Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known as high blood pressure of the lungs. To help

2018-03-13T19:40:26+00:00 March 13th, 2018|

CEO Update: Volunteers Take Action to Support the Pulmonary Hypertension Community

Dear PHA Community Member: Every year, spring marks the beginning of the pulmonary hypertension (PH) community’s annual fundraising events to support the Pulmonary Hypertension Association (PHA) and its mission – to extend and improve the lives of those affected by PH.  These community-based events mobilize volunteers, raise awareness about PH and provide critical philanthropic support

2018-03-13T16:55:07+00:00 March 9th, 2018|

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

2018-03-07T20:01:18+00:00 March 7th, 2018|

Arizona Survivor of Type of Pulmonary Hypertension Caused by Blood Clots Walks for PH

Tucson, Ariz. (March 5, 2018) - The regulars who get their steps in early at Sabino Canyon National Park have come to know Eric Simmons, at least by face. Like them, he walks there just about every morning, except the summer months, as the sun is rising, taking advantage of Tucson’s relatively cooler seasons.

2018-03-05T21:59:52+00:00 March 5th, 2018|

Patient Advocate Foundation Co-Pay Assistance Fund for Qualifying Patients With PH Reopens

The Patient Advocate Foundation (PAF) has reopened a co-pay assistance fund for qualifying patients with pulmonary hypertension. PAF is accepting applications for new and renewal patients. The maximum award level is $9,000 per year. Patient must be insured by Medicare, Medicaid, or Military Benefits and insurance must cover the medication for which patient seeks assistance. Learn

2018-03-01T16:25:51+00:00 March 1st, 2018|

PHA Supports Rare Disease Day with Social Media Awareness Push

Silver Spring, Md. (February 22, 2018) -- The Pulmonary Hypertension Association (PHA) joins global partners, Feb. 28, Rare Disease Day®, to bring attention to the hopes and needs of people living with conditions like pulmonary hypertension (PH), an often misunderstood and misdiagnosed deadly disease. PHA will use social media to also highlight data indicating

2018-02-26T15:39:19+00:00 February 23rd, 2018|

PHA to Introduce Newly Redesigned PH Resource at 6th World Symposium on Pulmonary Hypertension

The 6th World Symposium on Pulmonary Hypertension will take place in Nice, France from Feb. 27 to March 1, 2018. This symposium, held every 5 years, is a time for global leaders in PH to review the major advances in the disease, analyze the evidence in studying and treating PH, and evaluate gaps of

2018-02-23T14:58:55+00:00 February 23rd, 2018|

PHA Accreditation Program Assures Access to Specialized Care for Thousands With Often-Misdiagnosed Deadly Lung Disease

Silver Spring, MD (February 15, 2018) – A national accreditation program launched by the Pulmonary Hypertension Association (PHA) assures that more than 12,000 people with a life-threatening lung disease are getting care from clinicians who specialize in their often-misdiagnosed condition. Pulmonary hypertension (PH), also known as high blood pressure of the lungs, affects adults

2018-02-16T16:07:20+00:00 February 16th, 2018|

Seeking Financial Assistance Because of Caring Voice Developments? Previous CVC Clients Should Make That Clear When Contacting Manufacturers.

In January, the Department of Health and Humans Services informed companies that manufacture PH medications that they would be permitted to provide one year of free medication to some individuals who received assistance from the Caring Voice Coalition as of Nov. 28, 2017. To be eligible, a PH patient must have health insurance through a

2018-02-16T16:16:51+00:00 February 16th, 2018|

PH FINANCIAL ASSISTANCE UPDATE: The Patient Advocate Foundation Assistance Fund Is Now Open

The Patient Advocate Foundation (PAF) assistance fund for new and renewal patients with Medicare (including Medicare Advantage), Medicaid or military benefits is open as of Jan. 24, 2018. More information at https://www.copays.org/diseases/pulmonary-hypertension. Call 1-866-512-3861 or apply online at www.copays.org. The Pulmonary Hypertension Association (PHA) will continue to post financial assistance resources on our website as we learn of them: www.PHAssociation.org/Patients/Insurance/Financial-Assistance.

2018-01-24T17:39:02+00:00 January 24th, 2018|