Gaining Inspiration and Energy from Support Group Members

2020-07-23T12:13:55-04:00July 23rd, 2020|

By Alicia Kubes Being diagnosed with pulmonary hypertension (PH) in February 2018 and starting intravenous therapy was a complete shock. I had no idea this disease existed and that there were people out there walking around connected to pumps. When I attended the 2018 Pulmonary Hypertension Association (PHA) International PH Conference and Scientific Sessions,

Support Group Leader ‘Couldn’t Believe There Were Others Like Me’

2020-11-24T12:06:36-05:00July 16th, 2020|

By Colleen Schnell Colleen Schnell I was born in Niagara Falls, N.Y., in September 1975. When I was 9 months old, I was diagnosed with a complex congenital heart defect. By that time, I had already developed pulmonary arterial hypertension. I was always the sick kid, the one who couldn’t do much