PHA News is the Pulmonary Hypertension Association’s biweekly digital newsletter. Find up-to-date news, first person stories, event listings and information about PHA resources people with pulmonary hypertension, caregivers, health care professionals and supporters.

CEO Update: Join Us for World PH Day 2023

2023-04-27T09:58:37-04:00April 26th, 2023|

Please join the Pulmonary Hypertension Association and more than 80 other patient organizations next week in observing World PH Day. Since 2012, the global pulmonary hypertension (PH) community has come together May 5 to bring attention to this rare lung disease. Whether you have PH, care for someone with PH or are a health care professional, please help us mark this important day.

Update Your Calendar With New PHA 2024 Dates

2023-04-27T11:05:43-04:00April 26th, 2023|

You might have noticed that we’ve moved the date for PHA 2024 International PH Conference and Scientific Sessions. The conference is now set for Aug. 15-18, 2024, at the JW Marriott in Indianapolis. The new date allows the Scientific Sessions to focus on new guidance and findings from the seventh World Symposium on Pulmonary Hypertension (PH).

What to Do When You’re Running Out of Medication

2023-05-01T10:43:07-04:00April 26th, 2023|

Like many in the pulmonary hypertension community, you know the stress of waiting for prescription refills and worrying whether they will arrive in time. Although specialty pharmacies try to avoid medication disruptions, errors sometimes happen. The Pulmonary Hypertension Association (PHA) asked several specialty pharmacies about what to do when you’re at risk of missing a dose or need an early refill. Visit the new resource page in PHA’s Insurance Guide.

PHA Journal Addresses New PH Guidelines and Promising New Treatments

2023-04-27T11:07:01-04:00April 26th, 2023|

The latest edition of Advances in Pulmonary Hypertension addresses basic and clinical pulmonary hypertension (PH) research. Advances is the Pulmonary Hypertension Association’s quarterly peer-reviewed clinical journal. This issue also covers new PH guidelines and includes all abstracts from PHA 2022 International PH Conference and Scientific Sessions.

5 Tips To Find the Right Summer Camp for Your Child with PH

2023-04-27T11:07:29-04:00April 26th, 2023|

Is your child or teen with pulmonary hypertension dreaming of meeting new friends while participating in fun outdoor activities? Now is the time to look into camps that accommodate children with special needs – and sign yours up. Check out our tips to find a camp with trained health care professionals that meets your child’s interests.

PH Professionals: Learn Best Risk Assessment Practices at Symposium

2023-04-27T11:09:09-04:00April 26th, 2023|

Discover new ideas for pulmonary arterial hypertension (PAH) risk assessment at the Pulmonary Hypertension Association’s PH Professional Network Symposium. The Sept. 28-30 event in Arlington, Virginia, will feature a session on “Balancing the Art and Science of PAH Risk Stratification,” presented by Susanne McDevitt, D.N.P., ANCP-BC and Melisa Wilson, D.N.P., ACNP, APRN-BC. Learn more about the session and how to submit a late-breaking abstract.

What’s the State of PH? Find Out in the New Issue of Pathlight

2023-04-13T13:24:59-04:00April 10th, 2023|

The spring 2023 issue of Pathlight examines the state of pulmonary hypertension (PH). Our cover story details how artist Suzanne Miller manages her PH by focusing on mind and body wellness. The issue also includes an in-depth look at new guidelines for PH treatment and diagnosis. Pathlight is an exclusive benefit of Pulmonary Hypertension Association membership.

Be Like Kevin. Host a Fundraising Event in Your Community

2023-04-24T09:44:23-04:00April 10th, 2023|

Kevin Heyen, vice president of development and industry relations for the Pulmonary Hypertension Association, recently stepped behind the bar in his hometown to support PHA. Kevin’s celebrity bartender stint was an example of creative ways the PHA community raises money to support pulmonary hypertension research and awareness.