Global Community Joins Hearts to Advocate for People Living with a Commonly Misdiagnosed and Deadly Lung Disease

2018-04-20T16:08:20+00:00 April 20th, 2018|

SILVER SPRING, MD (April 13, 2018) – Organizations around the world will join forces on May 5 to raise awareness for pulmonary hypertension (PH).  PH is a complex, life-threatening, too-often misdiagnosed progressive illness that affects 25 million adults and children worldwide. On World PH Day, dozens of sister organizations will raise awareness for the need

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

2018-04-10T15:29:35+00:00 April 10th, 2018|

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the Pulmonary Hypertension Association (PHA)’s online support community for individuals and

With the Right Diagnosis, Sharyn Robbins is Back to Bowling with Spare Time to Support the Pulmonary Hypertension Association

2018-03-28T17:49:04+00:00 March 28th, 2018|

Silver Spring, Md. (March 28, 2018) - At Manasquan High School in Manasquan, NJ, where she taught physical education and health classes for 35 years, Sharyn Robbins was a role model for healthy, fit living. On top of teaching PE and Health classes, she coached girls’ field hockey, basketball, bowling and softball. During her

Pulmonary Hypertension Association Registry Gives People Living with Deadly Lung Disease a Chance to Advance Patient Care

2018-03-26T18:28:00+00:00 March 26th, 2018|

Silver Spring, Md. (March 23, 2018) – The Pulmonary Hypertension Association (PHA) patient registry is giving more than 500 people with two deadly, often-misdiagnosed breathing diseases a way to advance patient care – for themselves and others. The national nonprofit established the PHA Registry (PHAR) in 2015 as part of its PH Care Center (PHCC)

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

2018-03-21T14:07:01+00:00 March 21st, 2018|

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from city to city -- in her job as a client

Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

2018-03-20T20:39:33+00:00 March 13th, 2018|

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known as high blood pressure of the lungs. To help raise

PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease

2018-02-16T16:07:20+00:00 February 16th, 2018|

Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease are getting care from clinicians who specialize in their often-misdiagnosed condition. Pulmonary hypertension (PH), also known as high blood pressure of the lungs, affects adults

CTEPH Awareness Day Helps PHA Educate Public About Form of Pulmonary Hypertension Linked to Chronic Blood Clots

2017-11-10T14:50:23+00:00 November 10th, 2017|

Nov. 10, 2017 – The Pulmonary Hypertension Association (PHA) will observe Nov. 21 as CTEPH Awareness Day by leading a nationwide campaign — as part of PHA’s The Right Heart™ Pulmonary Hypertension Awareness Month efforts — to educate the public about the form of pulmonary hypertension (PH) caused by chronic blood clots in the lungs.PH,

YouTube Sensation, Vocalist-Guitarist Chloe Temtchine Observes Her Disease’s Awareness Month With PHA Gift

2017-11-09T19:27:01+00:00 November 9th, 2017|

Nov. 9, 2017 – Pulmonary Hypertension Association (PHA) celebrity champion and YouTube sensation Chloe Temtchine is demonstrating that she has the right heart to give this November as she observes Pulmonary Hypertension Awareness Month.  In support of awareness month and the Pulmonary Hypertension Association (PHA)’s newly-launched year-long The Right Heart™ awareness campaign, Temtchine is

PHA Launches Pulmonary Hypertension Awareness Month Campaign

2017-11-08T20:17:27+00:00 November 3rd, 2017|

The Pulmonary Hypertension Association to Launch The Right Heart Campaign During Pulmonary Hypertension Awareness Month to Shed Light on Adults and Children Living With an Oft-Misdiagnosed, Life-threatening Lung Disease SILVER SPRING, Md. (Nov. 1, 2017) – The Pulmonary Hypertension Association (PHA) is launching The Right Heart™, a national campaign to make the public aware