Yesterday, the Pulmonary Hypertension Association (PHA) set aside a special day (Nov. 13) to help raise awareness and improve diagnosis of a rare form of pulmonary hypertension (PH) known as chronic thromboembolic pulmonary hypertension (CTEPH). CTEPH is a form of PH caused by old blood clots, also known as pulmonary emboli, in the lungs.
New resources on CTEPH on the PHA website include:
- Ask the Expert About CTEPH: A CTEPH Awareness Day Facebook Live Q&A with CTEPH expert Peter Hountras, M.D.
- CTEPH Overview: Gustavo Heresi, M.D., a CTEPH expert, explains chronic thromboembolic pulmonary hypertension (CTEPH), its symptoms, screening, diagnosis and care;
- CTEPH Treatment: Gustavo Heresi, M.D., a CTEPH expert, explains the treatments for chronic thromboembolic pulmonary hypertension (CTEPH), including how physicians determine which is appropriate, what each treatment entails and what to expect.
PHA also shared inspiring stories by individuals with CTEPH through the “PHaces of Hope” campaign, which involves a community of individuals with PH, caregivers and health care professionals who share what gives them hope. Please check out PHA’s free resources on CTEPH Awareness Day at: PHAssociation.org/CTEPHDay, and continue to help spread PH awareness all month long.
PHA used social media channels to spread awareness by focusing on CTEPH statistics, symptoms, patient stories, live chats, helpful resources and more. The CTEPH Expert chat with Dr. Hountras has drawn almost 1,200 views, including 194 reactions. During the chat itself, those watching submitted more than 60 comments for Dr. Hountras. On Facebook yesterday, PHA’s posts reached 94,710 people and garnered 2,912 post engagements.
PHA is grateful to Bayer for its sponsorship of CTEPH Awareness Day activities.