Gaining Inspiration and Energy from Support Group Members

2020-07-23T12:13:55-04:00July 23rd, 2020|

By Alicia Kubes Being diagnosed with pulmonary hypertension (PH) in February 2018 and starting intravenous therapy was a complete shock. I had no idea this disease existed and that there were people out there walking around connected to pumps. When I attended the 2018 Pulmonary Hypertension Association (PHA) International PH Conference and Scientific Sessions,

Support Group Leader ‘Couldn’t Believe There Were Others Like Me’

2020-07-24T13:07:33-04:00July 16th, 2020|

By Colleen Schnell Colleen Schnell I was born in Niagara Falls, N.Y., in September 1975. When I was 9 months old, I was diagnosed with a complex congenital heart defect. By that time, I had already developed pulmonary arterial hypertension. I was always the sick kid, the one who couldn’t do much because

Volunteer Spotlight: Raising Awareness for Scleroderma and PH

2020-07-16T16:19:42-04:00July 9th, 2020|

By Karen Fragale I live in Johnston, Iowa, which is just outside of Des Moines. I have two children, Christopher, 31, and Stephanie, 28. Christopher, who works in finance, is engaged and planning a wedding date in October. Stephanie, an accountant, lives with me and is my primary caregiver (cleaning/groceries/shopping). She has a 2-year-old

Texas Support Group Leader Aims to Empower, Give Hope

2020-07-16T16:20:31-04:00July 2nd, 2020|

Estella Medina is a Pulmonary Hypertension Association (PHA) support group leader from El Paso, Texas. She shares her pulmonary hypertension (PH) journey from diagnosis to volunteerism. By Estella Medina I was a medical assistant until I had my first child in July 2000. Since then, I’ve been a stay-at-home mom. I have two children

Discover This Support Group Leader’s Passion for Helping Others

2020-07-16T16:24:31-04:00March 5th, 2020|

Tara Suplicki decided to start volunteering when she learned she had pulmonary hypertension (PH). Today, she leads the Morristown, New Jersey, Pulmonary Hypertension Association (PHA) support group with Patrick Mellin. Tara describes how she got involved: “I was in the hospital with a stroke and this illness. My mother said, ‘You can either go

Volunteer Spotlight: New South Dakota Support Group Launches

2020-02-06T17:03:11-05:00February 6th, 2020|

When Jeri Nudell was at the Pulmonary Hypertension Association’s (PHA’s) International PH Conference and Scientific Sessions in Orlando in 2018, she met an inspiring fellow attendee. In their long conversation, Charlotte Gilbert told Jeri that she was no longer blogging because her PH had progressed too much. Jeri shared that she had never been

Training Energizes East Coast Support Group Leaders

2019-07-11T18:20:56-04:00July 11th, 2019|

A regional support group leader training held in Silver Spring, Maryland, last month reminded Laura Camponeschi why she volunteers as a support group leader. “This was really helpful, inspiring and refreshing,” Laura said. PHA support groups are coordinated by leaders committed to planning and running meetings for individuals with pulmonary hypertension (PH) and their

On Grief and Giving Back

2019-06-27T18:41:14-04:00June 26th, 2019|

This article originally appeared in the June issue of Pathlight. Jackie Woosley is a Pulmonary Hypertension Association (PHA) support group leader who also facilitates the monthly PHA Bereavement Telephone Support Group. She was the caregiver for her adult daughter Karen, who passed away in 2016, and has taken on multiple volunteer roles with PHA to carry