ABOUT PH: UNDERSTANDING PH
- Respiratory Infections and Pulmonary Hypertension
- PH101: Part 1- Understanding Diagnosis
- Group 3 Pulmonary Hypertension
- Group 2 Pulmonary Hypertension
- What is PH?
- What happens when you have PH?
- What are the symptoms of PH?
- CTEPH Overview
- What are the different WHO Groups of pulmonary hypertension?
- What are the functional classifications of PH?
- Are there specific lung diseases that cause PH?
- What is PH due to chronic lung disease?
- How does lung disease cause pulmonary hypertension?
- How does liver disease cause PH?
- How is the liver connected to the heart and lungs?
- Connective Tissue Diseases and PH
- What is the Risk of Developing PH If You Have Connective Tissue Disease?
- What treatments are prescribed to manage PH and connective tissue disease?
- What is the Relationship Between PH and Connective Tissue Disease?
- What’s the Relationship Between Scleroderma and PH?
- Adult Congenital Heart Disease, Blood Disorders and Liver Disease with PH
- PH Associated with Another Condition – Coping with a Second Illness
- Familial Genetics and PAH (2016)
- PH Simplified – The Basics of PH, Treatments, and Tests
- Debunking PH Misconceptions l
- Debunking PH Misconceptions ll
ABOUT PH: DIAGNOSIS
- Journey through Pulmonary Hypertension Diagnosis and Treatment
- What are the different types of connective tissue disease and the associated risk of PH?
- What diagnostic tests are recommended for patients with connective tissue disease?
- Visiting a Genetic Counselor
- Can a chest x-ray diagnose PH?
- Why do I need a right heart catheterization if my doctor gets numbers from the echocardiogram?
- How is PH diagnosed?
- Why do I have to do the 6-minute walk test?
- Why is it important to know which WHO Group your diagnosis is in?
- What is a V/Q scan? Should all PH patients have one?
- What do blood tests tell my doctor about my PH?
- What value does a cardiac MRI bring to diagnosis and treatment?
- Is there a standard for how often I should have certain diagnostic testing?
- After my first right heart cath, how often do I need to have another one, and why?
- How often do I have to have an echocardiogram?
- Diagnosing PH – Is your PH diagnosed correctly?
- Newly Diagnosed: Tests, Tests, and More Tests: What is PH Diagnostic Testing Telling my Doctors?
ABOUT PH: TREATMENTS
- Understanding the Side Effects of Pulmonary Hypertension Medication
- PH101: Part 2 – Diagnostics and Treatment Options
- What contributes to the success of treatment for PH?
- How is PH treated?
- How do clinicians keep track of the success of a PH therapy?
- CTEPH Treatment
- How does your clinician choose the best treatment for your PH?
- Tell me more about lung transplantation: What is it all about, and what is involved?
- How is PH due to chronic lung disease treated?
- How is portopulmonary hypertension treated?
- Surgery and Anesthesia in PH Patients
ABOUT PH: CLINICAL TRIALS & RESEARCH
- Spotlight on Pulmonary Hypertension Research
- 2022 Focus on PH Research
- Part 1: Drug Discovery from Lab to Consumer
- Part 2: Drug Discovery from Lab to Consumer Q&A
- Part 1: Understanding the PH Drug Pipeline
- Part 2: Understanding the PH Drug Pipeline Q&A
- An Overview of the Drug Development Process
- Debunking Myths and Misconceptions about Clinical Trial Participation
- Clinical Research in Pediatrics and Informed Consent for Parents
- What Is FDA Approval?
- What Is Clinical Research?
- Getting Involved in Clinical Research
LIVING WITH PH: COPING
- Living Well with Lung Disease – Part 1
- Living Well with Lung Disease – Part 2
- Embracing holistic care: Supportive care and symptom management
- What types of things would a palliative care physician talk to me about?
- Who can benefit from palliative care, and should I ask my doctor about it?
- I’ve heard that palliative care is the same thing as hospice care/end of life care. Are they the same thing?
- What is palliative care? How is it connected to quality of life?
- Coping with Chronic Illness
- Coping with PH and the Role of Palliative Care
- Finding and Living Your New Normal
- Holiday Headspace
- Holiday Headspace: Caregiver Edition
LIVING WITH PH: EVERYDAY LIVING
- PH, Intimacy and Self-Image: A Woman’s Journey
- Over-the-Counter Medications and Side Effects Management
- My Life With PH and Advice To Others Newly Diagnosed
- Health care planning: Conversations, decisions and directives
- Newly Diagnosed: Beyond Diagnosis: Working and traveling with PH
- Men with PH: Specific Issues for Men Diagnosed with PH
- Men with PH
- Women’s Reproductive Health and PH
LIVING WITH PH: NUTRITION
PEDIATRIC PH: UNDERSTANDING PEDIATRIC PH
PEDIATRIC PH: LIVING WITH PEDIATRIC PH
PEDIATRIC PH: SCHOOL AND PH
PEDIATRIC PH: TEENS AND YOUNG ADULTS
INSURANCE AND TREATMENT ACCESS: UNDERSTANDING INSURANCE
INSURANCE AND TREATMENT ACCESS: OXYGEN ACCESS
- What are the different types of oxygen therapy?
- What is the process of qualifying for oxygen therapy?
- Do patients in all WHO Groups need oxygen, or only people with lung disease and PH?
- When does a clinician decide to put a patient on oxygen?
- What are the differences between CPAP, BiPAP and oxygen?
- What are some oxygen tips in case of an emergency?
- I’ve been prescribed supplemental oxygen. What do I need to know?
INSURANCE AND TREATMENT ACCESS: MORE RESOURCES
En Español
Comprender la hipertensión pulmonar
Diagnóstico
- ¿MRI: ¿Qué valor aporta una MRI cardíaca al diagnóstico y tratamiento de la HP?
- ¿Cuáles son algunos problemas médicos que pueden causar el desarrollo de hipertensión pulmonar?
- ¿Se puede usar una radiografía de tórax para diagnosticar hipertensión pulmonar?
- ¿Que es un un gammagrama ventilatorio-perfusorio (V/Q)?
- ¿Por qué necesito un cateterismo del corazón derecho si mi doctor obtiene números?
- ¿Cómo se diagnostica la hipertensión pulmonar?
- ¿Qué le dicen los análisis de sangre a mi médico sobre mi hipertensión pulmonar?
- ¿Por qué necesito hacer la prueba de caminata de 6 minutos? ¿Que muestra la prueba a mis doctores?
- ¿Después de la cateterización cardíaca inicial, con qué frecuencia se necesita hacerse otro examen y por qué?
- ¿Con qué frecuencia necesito recibir un ecocardiograma?
- ¿Existe un estándar para la frecuencia con la que debo tener ciertas pruebas de diagnóstico? ¿O depende de cada médico?
Los Tratamientos
- ¿Qué contribuye al éxito de una terapia de hipertensión pulmonar?
- ¿Hay terapias para la hipertensión pulmonar?
- ¿Cómo monitorean los médicos el éxito de la hipertensión pulmonar terapias?
- ¿Qué buscan los médicos cuando eligen una terapia de hipertensión pulmonar?
- ¿Cuáles son los objetivos de las terapias de hipertensión pulmonar?