PHANews.org, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

Riders Rally in Memory of Jonah

2018-07-13T19:37:46+00:00 July 13th, 2018|

More than 500 people gathered June 23 in Murfreesboro, TN, to honor the memory of Jonah Guider at a fundraising event unlike any other Pulmonary Hypertension Association (PHA) event across the country. This year’s “RideJonahRide” event, one of 20 PHA O2Breathe (pronounced: oh-to-breathe) events that are supported by PHA’s national sponsors, Actelion Pharmaceuticals Ltd.,

2018 PHA Outstanding Members Awards Presented During Conference

2018-07-13T19:33:58+00:00 July 12th, 2018|

The Pulmonary Hypertension Association (PHA) would not be able to achieve its work without the dedication and excellence of the entire PH community. The individuals recognized during a June 30 awards ceremony at PHA’s 2018 International PH Conference and Scientific Sessions have exemplified dedication and service to the community and the association. They have

Dr. Fagan Assumes PHA Board of Trustees’ Helm

2018-07-06T21:07:22+00:00 July 6th, 2018|

Karen A. Fagan, M.D., began her term as Pulmonary Hypertension Association (PHA) Board of Trustees (BOT) chair during a July 1 ceremony at PHA’s 2018 International PH Conference and Scientific Sessions in Orlando, Fla. Dr. Fagan is a professor of medicine and pharmacology, chief of the Division of Pulmonary and Critical Care Medicine and

Rare Disease Caregiving Report Paints a Portrait of PH Caregivers in the U.S.

2018-07-06T21:06:10+00:00 July 6th, 2018|

This article by Mike Knaapen, Director, Patient and Caregiver Programs and Lisa Weber, Vice President, Greenwald and Associates, first appeared in Issue 2 2018 of Pathlight magazine. Become a member of PHA to receive this quarterly publication full of patient profiles, medical information and tips for living with pulmonary hypertension. It is well known

Post-Transplant Life is an Unexpected Adventure

2018-07-11T20:00:47+00:00 June 27th, 2018|

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference I’ve attended, and the first I’ll attend without pulmonary arterial

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

2018-06-22T18:27:02+00:00 June 20th, 2018|

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I

Conference Speaker Spotlight: Norman Stockbridge, M.D., Ph.D.

2018-06-20T16:00:31+00:00 June 20th, 2018|

The Pulmonary Hypertension Association (PHA) Scientific Sessions Planning Committee has announced Norman Stockbridge, M.D., Ph.D., director of the Division of Cardiovascular and Renal Products (DCaRP) in the Center for Drug Evaluation and Research of the Food and Drug Administration (FDA), as a speaker at PHA’s 2018 International PH Conference and Scientific Sessions. DCaRP is responsible

Conference Speaker Spotlight: Sagar Lonial, M.D., FACP

2018-06-15T20:23:38+00:00 June 15th, 2018|

Prompted by recent successes in the field of oncology in precision medicine, the Pulmonary Hypertension Association’s (PHA) Scientific Sessions Committee has invited Sagar Lonial, M.D., FACP, an internationally-recognized leading authority in multiple myeloma treatment and research, to provide his insight in the field of PH to health care providers. Dr. Lonial’s research has focused

PHA-Funded Research Discovers Link Between Cancer Protein and Fibrosis in PAH Patients

2018-06-15T20:26:20+00:00 June 15th, 2018|

A new molecular mechanism in the development of World Health Organization (WHO) Group 1 pulmonary hypertension (PH) – pulmonary arterial hypertension (PAH) – has been discovered by investigators from the Brigham and Women’s Hospital, through work funded in part by the Pulmonary Hypertension Association (PHA). NEDD9, a protein that was discovered in 1992 and has