PHA News is the Pulmonary Hypertension Association’s biweekly digital newsletter. Find up-to-date news, first person stories, event listings and information about PHA resources people with pulmonary hypertension, caregivers, health care professionals and supporters.

Join Us in Celebrating World PH Day

2025-04-23T17:35:00-04:00April 23rd, 2025|

Please join PHA in observing World Pulmonary Hypertension Day on May 5. World PH Day is a global effort to raise PH awareness. Led by PHA Europe, this year’s campaign “Sometimes it’s Pulmonary Hypertension,” draws attention to the challenges of getting an accurate diagnosis. The campaign brings together people from around the world to shed light on the frustrating, frightening journey patients experience before hearing “It’s PH.”

Volunteer Takes on International Care Disparities

2025-04-23T17:35:58-04:00April 23rd, 2025|

As the moderator of a PHA Facebook group, Janessa Curnow, 38, receives requests to join the group from people all over the world. For World Pulmonary Hypertension Day on May 5, Curnow shares what she’s learned from the international PH community. Curnow leads the PHA Young Adult Support Group and previously led the PHA Grand Rapids Support Group in Michigan.

Piper With PH Marches Onward

2025-04-24T16:36:33-04:00April 23rd, 2025|

Carole Doody's passion, playing the bagpipes, saved her life. When she no longer could play the right tones or march, Doody knew something was wrong. Fifteen years after her PH diagnosis, the retired speech-language pathologist volunteers for PHA. She shares her story in honor of National Volunteer Week, which wraps up April 26.

Workshop Speakers, Support Groups Inspire Attendees

2025-04-23T17:37:00-04:00April 23rd, 2025|

More than 80 people attended PHA’s PH Community Workshop March 22 in Charlotte, North Carolina. Diane Ramirez, who had PH for 36 years before a heart-lung transplant, shared her story in the keynote address. “Meeting and hearing from Diane was inspiring,” says Barbara Stubbs, leader of the PHA Upstate South Carolina Support Group. “Her enthusiasm for life was contagious.”