Positive Data from INSPIRE Trial Released

2019-04-15T14:46:47+00:00 April 11th, 2019|

New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th International Society for Heart and Lung Transplantation Annual Meeting and Scientific Sessions in Orlando, Fla., by principal investigator Nicholas Hill, M.D., from Tufts University School of Medicine

New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research

2019-03-28T21:06:17+00:00 March 28th, 2019|

Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International PH Conference.  Its goals were simple, but powerful and, in fact, are still key to Conference’s success today – to have patients gain information from experts, help

Novel Clinical Trial Designs Featured in Advances-Published Paper

2019-03-28T21:06:58+00:00 March 28th, 2019|

The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting to highlight a paper published in the most recent edition of Advances in Pulmonary Hypertension, “Basic Science and Clinical Trials: Accelerating the Future.” Authors Stephen J. Halliday,

Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed

2019-03-21T15:37:39+00:00 March 21st, 2019|

A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF) still needs to be established. An estimated two percent of babies born in the U.S. are thought to need help breathing using machines. About 35,000 of these

New Online Tool Simplifies Clinical Trial Search

2019-03-13T20:28:27+00:00 March 13th, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website, PHAssociation.org. PHA provides this tool to help participants learn more about ongoing PH research. The tool includes filters to narrow search results to fit an individual’s personal needs.

Updated REVEAL Risk Calculator Improves Accuracy of PAH Survival Predictions

2019-03-07T18:51:45+00:00 March 7th, 2019|

A team of researchers has increased the accuracy of a tool used to predict survival for individuals with World Health Organization Group 1 PH (pulmonary arterial hypertension or PAH). CHEST Journal, the official publication of the American College of Chest Physicians, has published a study by Raymond L. Benza, M.D., a cardiologist at Allegheny

Expert Panel Updates PAH Therapy Guidelines

2019-02-21T21:44:57+00:00 February 21st, 2019|

Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart Association and published in the CHEST Journal. The panel, which included several PHA members and a patient representative, looked at 300 recent studies to complete the update

Advances in Pulmonary Hypertension Looks at Different Approaches to Treat Pediatric PH

2019-02-07T19:29:29+00:00 February 7th, 2019|

Although the World Symposium on Pulmonary Hypertension (WSPH) has led pulmonary hypertension (PH) to be considered in five classifications, or groups, pediatric PH is more nuanced and there is increasing recognition of unique genotypic and phenotypic subsets of the disease. This necessitates individualized and precision approaches to treatments for children with PH that will

PHA’s Online Advances in Pulmonary Hypertension Examines Barriers in New PH Therapies

2019-01-31T20:19:28+00:00 January 31st, 2019|

The latest issue of Advances in Pulmonary Hypertension: Official Journal of the Pulmonary Hypertension Association (PHA) — a free quarterly publication directed by an editorial board of renowned pulmonary hypertension (PH) experts — includes an article by Brian Graham, M.D., Peter Fernandes, M. Pharm., and Sue Gu, M.D., that explores the barriers and solutions to

Early Signs of Pulmonary Vascular Disease Found in Adults Born Prematurely

2019-01-24T22:05:08+00:00 January 24th, 2019|

One in 10 people in the U.S. is born prematurely. Premature birth is known to be associated with pulmonary vascular disease in infants and children, and registry studies have found those born prematurely are three to five times more likely to develop pulmonary hypertension (PH) as adolescents or young adults. Less is known, however,