Dear PH Community,
This is an extraordinary and difficult time for everyone and particularly for those in our pulmonary hypertension (PH) community. At the Pulmonary Hypertension Association (PHA), our top concern is for your health and wellbeing. Amid the uncertainty, we continue to passionately engage, provide support and information, and serve as a center of hope for our PH community, reminding all of us we are not on this journey alone.
When PHA was founded three decades ago, our focus was on a disease of the lungs that no one knew how to treat or cure. It was hope and unrelenting determination that drove our founding members and built the community you see today. In 2020, as we face a new disease of the lungs with limited knowledge on how to treat it and no cure, PHA continues to serve our community with unrelenting determination. As I experience how our PH community is responding to COVID-19, I am filled with a sense of pride and hope.
Our patient community is sharing ideas, becoming informed, using new technology to connect with others and sewing masks. Our health care professionals, including pulmonary and cardiology specialists, respiratory therapists, PH clinical center and ICU nurses, to name a few, are on the front lines, working long hours with limited resources, using new technologies to connect with patients and sharing ideas for treatment protocols as they look for ways to save more lives. Researchers with ties to our partners within the National Institutes of Health, Industry and academic medical centers, are exploring how to develop vaccines and repurpose medications.
While all of us at PHA are working from home, and we can’t meet this year at Conference, our work continues, as we continue to offer new ways to come together remotely and help you with the questions and support you need.
If you haven’t done so, please visit our COVID-19 resources, which aim to address your health concerns, answer your questions and connect the PH community. The information in our Frequently Asked Questions (FAQ) are based on Centers for Disease Control guidance and input from PHA’s Scientific Leadership Council. A series of virtual programming begins next Friday with a Facebook Live event with a PH doctor – something we’ll be sharing more about in the days to come.
As always, our volunteer support network is available to reassure and enhearten patients and caregivers — in many cases virtually, as well as by phone. Our social networks also offer opportunities to connect and focus on uplifting pastimes.
For those in our health care community who work every day to treat and care for people with PH and conduct PHA-funded research, we understand you are under immense pressure. Many of you have been called upon to aid in your community’s COVID-19 response in addition to looking out for your existing patients. We are so proud of the work you do to improve and extend lives and give the PH community hope.
For everyone in the PH community, we are here to listen to your concerns, provide information and support you during the COVID-19 pandemic. Please don’t hesitate to reach out. Let us know how you’re doing or share your questions by emailing me at gro.noitaicossAHP@AHPgnoWdarB.
Brad A. Wong
PHA President & CEO