DONOR PRIVACY POLICY

Third Party Release Protection

Except as provided herein, the Pulmonary Hypertension Association will not sell or share to any third party your name, address, email address, phone number and member name, unless you provide your informed consent, except to the extent necessary to comply with applicable laws, police investigations, or in legal proceedings where such information is relevant. The Pulmonary Hypertension Association allows access to database information by third parties providing technical services, such as email or IT support. In those instances, the third party is bound by these terms and has agreed to hold this information in confidence. Your informed consent shall be in the form of an “opt in” or similar policy.

You understand and agree that the Pulmonary Hypertension Association may disclose to third parties your zip code, gender and/or age, but only in the form of aggregated information.

The Pulmonary Hypertension Association reserves the right to offer you third party services and products based on the preferences that you identify during the registration process and based on your subsequent preferences; such offers may be provided to you by the Pulmonary Hypertension Association.

The Pulmonary Hypertension Association reserves the right to terminate your account if it learns that you have provided false or misleading registration information.

Recognizing Donors

PHA publishes the names of its donors each quarter on our website, and may recognize donors by name in other publications throughout the year. If you do not wish your name to be published, please contact us in writing.

For more detailed information on PHA’s standards for protecting privacy, please read our entire Privacy Policy.