Tampa Bay PHA Support Group Shares Experience Weathering Hurricane Irma

2018-09-14T20:46:18+00:00 September 14th, 2018|

As the 2018 hurricane season begins, the PHA community reflects on the anniversary of last year’s terrible storms with an empowering tale of community, resourcefulness and courage. By Jodi Hamel and Carolyn Sheehy (aka. Peas and Carrots) Tampa Bay PHA support group leaders As we write this, it is exactly one year to the

Examination of PHAR Data Shows Few Patients are Referred to Palliative Care

2018-08-31T15:42:34+00:00 August 31st, 2018|

Although treatment options for WHO Group 1 PH (pulmonary arterial hypertension, or PAH) have increased over the past few decades, symptom severity and quality of life still impose significant burden on patients. Palliative care – often confused with hospice care – is goal-oriented care for patients with chronic illnesses that help to balance life-saving

Friends and Funds for PH at the Heart of the Nashville PHun Walk

2018-08-24T16:22:48+00:00 August 24th, 2018|

“We want to help PHind a cure for PH!” says Evette Britton, Nashville-area support group leader and event organizer for the Nashville PHun Walk, which will take place September 29 at Pinkerton Park in Franklin, Tenn. Now in its third year, Evette’s focus is on creating a positive, energetic day so that everyone in

Puttin’ PHore Poots Grows From Desire to Help People With PH Fulfill Lifelong Dreams

2018-08-17T21:49:16+00:00 August 17th, 2018|

The Sixth Annual Puttin’ PHore Poots Golf Tournament and Fundraising Walk will take place Saturday, Sept. 15, in Bloomington, Minn. In August 2011, the Warnbergs received the news that no parent wants to hear; their 21-year-old daughter, Chelsea, had Idiopathic Pulmonary Arterial Hypertension (IPAH). At the time, Chelsea was about to begin her senior

Latest PH Roundtable Focuses on Palliative Care, the Misconceptions and Benefits

2018-08-17T21:44:59+00:00 August 17th, 2018|

The latest issue of Advances in Pulmonary Hypertension focuses on palliative care as an integral component of treating people with pulmonary hypertension (PH). Many people have the misconception that palliative care relates solely to hospice care, which is end of life care and only one part of palliative care. Palliative care, named from the

PHA Provides Tools to Help Parents and Children With PH Prepare for New School Year

2018-08-10T21:00:50+00:00 August 10th, 2018|

The Pulmonary Hypertension Association (PHA) offers comprehensive resources for parents of children living with pulmonary hypertension (PH) to prepare for back-to-school season. These tools provide help for parents of children with PH to educate school administrators, teachers and school nurses about their child’s physical limitations, as well as safety precautions for them to be safe

Fatigue: Under-Recognized and Unaddressed in PH

2018-08-10T21:01:47+00:00 August 10th, 2018|

by Phyllis Hanlon, Contributing Writer Symptoms that are commonly experienced by people with pulmonary hypertension (PH) — such as shortness of breath, light-headedness, chest pain, swelling and fatigue — can negatively impact their quality of life. Fatigue – lack of energy or an increased sense of effort with routine tasks – is reported in

Learning to Live Your Best Life: Join PHA on the Road in 2018

2018-08-03T21:26:13+00:00 August 3rd, 2018|

The Pulmonary Hypertension Association (PHA) announces the dates and cities for two PHA on the Road: PH Patients and Families Education Forums for 2018. Forums are scheduled in Long Beach, Calif., September 29, and Milwaukee, October 27. PHA on the Road, a program of the PHA Medical Education Fund,* provides a unique opportunity for

United Therapeutics Receives FDA Approval for the Implantable System for Remodulin®

2018-08-03T21:23:00+00:00 August 3rd, 2018|

United Therapeutics Corporation announced July 31 that it had received approval from the Food and Drug Administration (FDA) for Remodulin® (treprostinil) to be used in the Implantable System for Remodulin® for patients with WHO Group 1 PH (pulmonary arterial hypertension, or PAH). Development of the Implantable System for Remodulin® resulted from a collaboration between United