The Pulmonary Hypertension Association (PHA) is pleased to announce Paul Crister, M.D., Ph.D., as the recipient of the 2022 Pediatric PH Research Award. The research award supports research that could have a great impact toward advancing the field of PH pediatrics.
Your PHA Registry (PHAR) team may change over time with new staff coming onboard and others rotating off. Here are three tips for a smooth transition.
Discover active research funding opportunities from the National Institutes of Health, The International Society for Heart and Lung Transplantation and the American Heart Association.
There are now 11 peer-reviewed publications using PHA Registry data. Read recent publications.
Enrollment in the Pulmonary Hypertension Association Registry (PHAR) has surpassed 2,000 participants. The registry includes data from patients at more than 80 PHA-accredited PH Care Centers. The data represents demographic characteristics, diagnosis and treatment information, and quality-of-life metrics.
Join PHA at 3:30 p.m. Wednesday, Aug. 18 for “A Conversation About the PHA Registry.” Dan Grinnan, M.D., will speak with his patient, Shirl Rhodes, who is enrolled in the PHAR. Hear what it’s like to participate and how PHAR supports PH research.
Although treatment options for WHO Group 1 PH (pulmonary arterial hypertension, or PAH) have increased over the past few decades, symptom severity and quality of life still impose significant burden on patients. Palliative care – often confused with hospice care – is goal-oriented care for patients with chronic illnesses that help to balance life-saving
American Thoracic Society 2017 International Conference May 19-24, 2017 - Washington, DC Poster title: Determinants of Health Related Quality of Life in PAH: Data from the Pulmonary Hypertension Association Registry Authors: Roham T. Zamanian, David Badesch, Todd M. Bull, Teresa DeMarco, Jeremy Feldman, Jeffrey Fineman, Hubert J. Ford, Michael P. Gray, Daniel Grinnan, James R.
American Thoracic Society 2017 International Conference May 19-24, 2017 - Washington, DC Poster title: Characterization of Hispanics with Pulmonary Hypertension in the US: The Pulmonary Hypertension Association Registry Authors: Vinicio De Jesus Perez, David Badesch, Roham T. Zamanian, Jeffrey Fineman, James R. Klinger, Jim Ford, John W. McConnell, Jeffrey Sager, Jeremy Feldman, Oksana Shlobin, Daniel
American Thoracic Society 2016 International Conference May 13-18, 2016 - San Francisco Poster title: Evaluation of Quality of Care and Quality of Life of Pulmonary Hypertension (PH) Patients Seen in PH Care Centers: Pulmonary Hypertension Association Registry (PHAR) Study Design Authors: Michael P. Gray, Corey E. Ventetuolo, Ronald Oudiz, Wendy Hill, Cynthia Pickles, Kristina Blank,
