Michael Knaapen Appointed to Director, PHA’s Patient & Caregiver Programs

2020-12-21T15:08:14-05:00April 17th, 2017|

PHA is pleased to announce that Michael Knaapen has accepted a new role as Director, Patient & Caregiver Programs.  Michael will be responsible for the department formerly headed by Debbie Drell, working with current staff Keiron Mohamed and Abby Sickles, and focused on  growing and strengthening PHA’s programs that support and empower patients and caregivers.

United Therapeutics & Industry Sponsorships – Reminder

2020-12-21T15:07:22-05:00March 8th, 2017|

Good afternoon leaders, This is a friendly reminder that United Therapeutics continues to support you with food sponsorship and speakers. To request assistance, send your meeting details and request (food, speaker, or both) to moc.rehtinU@ycacovdAtneitaP. Please share any feedback you have about sponsorship issues - whether it's about SGCF, UT or any other community or

“But you don’t look sick!” – Leaders in the News, and Empowering Patients with Elevator Speeches

2020-12-21T15:06:33-05:00February 23rd, 2017|

In the latest "Question of the Quarter" feature in PHA News, patients gave their responses to the insensitive and uninformed comment "but you don't look sick" that many people with PH have heard sometime since their diagnosis. No surprise, three of them were support group leaders! Check out what they had to say. I try