CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

2018-03-13T16:55:07+00:00 March 9th, 2018|

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face. Like them, he walks there just about every morning, except the summer months, as the sun is rising, taking advantage of Tucson’s relatively cooler seasons.

2018-03-05T21:59:52+00:00 March 5th, 2018|

The Barefoot Movement: PHighting for a Cure for Jackson

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for pulmonary hypertension (PH). It’s December. I’m writing from the “comfort”

2018-01-12T15:59:50+00:00 January 11th, 2018|

Strength of PHA Community Shines at 16th Annual Pulmonary Hypertension Awareness Luncheon of Michigan

Members of the PHA community gathered in Ann Arbor for a statewide celebration of the Pulmonary Hypertension Awareness Month and the strength of the Michigan PH support network this past weekend. Bev Lipmyer, the Ann Arbor support group leader, organized the event with support from her family and fellow area support group leaders including Lynette

2017-11-13T17:27:43+00:00 November 13th, 2017|

YouTube Sensation, Vocalist-Guitarist Chloe Temtchine Observes Her Disease’s Awareness Month With PHA Gift

Nov. 9, 2017 – Pulmonary Hypertension Association (PHA) celebrity champion and YouTube sensation Chloe Temtchine is demonstrating that she has the right heart to give this November as she observes Pulmonary Hypertension Awareness Month.  In support of awareness month and the Pulmonary Hypertension Association (PHA)’s newly-launched year-long The Right Heart™ awareness campaign, Temtchine is

2017-11-09T19:27:01+00:00 November 9th, 2017|

PHA Launches Pulmonary Hypertension Awareness Month Campaign

The Pulmonary Hypertension Association to Launch The Right Heart Campaign During Pulmonary Hypertension Awareness Month to Shed Light on Adults and Children Living With an Oft-Misdiagnosed, Life-threatening Lung Disease SILVER SPRING, Md. (Nov. 1, 2017) – The Pulmonary Hypertension Association (PHA) is launching The Right Heart™, a national campaign to make the public aware

2017-11-08T20:17:27+00:00 November 3rd, 2017|

CEO Update: PHA Celebrates Awareness Month With Launch of The Right Heart Campaign

Dear PH Community, Heading into November, we at PHA are gearing up for Pulmonary Hypertension Awareness Month. This is an exciting and important month for our community as those living with PH and their loved ones and health care professionals join forces to raise awareness of pulmonary hypertension (PH). This November, the Pulmonary Hypertension

2017-10-27T18:01:08+00:00 October 27th, 2017|

2017 PH Professional Network (PHPN) Symposium Brings PH-Treating Professionals Together in Washington, D.C. Metro Area

The 2017 PHPN Symposium, Navigating the Future: Individualizing Patient Care in the Face of Increasingly Complex Treatment Options, was held in the Washington, D.C., metropolitan area on Oct. 5-7, 2017. Health care professionals gathered to learn, share and connect through general and breakout sessions, exhibits and research posters. On Thursday, Oct. 5, attendees took to Capitol

2017-10-13T14:51:01+00:00 October 9th, 2017|

Family Rallies Around Child Living With PH: Everybody Deserves the Dream of “When I Grow Up…”

In Haylee's first year of life she was on the exact growth chart as her older sister, but was hit with several respiratory illnesses. As she grew older, some of her milestones were delayed and her family began to notice that she would lose her breath while playing. At her three-year checkup, her doctor

2017-10-04T19:12:35+00:00 October 4th, 2017|

CEO Update: 2017 Strategic Plan Accomplishments

Dear Community Member, Throughout the past year, the Pulmonary Hypertension Association (PHA) Board of Trustees, with input from the pulmonary hypertension (PH) Community, has developed a strategic plan for PHA that will guide our focus and activities as we work to support people living with PH, their caregivers and healthcare providers, and researchers whose

2017-08-24T21:23:10+00:00 August 24th, 2017|