New Members Join 2018-20 Support Group Leader Advisory Board

2019-01-03T22:11:42+00:00January 3rd, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines – new member Mike Robinson – new member Evette Britton Nicole Creech Chooda Khanal Pat Ofori Tina Stiyer Doug Taylor The board, made up of

PHA CEO Update: PHA in the Community

2018-08-31T15:58:23+00:00August 31st, 2018|

Dear PH Community, As we approach Labor Day and begin to transition to the fall season, we have an opportunity to reflect on what was a very busy summer for PHA! Without a doubt, June’s Pulmonary Hypertension Association (PHA) 2018 International PH Conference and Scientific Sessions was a highlight of the summer season for

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

2018-06-22T18:27:02+00:00June 20th, 2018|

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I

2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference

2018-05-16T14:49:05+00:00May 16th, 2018|

Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the opening session. Don’t miss out on meeting Elvis and also the opportunity to connect with other PH community members for

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and

PH Support Group Raises Awareness for PH at Teaching Hospital Staff Safety and Quality Event

2018-05-03T17:47:29+00:00May 3rd, 2018|

March 13th may have brought a nor’easter to New Hampshire, but that didn’t stop Jane Armstrong and Deb Cantlin RN, MS from promoting awareness of pulmonary hypertension at a Staff Safety and Quality event held at a large teaching hospital.  The Dartmouth-Hitchcock (NH) PH Support Group created a large and very detailed poster which

World PH Day Toolkit with Resources, Templates and Memes

2018-04-27T15:46:42+00:00April 27th, 2018|

Throughout May, beginning on World PH Day, May 5, 80 global pulmonary hypertension (PH) organizations will participate in a worldwide awareness campaign to advocate for access to PH diagnosis, treatment and care. Organizations will share photos, stories and social media messages linked by an image of two linked hearts, the 2018 World PH Day

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

2018-04-20T19:57:22+00:00April 26th, 2018|

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and a half, she was jumping on a trampoline, struggling to

PHA’s Pathlight Membership Magazine to Highlight PHCC Clinicians

2018-04-25T20:19:04+00:00April 25th, 2018|

The upcoming issue of Pathlight, a complementary quarterly magazine for Pulmonary Hypertension Association (PHA) members, introduces a new feature called, PHour Questions. The segment  will introduce clinicians from Pulmonary Hypertension Care Center (PHCCs), including Pulmonary Hypertension Association Registry (PHAR)-participating centers. The new feature asks four insightful questions about how these experts are advancing, PH