PH Upends Housewarming, Holidays and Young Mother’s Health

2020-07-31T11:28:24-04:00July 23rd, 2020|

“Processing my diagnosis alone in the NICU was rough. I didn’t really understand the gravity of it all. It didn’t feel real.” Amy Dolan, 30, lives in western Rhode Island with her husband and four children, Gehrig, Eila, Finley and Theodore. Before her pulmonary hypertension diagnosis, she worked in administration for an

Born with Collapsed Lung, 36-Year-old Awaits Double Lung Transplant

2021-03-31T11:39:55-04:00July 2nd, 2020|

I was told I would never see my childhood years, but I defeated that. Over time, I developed the nickname “Bones.” When my weight hit 100 pounds, my family celebrated. I was told that I would never see my teenage years, but I defeated that, too. I was told I would never get to see my adulthood. I’m now 36.

Georgette Recognized a Rare Catch on the Volleyball Court. His Rare Diseases Spiked Later

2020-07-30T16:12:42-04:00June 11th, 2020|

“As Dean’s illness progresses, living each and every day is precious. We don’t take it for granted.” Georgette Bridger and her husband of 27 years, Dean, live in Suffolk, Virginia. Together they have four children and a dog Annabell. Dean was diagnosed with scleroderma in 1997 and pulmonary arterial hypertension in

19 Years After Diagnosis: Keeping Fit and Staying Hopeful

2020-07-31T11:27:48-04:00May 28th, 2020|

“I wanted to give up, but with lots of prayers and faith, I eventually started improving.” By Lorraine Polston Lorraine Polston of Amarillo, Texas, was diagnosed with idiopathic pulmonary arterial hypertension (PAH) in 2001. A registered nurse since 1992, she and her husband have three sons and five stepdaughters. This is her

Coming to Terms with PH

2020-07-31T11:19:49-04:00May 7th, 2020|

“I have a long road ahead of me, but one day at a time, right?” Jenny Phillips, 52, lives in Woodridge, Illinois. She has a sister, two brothers (including her twin) and nieces and nephews. An army veteran, she has been a dispatcher for the Illinois State Police for 17 years. She