PULMONARY HYPERTENSION ASSOCIATION NEWS

Share Your Story for American Heart Month

Spread pulmonary hypertension (PH) awareness by sharing your story for American Heart Month in February. Heart disease can lead to PH or exacerbate symptoms. Help us call attention to the importance of cardiovascular health. Share how you manage your PH and heart disease or your tips for improving heart health.

Ask New Congress to Support PH Issues

Now that the 118th Congress is in session, the Pulmonary Hypertension Association urges Congress to work across the aisle. We need bipartisan legislation to improve health care for people with pulmonary hypertension and other serious and chronic health conditions.

Find Resources for Copay Assistance

The new year can be challenging for finding financial assistance for pulmonary hypertension (PH) medications. Although charitable assistance foundations with PH funds currently are closed, other avenues for assistance are available. Visit the Pulmonary Hypertension Association’s financial assistance page for more information.

PHPN Symposium to Feature Lead Author of New PH Guidelines

Pulmonary hypertension (PH) health professionals can meet the primary author of recently released PH guidelines at the PH Professional Network Symposium. Dr. Marc Humbert will discuss the new PH guidelines during the Sept. 28-30 PHA event in Arlington, Virginia. The guidelines, developed by a taskforce from the European Society of Cardiology and European Respiratory Society, were published in August 2022.

CEO Update: Seeking New Possibilities in a New Year

While the world seems to have moved on from the pandemic, many in the pulmonary hypertension community are trying to catch up. Because PH makes people more vulnerable to serious COVID side effects, the community remains cautious about how to proceed. This year, the Pulmonary Hypertension Association wants to help you transition from pandemic mode to more familiar routines.

Familial PAH Affects 4 Generations

Whitney Whited was 10 when her father died of pulmonary arterial hypertension (PAH) complications. Recently, she learned about the BMPR2 gene and sought genetic testing for her 11-year-old daughter. Whitney, 34, who doesn’t have PAH, shared her family’s story in the winter 2022 issue of Pathlight, the Pulmonary Hypertension Association’s member magazine.

Apply for new PHA Research Grant

The Pulmonary Hypertension Association is accepting applications for a new grant to support junior pulmonary hypertension researchers. Apply now, or spread the word about PHA’s Early Career Mentored Scientist Award. The one-year grant covers up to $65,000 for PH-related research projects that have been favorably reviewed but not funded by the National Institutes of Health. Apply by March 20.

CEO Update: Seeking New Possibilities in a New Year

While the world seems to have moved on from the pandemic, many in the pulmonary hypertension community are trying to catch up. Because PH makes people more vulnerable to serious COVID side effects, the community remains cautious about how to proceed. This year, the Pulmonary Hypertension Association wants to help you transition from pandemic mode to more familiar routines.

PHPN Symposium to Feature Lead Author of New PH Guidelines

Pulmonary hypertension (PH) health professionals can meet the primary author of recently released PH guidelines at the PH Professional Network Symposium. Dr. Marc Humbert will discuss the new PH guidelines during the Sept. 28-30 PHA event in Arlington, Virginia. The guidelines, developed by a taskforce from the European Society of Cardiology and European Respiratory Society, were published in August 2022.

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PHA News, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

LA - Lake Charles (Virtual)
Sunday, January 29, 5:00 PM - 6:00 PM CST
TX - San Antonio TX (In Person)
Wednesday, February 8, 12:00 PM - 2:00 PM CST
Parent Support Group
Wednesday, February 8, 8:00 PM - 9:00 PM EST
OR - Central Oregon (Virtual)
Thursday, February 9, 5:00 PM - 7:00 PM PST
Bereavement Support Group
Thursday, February 9, 8:00 PM - 9:00 PM EST
MI - Lansing, MI (In Person)
Saturday, February 11, 12:00 PM - 2:00 PM EST
MD - Baltimore - Johns Hopkins (Virtual)
Wednesday, February 15, 2:00 PM - 3:00 PM EST
Caregiver Support Group
Wednesday, February 15, 7:00 PM - 8:00 PM EST

Open the full calendar

Patient-to-Patient Support Line: 1-800-748-7274

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Earn CME/CE credits at PHA’s educational website for healthcare professionals.