There are now 11 peer-reviewed publications using PHA Registry data. Read recent publications.
Enrollment in the Pulmonary Hypertension Association Registry (PHAR) has surpassed 2,000 participants. The registry includes data from patients at more than 80 PHA-accredited PH Care Centers. The data represents demographic characteristics, diagnosis and treatment information, and quality-of-life metrics.
The PHA Registry is excited to support the “Physical Activity in Pulmonary Arterial Hypertension” (ACTiPH) ancillary study, funded by the National Institutes of Health. Steven Kawut, M.D., from the University of Pennsylvania is the principal investigator.