Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known as high blood pressure of the lungs. To help

2018-03-13T19:40:26+00:00 March 13th, 2018|

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

2018-03-13T16:55:07+00:00 March 9th, 2018|

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

2018-03-07T20:01:18+00:00 March 7th, 2018|

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face. Like them, he walks there just about every morning, except the summer months, as the sun is rising, taking advantage of Tucson’s relatively cooler seasons.

2018-03-05T21:59:52+00:00 March 5th, 2018|

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best life with PH. By Raele Robison I remember the way that the paper on the examination table kept making a

2018-03-01T18:02:07+00:00 March 1st, 2018|

New Videos Answering Frequently Asked Questions About PH Published on PHA’s e-Learning Platform

Seven new videos — four in English and three in Spanish — are now live on PHA Classroom. We invite you to view these newly-released “Quick Clips” to get answers to some of the most frequently asked questions that PHA receives from the PH community. PH-treating health care professionals provide answers to questions on

2018-03-01T19:23:33+00:00 March 1st, 2018|

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level is $9,000 per year. Patient must be insured by Medicare, Medicaid, or Military Benefits and insurance must cover the medication for which patient seeks assistance. Learn

2018-03-01T16:25:51+00:00 March 1st, 2018|

Assessing Risk in Patients with Pulmonary Arterial Hypertension

Although the past decades of discovery and research have yielded drugs that improve prognosis and quality of life, the long-term survival rates for people living with PAH is still unacceptably low. A recent editorial offers thoughts on assessing risk for people living with this disease. by Phyllis Hanlon, Contributing Writer   In the past decades of

2018-03-01T15:39:37+00:00 March 1st, 2018|

PHA Supports Rare Disease Day with Social Media Awareness Push

Silver Spring, Md. (February 22, 2018) -- The Pulmonary Hypertension Association (PHA) joins global partners, Feb. 28, Rare Disease Day®, to bring attention to the hopes and needs of people living with conditions like pulmonary hypertension (PH), an often misunderstood and misdiagnosed deadly disease. PHA will use social media to also highlight data indicating

2018-02-26T15:39:19+00:00 February 23rd, 2018|

PHA to Introduce Newly Redesigned PH Resource at 6th World Symposium on Pulmonary Hypertension

The 6th World Symposium on Pulmonary Hypertension will take place in Nice, France from Feb. 27 to March 1, 2018. This symposium, held every 5 years, is a time for global leaders in PH to review the major advances in the disease, analyze the evidence in studying and treating PH, and evaluate gaps of

2018-02-23T14:58:55+00:00 February 23rd, 2018|