PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

PHA Registry Expands Access to PH Data Service

2018-12-06T18:43:48+00:00December 6th, 2018|

A new Data Analysis Service launched this week by the Pulmonary Hypertension Association (PHA) enables researchers and organizations not involved in PHA’s Pulmonary Hypertension Association Registry (PHAR) to use data from the multi-center patient registry. PHAR is part of an innovative and critical PHA initiative to improve care for persons with pulmonary hypertension (PH),

Researchers at Vanderbilt Publish First Study from PHA’s 2018 Research Room

2018-11-29T21:44:15+00:00November 29th, 2018|

Using fitness devices and cell phones, pulmonary hypertension (PH) researchers compared the physical activity of individuals with and without pulmonary arterial hypertension (PAH) in the first research study published using data collected through the Research Room at the Pulmonary Hypertension Association’s (PHA’s) 2018 International PH Conference and Scientific Sessions in Orlando, Fla. By collecting

PHantastic Response to Giving Tuesday Campaign

2018-11-29T21:45:42+00:00November 29th, 2018|

Two families offered a match for this week’s 2018 Giving Tuesday campaign, helping boost the Pulmonary Hypertension Association’s (PHA) total donations to a record-breaking $61,882 for the annual giving event. The Doerge and Blesi families, who were first touched by pulmonary hypertension (PH) when daughter Zoe Doerge was diagnosed, offered a $17,000 match in

PH Community Steps Up to Increase Pulmonary Hypertension Awareness

2018-11-29T21:47:03+00:00November 29th, 2018|

The Pulmonary Hypertension Association’s (PHA’s) The Right Heart campaign delivered a big impact during Pulmonary Hypertension Awareness Month, thanks to the efforts of the PH community. With the help of individuals with PH, families, caregivers, volunteers and health care providers, PHA raised awareness of PH in many ways, including special events and support group

Pulmonary Hypertension Awareness Month Announced in Congress

2018-11-29T21:48:31+00:00November 29th, 2018|

U.S. Rep. Jamie Raskin (D-MD), submitted remarks earlier this month recognizing November as Pulmonary Hypertension Awareness Month. His full comments, included below, informed Congress about the severity of pulmonary hypertension and the importance of prompt diagnosis, effective treatment and a cure. HON. JAMIE RASKIN of Maryland in the house of representatives Friday, November 16,

Colleen Brunetti: Reflections on the Power of Telling Your Story

2018-11-29T21:50:21+00:00November 29th, 2018|

My name is Colleen Brunetti, and I am your Pulmonary Hypertension Association (PHA) Board of Trustees chair-elect. I’m the first patient to serve in this volunteer position in many years, and the enormity of that honor does not escape me. Truly, at PHA, we stand on the shoulders of great leaders who have come

CTEPH Awareness Day Campaign Increases Overall PH Recognition

2018-11-16T23:14:53+00:00November 16th, 2018|

The Pulmonary Hypertension Association (PHA) recognized Wednesday, Nov. 14, as CTEPH Awareness Day and responses show an eagerness to learn about chronic thromboembolic pulmonary hypertension (CTEPH). Social media graphics and messages were shared widely, creating an aura of enthusiasm around the day. PHA fed the excitement by providing a myriad of ways to engage and

Common Antacids: Beneficial for Patients with Pulmonary Hypertension?

2018-11-16T23:15:42+00:00November 16th, 2018|

by Phyllis Hanlon, Contributing Writer Certain over-the-counter (OTC) medications such as Pepcid®, Tagamet® and Zantac® are used to treat ulcers and excess stomach acid. These drugs, technically known as histamine-2 (H2) receptor antagonists, suppress stomach acid, which can be caused by certain foods, caffeine, allergens, insulin and other substances. A recent analysis shows these common

Pulmonary Hypertension Community Raises Crucial Funds in 2018 to Support PHA’s Mission

2018-11-16T23:13:36+00:00November 16th, 2018|

More than 12,500 volunteers throughout the country helped organize 49 events to raise funds that support the mission of the Pulmonary Hypertension Association (PHA). Nearly half of these events were part of PHA’s national O2 breatheTM program, our signature fundraising events. The O2 breatheTM program is supported through the generosity of our national sponsors: