Training Energizes East Coast Support Group Leaders

2019-07-11T18:20:56+00:00July 11th, 2019|

A regional support group leader training held in Silver Spring, Maryland, last month reminded Laura Camponeschi why she volunteers as a support group leader. “This was really helpful, inspiring and refreshing,” Laura said. PHA support groups are coordinated by leaders committed to planning and running meetings for individuals with pulmonary hypertension (PH) and their

On Grief and Giving Back

2019-06-27T18:41:14+00:00June 26th, 2019|

This article originally appeared in the June issue of Pathlight. Jackie Woosley is a Pulmonary Hypertension Association (PHA) support group leader who also facilitates the monthly PHA Bereavement Telephone Support Group. She was the caregiver for her adult daughter Karen, who passed away in 2016, and has taken on multiple volunteer roles with PHA to carry

Volunteer Spotlight: Iowa Support Group Learns About Palliative Care

2019-06-27T19:21:50+00:00June 26th, 2019|

Karen Fragale and Traci Stewart, Pulmonary Hypertension Association support group leaders of the Pulmonary Hypertension (PH) Iowa Support Group, hosted a meeting on palliative care on June 8. At the meeting, Jen Krier, a palliative care nurse from Mercy Clinic in Iowa, offered insights to the group about palliative care, including how palliative care

New Members Join 2018-20 Support Group Leader Advisory Board

2019-01-03T22:11:42+00:00January 3rd, 2019|

The Pulmonary Hypertension Association (PHA) is pleased to announce the members of PHA's Support Group Leader Advisory Board for the 2018-2020 term: Lindsay Collins – new member Debra Hines – new member Mike Robinson – new member Evette Britton Nicole Creech Chooda Khanal Pat Ofori Tina Stiyer Doug Taylor The board, made up of

PHA CEO Update: PHA in the Community

2018-08-31T15:58:23+00:00August 31st, 2018|

Dear PH Community, As we approach Labor Day and begin to transition to the fall season, we have an opportunity to reflect on what was a very busy summer for PHA! Without a doubt, June’s Pulmonary Hypertension Association (PHA) 2018 International PH Conference and Scientific Sessions was a highlight of the summer season for

NEW! PHA Roadmap to Hope a must-read resource for people newly diagnosed with PH

2018-06-22T18:27:02+00:00June 20th, 2018|

The Pulmonary Hypertension Association (PHA) has created a new resource for people who have recently been – or are at risk of being – diagnosed with pulmonary hypertension (PH). The Roadmap to Hope: a guide for people recently diagnosed with pulmonary hypertension (PH) answers the question, “I have PH – now what do I

2018 PHA Celebrity Champion, Elvis Medrano, to Speak at PHA’s 2018 Conference

2018-05-16T14:49:05+00:00May 16th, 2018|

Washington, D.C., Golden Glove Lightweight Champion and PHA celebrity champion Elvis Medrano will join the PH community at PHA’s 2018 International PH Conference and Scientific Sessions to share his battle with CTEPH during the opening session. Don’t miss out on meeting Elvis and also the opportunity to connect with other PH community members for

PHA’s Congressional Luncheon and Call-In Day: Two Ways to Get Congress Involved in the PHight

2018-05-15T19:47:28+00:00May 15th, 2018|

“Oh! My grandfather has hypertension!” Have you ever heard a response like this when trying to explain pulmonary hypertension (PH)? Members of Congress make laws that impact the PH community every day, but, like so many in the community, they are often unfamiliar with the challenges and seriousness of the disease. PHA’s Congressional Luncheon and