2018 PHA Outstanding Members Awards Presented During Conference

2018-07-13T19:33:58+00:00 July 12th, 2018|

The Pulmonary Hypertension Association (PHA) would not be able to achieve its work without the dedication and excellence of the entire PH community. The individuals recognized during a June 30 awards ceremony at PHA’s 2018 International PH Conference and Scientific Sessions have exemplified dedication and service to the community and the association. They have

Rare Disease Caregiving Report Paints a Portrait of PH Caregivers in the U.S.

2018-07-06T21:06:10+00:00 July 6th, 2018|

This article by Mike Knaapen, Director, Patient and Caregiver Programs and Lisa Weber, Vice President, Greenwald and Associates, first appeared in Issue 2 2018 of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. It is well known

Post-Transplant Life is an Unexpected Adventure

2018-07-11T20:00:47+00:00 June 27th, 2018|

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference I’ve attended, and the first I’ll attend without pulmonary arterial

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

2018-06-22T18:27:02+00:00 June 20th, 2018|

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I

Switching Gears, a Different Kind of Support Group Leader

2018-06-15T20:37:12+00:00 June 14th, 2018|

This article by Emily K. Outtarac, Administrative Assistant, Medical Services, first appeared in Issue 1 2018 of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. The PHA Support Group program offers in-person meetings to exchange tips, learn

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00 May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and

Study Looks at HIV and Pulmonary Hypertension

2018-05-03T17:28:11+00:00 May 3rd, 2018|

by Phyllis Hanlon, Contributing Writer   Pulmonary hypertension, or high blood pressure in the lungs, has been associated with a number of different conditions including heart disease, liver disease, lupus and scleroderma. Research indicates that people with HIV are also at risk for developing PH, a serious condition that affects the heart and lungs. A 2017

World PH Day, May 5, Reminds Us the PH Community is Global: Q&A With Dr. Jeffrey Sager

2018-05-09T20:24:38+00:00 May 3rd, 2018|

In honor of World PH Day, the  Pulmonary Hypertension celebrates the work of individuals and organizations that work globally to advance PH care, research and treatment access. As part of PHA’s new PHour Questions feature in its Pathlight membership quarterly magazine, the June issue will highlight Dr. Jeffrey Sager, director of the Pulmonary Hypertension

World PH Day Toolkit with Resources, Templates and Memes

2018-04-27T15:46:42+00:00 April 27th, 2018|

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will share photos, stories and social media messages linked by an image of two linked hearts, the 2018 World PH Day