When Jeri Nudell was at the Pulmonary Hypertension Association’s (PHA’s) International PH Conference and Scientific Sessions in Orlando in 2018, she met an inspiring fellow attendee. In their long conversation, Charlotte Gilbert told Jeri that she was no longer blogging because her PH had progressed too much. Jeri shared that she had never been
The New Year is often a time for making resolutions that lead to a better quality of life. With that idea in mind, we asked our Pulmonary Hypertension Association (PHA) support group leaders to share some of their best tips for living well with pulmonary hypertension (PH). We hope that each one of
Bill Kolm, Pulmonary Hypertension Association (PHA) support group leader of the Omaha Area Support Group in Nebraska, has been leading the group for nearly two-and-a-half years. “I have seen so many new patient attendees leave the meetings with a smile and telling me they will return for the next meeting because they want to
A regional support group leader training held in Silver Spring, Maryland, last month reminded Laura Camponeschi why she volunteers as a support group leader. “This was really helpful, inspiring and refreshing,” Laura said. PHA support groups are coordinated by leaders committed to planning and running meetings for individuals with pulmonary hypertension (PH) and their
This article originally appeared in the June issue of Pathlight. Jackie Woosley is a Pulmonary Hypertension Association (PHA) support group leader who also facilitates the monthly PHA Bereavement Telephone Support Group. She was the caregiver for her adult daughter Karen, who passed away in 2016, and has taken on multiple volunteer roles with PHA to carry
Karen Fragale and Traci Stewart, Pulmonary Hypertension Association support group leaders of the Pulmonary Hypertension (PH) Iowa Support Group, hosted a meeting on palliative care on June 8. At the meeting, Jen Krier, a palliative care nurse from Mercy Clinic in Iowa, offered insights to the group about palliative care, including how palliative care
The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines – new member Mike Robinson – new member Evette Britton Nicole Creech Chooda Khanal Pat Ofori Tina Stiyer Doug Taylor The board, made up of
Dear PH Community, As we approach Labor Day and begin to transition to the fall season, we have an opportunity to reflect on what was a very busy summer for PHA! Without a doubt, June’s Pulmonary Hypertension Association (PHA) 2018 International PH Conference and Scientific Sessions was a highlight of the summer season for
Whether you were or were not able to attend PHA’s 2018 International PH Conference and Scientific Sessions this past weekend in Orlando, Fla., you can glimpse the highlights and key moments in photos. PHA 2018 Conference Photos: Kathleen Sheffer
The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I
