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Clinicians Explore Mindfulness as a Possible Benefit to Complement Pulmonary Hypertension Treatments

2020-12-21T15:22:24-05:00April 6th, 2018|

Note: PHA cautions PH patients to check with their doctor before taking up yoga, meditation and other mindfulness practices. Pulmonary hypertension (PH) is a progressive disease that affects the heart and the lungs (Lai, Potoka, Champion, Mora & Gladwin, 2014). Patients with this disease are treated to help control the pulmonary pressures and prevent

PHA Wants to Hear from Kids with PH, Parents and Providers

2020-12-21T15:22:25-05:00April 6th, 2018|

The Pulmonary Hypertension Association (PHA) launched a survey of the pediatric PH community today to learn more about the needs of children with PH, their parents and providers. This brief survey closes on Friday, April 20, and should be taken by any member of the pediatric PH community. In 2016, PHA conducted a community-wide survey

Pulmonary Hypertension Association Registry Gives People Living with Deadly Lung Disease a Chance to Advance Patient Care

2020-12-21T15:21:19-05:00March 26th, 2018|

Silver Spring, Md. (March 23, 2018) – The Pulmonary Hypertension Association (PHA) patient registry is giving more than 500 people with two deadly, often-misdiagnosed breathing diseases a way to advance patient care – for themselves and others. The national nonprofit established the PHA Registry (PHAR) in 2015 as part of its PH Care Center (PHCC)

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

2020-12-21T15:37:24-05:00March 7th, 2018|

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

New Videos Answering Frequently Asked Questions About PH Published on PHA’s e-Learning Platform

2020-12-21T15:21:24-05:00March 1st, 2018|

Seven new videos — four in English and three in Spanish — are now live on PHA Classroom. We invite you to view these newly-released “Quick Clips” to get answers to some of the most frequently asked questions that PHA receives from the PH community. PH-treating health care professionals provide answers to questions on

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

2020-12-21T15:21:25-05:00March 1st, 2018|

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level is $9,000 per year. Patient must be insured by Medicare, Medicaid, or Military Benefits and insurance must cover the medication for which patient seeks assistance. Learn

Assessing Risk in Patients with Pulmonary Arterial Hypertension

2020-12-21T15:21:25-05:00March 1st, 2018|

Although the past decades of discovery and research have yielded drugs that improve prognosis and quality of life, the long-term survival rates for people living with PAH is still unacceptably low. A recent editorial offers thoughts on assessing risk for people living with this disease. by Phyllis Hanlon, Contributing Writer   In the past decades of

PHA to Introduce Newly Redesigned PH Resource at 6th World Symposium on Pulmonary Hypertension

2020-12-21T15:20:16-05:00February 23rd, 2018|

The 6th World Symposium on Pulmonary Hypertension will take place in Nice, France from Feb. 27 to March 1, 2018. This symposium, held every 5 years, is a time for global leaders in PH to review the major advances in the disease, analyze the evidence in studying and treating PH, and evaluate gaps of

PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease

2020-12-21T15:20:17-05:00February 16th, 2018|

Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease are getting care from clinicians who specialize in their often-misdiagnosed condition. Pulmonary hypertension (PH), also known as high blood pressure of the lungs, affects adults

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