Silver Spring, Md. (April 27, 2017) – Chloe Temtchine, propelled to YouTube fame as a vocalist, guitarist and pianist who performs tethered to an oxygen canister, will debut her new single “Rise,” in a Pulmonary Hypertension Association (PHA) Facebook Live mini-concert. The event, which will take place the last week of May, will introduce Temtchine as a PHA celebrity champion who is using her growing fame to expand awareness of pulmonary hypertension (PH), a disease she’s battled for about 9 years. (She was misdiagnosed for 5 years and was officially diagnosed on March 4, 2013.) PHA will announce the date and time of the event on its Facebook page as it nears the end of a month-long World PH Day (May 5)-launched awareness drive.
PH is an often misdiagnosed, life-threatening, progressive disease characterized by increased pressure in the blood vessels of the lungs, which can lead to death from right-heart failure. It affects infants, children and adults of all races and ethnic backgrounds. Common PH symptoms are non-specific and can include shortness of breath, fatigue and chest pain. Consequently, this complex disease is often misdiagnosed — for example, as asthma — leading to delays in proper treatment and costing patients valuable time. With early and accurate diagnosis, PH treatments can extend and improve the quality of life for many people living with the disease. PH can present alone or with other illnesses, including congestive heart disease, connective tissue disorders, COPD and many other diseases.
Temtchine has been raising awareness and funds for PHA in innovative ways, including using a pickup truck flatbed as a pop-up stage for New York food truck dinners. At the 2016 PHA International PH Conference and Scientific Sessions in Dallas, she launched a music video for her single, “Breathe,” that featured children living with PH. Her fans have become accustomed to Temtchine’s oxygen canister —which the singer affectionately named Steve Martin.
In addition to the Facebook Live performance, as a PHA celebrity champion, Temtchine will appear throughout 2017 in PHA social media and digital public service advertising to share information about PH with her social media fan base.
PHA relies on charitable donations to fund programs that support researchers looking for causes and cures for this complex disease. The heart of the PH community for more than 25 years, PHA is the only national nonprofit providing support and educational resources for patients, families, caregivers, health care professionals who specialize in caring for people with the disease and PH researchers. PHA’s new PH Care Center accreditation program and patient registry are making meaningful and timely contributions to improved patient care, while PHA’s public service campaigns — which Temtchine will support — are helping to raise awareness and educate the public about the disease.
About the Pulmonary Hypertension Association
Headquartered in Silver Spring, Md., the Pulmonary Hypertension Association (PHA) is the country’s leading pulmonary hypertension organization. PHA’s mission is to extend and improve the lives of those affected by PH; its vision is a world without PH, empowered by hope. PHA achieves this by connecting and working together with the entire PH community of patients, families, health care professionals and researchers. For more information and to learn how you can support PH patients, visit www.PHAssociation.org and connect with PHA on Twitter and Instagram @PHAssociation and on Facebook at www.facebook.com/PulmonaryHypertensionAssociation.