Post-Transplant Life is an Unexpected Adventure

2018-07-11T20:00:47+00:00 June 27th, 2018|

By Kathleen Sheffer From left, Kathleen and Monica in the German Alps, with help from a self-timer. Against a fair amount of unfavorable odds, I will be photographing PHA’s 13th International PH Conference and Scientific Sessions. This will be the ninth Conference I’ve attended, and the first I’ll attend without pulmonary arterial

Rebekah Calverley Lives an Amazing, Beautiful, Fearless Life with Pulmonary Hypertension

2018-04-20T19:57:22+00:00 April 26th, 2018|

Born in Auckland, New Zealand, Rebekah was sick a lot as a toddler with colds and even pneumonia.  That didn’t stop her from being active like any other child as her parents searched for answers for her continued illnesses. When she was two and a half, she was jumping on a trampoline, struggling to

Early Diagnosis and Advanced Care Put Indianapolis Mom with Pulmonary Hypertension on Promising Path

2018-04-10T15:29:35+00:00 April 10th, 2018|

Indianapolis, Ind. (April 10, 2018) -- Donna Sparks combats a progressive life-threatening lung disease with courage, conviction and compassion -- for herself and others who share her fight. Diagnosed three years ago with pulmonary hypertension (PH), Donna is an active participant in myPHA, the Pulmonary Hypertension Association (PHA)’s online support community for individuals and

St. Louis Survivor of Deadly Lung Disease Working Hard, Inspiring Others and Breathing Easily

2018-03-21T14:07:01+00:00 March 21st, 2018|

St. Louis, MO (March 20, 2018) -- Amanda Harvey-McKee’s life is the epitome of the notion that if you want to get something done, give it to a busy person. At age 39, she works 60 plus hours a week -- often flying from city to city -- in her job as a client

Washington, D.C. Golden Glove Lightweight Champion Elvis Medrano Faces Biggest Battle with Deadly Lung Disease Diagnosis

2018-03-20T20:39:33+00:00 March 13th, 2018|

Silver Spring, Md. (March 13, 2018) -- In and out of the boxing ring, Washington, D.C., Golden Glove lightweight champion Elvis Medrano is in a daily battle for his life. At 27, he’s lived six years with pulmonary hypertension (PH), a life-threatening disease also known as high blood pressure of the lungs. To help raise

PHA Support Group Leader Stephanie Bachelder Wears Many Hats in Meeting With Congressman

2018-03-07T20:01:18+00:00 March 7th, 2018|

PHA support group leader volunteers take on many roles in the pulmonary hypertension (PH) community. Many are living with PH -- others are caregivers or health care professionals -- in addition to being constituents, advocates, friends, mentors and champions of the PH community. Support group leader Stephanie Bachelder recently reached out as a PH

How the Unknown Led to Certainty for PhD Student and PH Patient Raele Robison

2018-03-01T18:02:07+00:00 March 1st, 2018|

Raele Robison was a student in a demanding PhD program when she was diagnosed with scleroderma and pulmonary hypertension. Now armed with answers about what was causing her mysterious symptoms, she is living her best life with PH. By Raele Robison I remember the way that the paper on the examination table kept making a

The Barefoot Movement: PHighting for a Cure for Jackson

2018-01-12T15:59:50+00:00 January 11th, 2018|

Noah Wall is a singer, songwriter, and fiddler in the award winning acoustic band “The Barefoot Movement.”  Her nephew Jackson Wall was diagnosed with pulmonary hypertension (PH) at one year old. Jackson’s parents hold a golf tournament each year to raise funds and awareness for pulmonary hypertension (PH). It’s December. I’m writing from the “comfort”