barefoot Movement: PHighting for a Cure for Jackson

2018-01-12T15:59:50+00:00 January 11th, 2018|

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for pulmonary hypertension (PH). It’s December. I’m writing from the “comfort”

Strength of PHA Community Shines at 16th Annual Pulmonary Hypertension Awareness Luncheon of Michigan

2017-11-13T17:27:43+00:00 November 13th, 2017|

Members of the PHA community gathered in Ann Arbor for a statewide celebration of the Pulmonary Hypertension Awareness Month and the strength of the Michigan PH support network this past weekend. Bev Lipmyer, the Ann Arbor support group leader, organized the event with support from her family and fellow area support group leaders including Lynette

YouTube Sensation, Vocalist-Guitarist Chloe Temtchine Observes Her Disease’s Awareness Month With PHA Gift

2017-11-09T19:27:01+00:00 November 9th, 2017|

Nov. 9, 2017 – Pulmonary Hypertension Association (PHA) celebrity champion and YouTube sensation Chloe Temtchine is demonstrating that she has the right heart to give this November as she observes Pulmonary Hypertension Awareness Month.  In support of awareness month and the Pulmonary Hypertension Association (PHA)’s newly-launched year-long The Right Heart™ awareness campaign, Temtchine is

PHA Launches Pulmonary Hypertension Awareness Month Campaign

2017-11-08T20:17:27+00:00 November 3rd, 2017|

The Pulmonary Hypertension Association to Launch The Right Heart Campaign During Pulmonary Hypertension Awareness Month to Shed Light on Adults and Children Living With an Oft-Misdiagnosed, Life-threatening Lung Disease SILVER SPRING, Md. (Nov. 1, 2017) – The Pulmonary Hypertension Association (PHA) is launching The Right Heart™, a national campaign to make the public aware