PHA’s Telephone Support Groups: Support Is Just a Call Away

2019-01-10T22:28:43+00:00 January 10th, 2019|

The Pulmonary Hypertension Association’s (PHA’s) telephone support groups offer connection, information and inspiration to community members wherever they are. Brian, the caregiver for his wife Charlotte, who has pulmonary hypertension (PH), never misses his monthly caregiver support group. Since it meets by phone, it is easier for him to maintain the perfect attendance record

Colleen Brunetti: Reflections on the Power of Telling Your Story

2018-11-29T21:50:21+00:00 November 29th, 2018|

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we stand on the shoulders of great leaders who have come

PH Didn’t Keep Aunt Pat From Her Mission – to Help in Any Way She Could

2018-11-09T22:40:21+00:00 November 1st, 2018|

“I want others to stay positive and know that life is precious. Take time to savor the small things. Enjoy one another. Love others. Be kind.” – Nicole Lowe By: Nicole Lowe “My aunt was diagnosed with pulmonary arterial hypertension (PAH) in late July 2009. Doctors in Dayton, Ohio could not treat

PHA Recognizes Respiratory Care Week

2018-10-19T21:08:49+00:00 October 19th, 2018|

In recognition of Respiratory Care Week Oct. 21-27, the Pulmonary Hypertension Association (PHA) interviewed a registered respiratory therapist and certified pulmonary function technician. Tonya Zeiger, R.R.T., CPFT, is the pulmonary hypertension (PH) coordinator and associate in pulmonary medicine at the Mayo Clinic’s Jacksonville, Fla. campus, a PHA-accredited Center of Comprehensive Care (CCC). In this interview,

It’s No Trick: These Kids with PH Are a Treat

2018-10-19T21:07:10+00:00 October 19th, 2018|

Pulmonary hypertension (PH) is not just a disease for adults, so the Pulmonary Hypertension Association (PHA) works hard to support children with PH and their families. In 2017, PHA established a Pediatric Task Force, which surveyed 200 patients, families and providers to learn more about their needs and concerns. PHA also launched a comprehensive

PHA on the Road – Long Beach Welcomes More Than 200 PH Community Members

2018-10-05T20:42:05+00:00 October 5th, 2018|

The Pulmonary Hypertension Association (PHA) hosted a PHA on the Road: PH Patients and Families Education Forum Saturday, Sept. 29, in Long Beach, Calif. The forum brought together people with pulmonary hypertension (PH), their caregivers, families and friends, and PH-treating health care professionals for a day of learning and networking. The forum’s opening session