Please join PHA in observing World Pulmonary Hypertension Day on May 5. World PH Day is a global effort to raise PH awareness. Led by PHA Europe, this year’s campaign “Sometimes it’s Pulmonary Hypertension,” draws attention to the challenges of getting an accurate diagnosis. The campaign brings together people from around the world to shed light on the frustrating, frightening journey patients experience before hearing “It’s PH.”

More than 80 people attended PHA’s PH Community Workshop March 22 in Charlotte, North Carolina. Diane Ramirez, who had PH for 36 years before a heart-lung transplant, shared her story in the keynote address. “Meeting and hearing from Diane was inspiring,” says Barbara Stubbs, leader of the PHA Upstate South Carolina Support Group. “Her enthusiasm for life was contagious.”

Tiffani Brown was dismayed to give up water activities when she started subcutaneous treprostinil therapy in 2020. Since then, she worked with her pulmonary hypertension nurse Debbie Kittel to find a way to keep her site dry while swimming and showering.

Today -- April 10 – is your last chance to sign up for May 7 virtual advocacy visits. The virtual advocacy visits mark World PH Day by educating lawmakers about pulmonary hypertension.