Join the Pulmonary Hypertension Association in promoting CTEPH Awareness Day on Nov. 13. Check out our resources below to raise awareness about the risks, symptoms and treatment options for CTEPH.

What Is CTEPH?

Chronic thromboembolic pulmonary hypertension, or CTEPH, is a form of pulmonary hypertension caused by old blood clots in the lungs, known as pulmonary emboli. In most patients with these blood clots, prescribed blood thinners can restore blood flow to the lungs and prevent the development of CTEPH. However, some patients may still develop CTEPH, even with blood thinners. The good news is treatment options are available. Here are some educational resources on CTEPH to help you learn more about the condition, including symptoms, treatment options, and living with the disease.

New CTEPH recording and podcast available on Nov. 13

On CTEPH Awareness Day, PHA is offering two new educational resources that explore the latest updates and personal experiences related to CTEPH.

CTEPH updates: What you should know

Join Sandeep Sahay, MD, MSc, ATSF, a pulmonologist at Houston Methodist Hospital, for a comprehensive overview of Chronic Thromboembolic Pulmonary Hypertension or CTEPH. Sahay will discuss the latest advancements in CTEPH diagnosis and treatment, including surgical and medical options. Additionally, he will highlight essential lifestyle changes, available support resources and how to work closely with health care providers to ensure optimal care.

Navigating life with CTEPH: Experiences with PTE surgery

In this episode of the PH Insights podcast, Angela Michelle and Mark Porter share their personal journeys with CTEPH and the pivotal decision to undergo pulmonary thromboendarterectomy surgery. They offer candid insights into their diagnoses, the challenges they faced and the life-changing impact of PTE surgery. Listeners will learn about the emotional and physical toll of CTEPH, the decision-making process behind pursuing surgery and life after the procedure. Tune in on Nov. 13 and subscribe on major podcast platforms, including Apple Podcasts, Spotify, Amazon Music, iHeartRadio and Player FM.

Expert insights on CTEPH

Explore these two informative videos featuring Gustavo Heresi, MD, as he breaks down important aspects of CTEPH.

10 Facts about CTEPH

Join William Auger, MD, and Gustavo Heresi, MD, as they share 10 vital facts about CTEPH in English and Spanish. Whether you’re newly diagnosed, a long-term thriver or a health care provider, these videos will help you better understand CTEPH.

Learn more about CTEPH, including treatment options, on the CTEPH education page.

CTEPH Toolkit

Join us in promoting CTEPH Awareness Day! To help spread the word, PHA has assembled this toolkit of content for your use. Note: Click the images to open them to their full size.

Sample social media posts

Use these sample social media posts on your Facebook, Twitter/X, Instagram or LinkedIn accounts to spread the word about CTEPH Awareness Day. (Note: Twitter/X accounts are limited to 280 characters posts).

1. CTEPH Day is Nov. 13! CTEPH is a form of pulmonary hypertension caused by blood clots in the lungs (pulmonary emboli). Learn more about CTEPH at PHAssociation.org/ctephday. #CTEPHDay #PHAwarenessMonth #LetYourLightShine
2. Today is CTEPH Day! #CTEPH stands for chronic thromboembolic pulmonary hypertension, and the most common symptoms are fatigue and shortness of breath. Learn more about CTEPH by visiting PHAssociation.org/ctephday. #CTEPHDay #PHAwarenessMonth #LetYourLightShine
3. Today is CTEPH Awareness Day! To celebrate, I’m sharing how I let my light shine with CTEPH. Learn more about CTEPH by visiting PHAssociation.org/ctephday. #PHAwarenessMonth #CTEPHDay #LetYourLightShine