Oxygen Survey May Lead to Better Technology and Advocacy

2019-09-26T20:37:06+00:00September 26th, 2019|

A team of Johns Hopkins University (Hopkins) engineering graduate students discovered the difficulties people with lung diseases experience accessing and obtaining portable oxygen equipment while shadowing Hopkins pulmonologists in 2018. They were inspired to take action. They learned from individual patients about the impact current portable oxygen equipment has on living a normal lifestyle

PHA Presents Research on PH Awareness and Diagnostic Trends

2019-05-23T19:13:19+00:00May 23rd, 2019|

Pulmonary Hypertension Association (PHA) staff and medical leadership presented research findings and interacted with global health care professionals with an interest in pulmonary hypertension (PH) at the American Thoracic Society (ATS) International Conference this week in Dallas. Michael Gray, vice president of quality care and research, shared research findings of current trends among physicians

CTEPH Study Finds Higher Survival Rates Among Those Who Have Surgery

2019-04-25T16:53:20+00:00April 25th, 2019|

Individuals with chronic thromboembolic pulmonary hypertension (CTEPH, World Health Organization Group 4 PH) who have surgery to remove blood clots from the lungs could have a better five-year survival rate compared to those individuals who do not have surgery, according to the results of a study of 550 people with CTEPH in the U.K.

Positive Data from INSPIRE Trial Released

2019-04-15T14:46:47+00:00April 11th, 2019|

New data from “INSPIRE: A Phase 3 Open-Label, Multicenter Study to Evaluate the Safety and Tolerability of LIQ861 in PAH” was presented last week during the 39th International Society for Heart and Lung Transplantation Annual Meeting and Scientific Sessions in Orlando, Fla., by principal investigator Nicholas Hill, M.D., from Tufts University School of Medicine

New PHA Clinical Trial Finder Aims to Improve Patient Involvement in PH Research

2019-03-28T21:06:17+00:00March 28th, 2019|

Dear PH Community, In 1994, just three years after the Pulmonary Hypertension Association (PHA) was founded by three patients and a caregiver, PHA held its first International PH Conference.  Its goals were simple, but powerful and, in fact, are still key to Conference’s success today – to have patients gain information from experts, help

Novel Clinical Trial Designs Featured in Advances-Published Paper

2019-03-28T21:06:58+00:00March 28th, 2019|

The Pulmonary Hypertension Association (PHA) just launched its new Clinical Trial Finder that allows individuals to search for research in pulmonary hypertension (PH), so it seems fitting to highlight a paper published in the most recent edition of Advances in Pulmonary Hypertension, “Basic Science and Clinical Trials: Accelerating the Future.” Authors Stephen J. Halliday,

Study Suggests Reassessment of iNO Treatment Response Time in HRF Newborns Is Needed

2019-03-21T15:37:39+00:00March 21st, 2019|

A recent study published in BMC Pediatrics shows that reliable, objective, early criteria for inhaled nitric oxide (iNO) treatment response in newborns with hypoxic respiratory failure (HRF) still needs to be established. An estimated two percent of babies born in the U.S. are thought to need help breathing using machines. About 35,000 of these

New Online Tool Simplifies Clinical Trial Search

2019-03-13T20:28:27+00:00March 13th, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the launch of its new Clinical Trial Finder, now available in the research section of the PHA website, PHAssociation.org. PHA provides this tool to help participants learn more about ongoing PH research. The tool includes filters to narrow search results to fit an individual’s personal needs.

Updated REVEAL Risk Calculator Improves Accuracy of PAH Survival Predictions

2019-03-07T18:51:45+00:00March 7th, 2019|

A team of researchers has increased the accuracy of a tool used to predict survival for individuals with World Health Organization Group 1 PH (pulmonary arterial hypertension or PAH). CHEST Journal, the official publication of the American College of Chest Physicians, has published a study by Raymond L. Benza, M.D., a cardiologist at Allegheny

Expert Panel Updates PAH Therapy Guidelines

2019-02-21T21:44:57+00:00February 21st, 2019|

Updated guidelines for pulmonary arterial hypertension (PAH) were recently completed by a panel of experts from the Pulmonary Hypertension Association, American Thoracic Society and the American Heart Association and published in the CHEST Journal. The panel, which included several PHA members and a patient representative, looked at 300 recent studies to complete the update