Support Line volunteers are here to answer your questions, lend a sympathetic ear or help guide you in solving problems or issues related to living with PH. Call PHA’s toll-free Support Line to speak directly with a volunteer: 800-748-7274.
Email PHriends can share what they’ve learned along their PH journey, point you in the direction for information and resources of value, and work with you to develop strategies for coping with PH in your own life. Email PHriends are available to answer questions or for ongoing email relationships up to three months in length.
Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.
Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.
Call in toll-free to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.
This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.
Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.
Call in toll-free to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.
PHA hosts Facebook groups for the following communities:
If you have any questions or concerns, please contact us at support@PHAssociation.org or call 301-565-3004 x777.
Are you interested in supporting patients and caregivers in the PH community? Apply to be a PHA volunteer: https://phassociation.org/get-involved/volunteer/
We are grateful to Janssen Pharmaceuticals Inc. and United Therapeutics for their sponsorship of PHA’s support programs.