Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant

2020-07-02T12:17:56-04:00July 2nd, 2020|

“It was heartbreaking to leave our biggest supporters, but my family kept their faith strong.” By Jessica Romero I was born Oct. 26, 1983, at Denver General Hospital, now known as Denver Health, in Colorado. I was born three months prematurely and weighed 1 pound, 7 ounces. The Rocky Mountain News dubbed

Georgette Recognized a Rare Catch on the Volleyball Court. His Rare Diseases Spiked Later

2020-06-11T12:44:16-04:00June 11th, 2020|

“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean, live in Suffolk, Virginia. Together they have four children and a dog Annabell. Dean was diagnosed with scleroderma in 1997 and pulmonary arterial hypertension in

19 Years After Diagnosis: Keeping Fit and Staying Hopeful

2020-05-31T06:50:29-04:00May 28th, 2020|

“I wanted to give up, but with lots of prayers and faith, I eventually started improving.” By Lorraine PolstonLorraine Polston of Amarillo, Texas, was diagnosed with idiopathic pulmonary arterial hypertension (PAH) in 2001. A registered nurse since 1992, she and her husband have three sons and five stepdaughters. This is her story.My journey

Coming to Terms with PH

2020-05-07T20:38:27-04:00May 7th, 2020|

“I have a long road ahead of me, but one day at a time, right?” Jenny Phillips, 52, lives in Woodridge, Illinois. She has a sister, two brothers (including her twin) and nieces and nephews. An army veteran, she has been a dispatcher for the Illinois State Police for 17 years. She

Meet Vlogger Quinland Folkestad, Who Thrives With PH

2020-02-27T20:41:03-05:00February 27th, 2020|

“I thought my life was over, but through the PHA and friends and family and doctors, I found the help I needed.” In recognition of Rare Disease Day and American Heart Month in February, the Pulmonary Hypertension Association’s (PHA’s) The Right Heart blog brings you a video featuring Quinland Folkestad. Quinland has pulmonary arterial