
Living with PH
Browse this section to learn about coping, managing diet and nutrition, exercising and day-to-day living with PH.
Living Well with Lung Disease – Part 1
Kristen Holm, PhD
A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH are discussed.
Living Well with Lung Disease – Part 2
Kristen Holm, PhD
A PH diagnosis affects patients as well as their family members and those around them. Join PHA Classroom and Kristen Holm, PhD, for a discussion of the ways that lung disease affects patients and families. Coping skills, social support and emotional well-being for all affected by PH are discussed.
What types of things would a palliative care physician talk to me about?
Hilary M. DuBrock, MD
Who can benefit from palliative care, and should I ask my doctor about it?
Hilary M. DuBrock, MD
I’ve heard that palliative care is the same thing as hospice care/end of life care. Are they the same thing?
Hilary M. DuBrock, MD
What is palliative care? How is it connected to quality of life?
Hilary M. DuBrock, MD
Finding and Living Your New Normal
Natalie Kitterman, BSN, RN, CCRP
This webinar is especially designed for newly diagnosed pulmonary hypertension (PH) patients. Natalie Kitterman, BSN, RN, CCRP, reviews the basics of what every PH patient should know about treatment and coping with this disease. The presentation answers common questions newly diagnosed patients may have such as, “Why am I different?,” “Where do I go from here?,” “How do I help myself and my loved ones?,” and more. The end of the hour features an open Question and Answer session.
Holiday Headspace
Holiday Headspace Caregiver Edition
PH, Intimacy and Self-Image: A Woman’s Journey
Ioana R. Preston, M.D. addresses personal issues that affect female patients with PH and identifies creative ways for patients with physical or functional limitations to have meaningful intimate relationships. The presentation provides strategies to help women feel more comfortable with their bodies, improve self-image, enhance intimate relationships, and feel more comfortable in sexual experiences.
Over-the-Counter Medications and Side Effects Management
Martha Kingman, D.N.P., FNP-C, and Jessica Humphrey, Pharm.D., BCPS, discuss the classifications of medications used to treat pulmonary hypertension (PH) and their side effects, interactions between common over-the-counter (OTC) medications and PH medications, and identifying the differences between cold, flu, allergy and COVID-19 symptoms in this webinar.
My Life With PH and Advice To Others Newly Diagnosed
Nicole Reid, B.S.N., R.N.
Health care planning: Conversations, decisions and directives
Charles Sabatino
Learn the essentials of health care planning, advance directives, and the three key questions at the heart of health decisions planning with Charles Sabatino, Director, American Bar Association’s Commission on Law and Aging. Recognize five myths of advance care planning that get in the way and discover the free resources that help you and your family get the process going. Being prepared with needed documents for any health emergency ensures that you will have a trusted person of your choice empowered to make health decisions for you if you are unable. It is not rocket science, but it takes a little initiative, and it is essential for all adults age 18 to 118.
Newly Diagnosed: Beyond Diagnosis: Working and traveling with PH
Leslie Polss
Nicole Reid
Learning to adapt to a new normal can be difficult, but there is life beyond your PH diagnosis. In this patient-led webinar, panelists discuss the challenges of navigating work and travel with PH. Panelists offer insights, tips, and strategies they’ve learned from personal experience traveling and working after a PH diagnosis. Being able to prepare for interviews, handle work schedules, and arrange for travel are new hurdles for newly diagnosed PH patients. But they can be managed with preparedness skills and the inside scoop!
Men with PH: Specific Issues for Men Diagnosed with PH
Jeff T. Voner, MSHS, MPH, PA-C
During this webinar, Mr. Voner presented a patient story to highlight the unique ways men can experience diagnosis and living with PH. Audience members will learn how PH and the different treatment options can affect them physically and will also come away with a better understanding of how PH may impact others facets of their lives. Finally, strategies will be presented to help men with PH learn to adapt to these physical, mental and social challenges.
Introduction to Exercise
Daniel Lachant, D.O.
Jim White, M.D., Ph.D.
The Introduction to Exercise video offers information from experts Daniel Lachant, D.O., and Jim White, M.D., Ph.D., on pulmonary hypertension (PH) and how the heart, lungs and muscles can benefit from exercise.
Introduction to Pulmonary Rehabilitation
Lindsay McAvoy, R.R.T.
The Introduction to Pulmonary Rehabilitation video, presented by Lindsay McAvoy, R.R.T., provides an overview of pulmonary rehabilitation exercises. It also presents questions to ask pulmonary hypertension (PH) doctors.
Introduction to Yoga
Caroline M. Quill, M.D.
Sammy M. Jones Jr.
Mychea Morehouse
The Introduction to Yoga video gives an overview of a yoga practice designed to improve flexibility, balance, strength and focus. The video features Caroline M. Quill, M.D., Sammy M. Jones Jr. and Mychea Morehouse and includes questions people with pulmonary hypertension (PH) can ask their PH doctors.
Introduction to Cardio
Lindsay McAvoy, R.R.T.
Kerri Claffey
Elizabeth Quetchenbach
Lindsay McAvoy, R.R.T., Kerri Claffey and Elizabeth Quetchenbach give an overview of cardio workouts. The Introduction to Cardio video also presents a sample cardio routine and questions people with pulmonary hypertension (PH) should ask their PH doctors before beginning an exercise program.
Introduction to Strength Training
Mary Beth Brown, P.T., Ph.D.
Patrick B. O’Connor
Jhenna Pacelli
This instructional video provides examples of exercises that target major muscle groups that can be completed at home, in a gym or as part of a rehabilitation program. Targeted for people with pulmonary hypertension (PH), the Introduction to Strength Training video is presented by Mary Beth Brown, P.T., Ph.D., Patrick B. O’Connor and Jhenna Pacelli.
Exercising with PH: The Ins, Outs, Ups and Downs
Julie Tracy, MSc
Abbey Karin, M.Ed.
Starting an exercise program with a diagnosis of PH can often be a scary thought. Exercise is a great way to improve breathing efficiency, aerobic capacity, and overall quality of life. These factors play a major role in improving symptoms that are associated with PH. During this webinar, senior exercise physiologists: Julie Tracy, MSc and Abbey Karin, M.Ed. of Brigham and Women’s Hospital discussed the benefits of exercise, risks and warning signs to be aware of when exercising, and daily exercises that can increase your fitness and strength.
Managing sodium and fluids in PH
Mary Whittenhall, M.S.N., APRN, AGPCNP-BC
Nicole Reid, R.N., B.S.N.
Panelists discuss the effects of dietary salt, excess calories and fluid intake on the body, as well as why PH patients require greater awareness to these components of their diet. Discussion also emphasizes dietary and lifestyle strategies that patients may use to ensure long-term success in achieving their goals for sodium and fluid management.
Holiday Strategies: Pumpkin spice, everything nice and low sodium
Katherine Beich, MS, RDN, LD
In this holiday special, Katherine Beich, M.S., R.D., Baylor University Medical Center, discusses healthy sodium guidelines and strategies. By walking through a few low sodium recipes, we explore sodium management and portion control guidelines to keep in mind when making choices throughout the holidays. The webinar also discusses potluck and party strategies to maintaining a balanced sodium intake.
Why is reducing salt, sodium and fluid intake important for people living with PH?
Traci L. Stewart, RN, MSN, CHFN
What are some tips for maintaining a balanced diet when living with PH?
Traci L. Stewart, RN, MSN, CHFN