SGLI: Postcards, Calendars and Maps – Oh, my!
This training provides tutorials of PHA’s postcards/SGCF order form, map, calendar and meeting report from for PHA support group leaders.
Michael Knaapen Appointed to Director, PHA’s Patient & Caregiver Programs
PHA is pleased to announce that Michael Knaapen has accepted a new role as Director, Patient & Caregiver Programs. Michael will be responsible for the department formerly headed by Debbie Drell, working with current staff Keiron Mohamed and Abby Sickles, and focused on growing and strengthening PHA’s programs that support and empower patients and caregivers.
What Every Leader Should Know About PH
PHA provides volunteers with talking points to answer frequently asked questions about PH.
United Therapeutics & Industry Sponsorships – Reminder
Good afternoon leaders, This is a friendly reminder that United Therapeutics continues to support you with food sponsorship and speakers. To request assistance, send your meeting details and request (food, speaker, or both) to moc.rehtinU@ycacovdAtneitaP. Please share any feedback you have about sponsorship issues - whether it's about SGCF, UT or any other community or
Primer on PHA Resources – Print Materials and Support Groups
PHA has a vast library of print materials. Learn ways you can use print materials to plan meetings, promote PHA membership and more!
“But you don’t look sick!” – Leaders in the News, and Empowering Patients with Elevator Speeches
In the latest "Question of the Quarter" feature in PHA News, patients gave their responses to the insensitive and uninformed comment "but you don't look sick" that many people with PH have heard sometime since their diagnosis. No surprise, three of them were support group leaders! Check out what they had to say. I try