PULMONARY HYPERTENSION ASSOCIATION NEWS

PH and COVID-19: Visit PHA’s Online Resources

  • COVID-19 FAQ for People with PH
  • PHA Connects: Health and Wellness Series
  • Therapy Access and Funding Assistance
  • Videos to Help You Start a Home Exercise Routine
  • Ways to Connect Virtually: Support Groups and More
  • PH Community Making Masks: Learn How!
  • Resources for HCPs
  • COVID-19 in the News

Read “Finding Hope Through Devastation” and Other Inspirational Stories in Pathlight

The winter 2022 issue of Pathlight deals with growth. This issue’s articles recount the many ways the pulmonary hypertension community has grown as patients manage their disease. Discover inspiration from volunteers, advocates, fundraisers and young parents confronting loss and PH. These stories are available only in Pathlight magazine, a benefit of your PHA membership.

PHA Works to Address CADD MS-3 Pump Shortages

Since becoming aware of disruptions in CADD-MS3 access earlier this year, the Pulmonary Hypertension Association (PHA) has been advocating for prompt access to treprostinil. Supply chain disruptions have affected supply of the pump’s LCD screen and slowed the manufacturer’s ability to service pumps for reuse. As a result, specialty pharmacies halted new patient starts on the MS3, and eligible patients may have been shifted to a delivery system for Remodulin.

PHA Names 2022 PHA Innovation Research Awardee

Csaba Galambos, M.D., Ph.D. is the first recipient of the Pulmonary Hypertension Association (PHA) Innovation Research Award. Dr. Galambos is the director of pediatric pulmonary research at Children’s Hospital Colorado. His research seeks to understand lung vascular development to develop new strategies for earlier diagnosis, prevention and potential cures for infants and children with pulmonary disease and PH.

PH Awareness Month Resources Reach Nearly 300,000 in November

Throughout November, the Pulmonary Hypertension Association educated people about risk pulmonary hypertension risk factors and symptoms. Our award-winning interactive PH Awareness Month calendar received more than 3,000 visits in November, and our social media posts reached 285,435 people, garnering more than 8,000 comments, likes and shares.

Matching Gift Inspires Increased Monthly Donations

Thanks to the GivingTuesday donations, we can support more people with pulmonary hypertension (PH). Your donation helps the Pulmonary Hypertension Association promote PH awareness, support research and ensure earlier diagnosis. This year, a $10,000 matching gift inspired many to join or upgrade their Sustainers Circle monthly contributions.

Prevent Treatment Disruptions in the New Year

Is your insurance changing in 2023? If so, make sure to update your care team and specialty pharmacy. Give your health care team plenty of time to tackle potential obstacles by notifying them right away of any insurance changes. Don’t wait till the new year.

Thank you for Advocating for Improved Oxygen Access

Thanks to the pulmonary hypertension (PH) community for participating in this year’s PH Awareness Month Day of Action. People with PH and their loved ones answered the Pulmonary Hypertension Association’s call to sign a petition to improve access to supplemental oxygen.

CTEPH Patient Finds Community Through PHA Facebook Group

Karly Loree, 30, felt isolated after her chronic thromboembolic pulmonary hypertension (CTEPH) diagnosis. But when she discovered a Pulmonary Hypertension Association support group for people with CTEPH, she found support, hope and community. As she awaits surgery this month, she shares her story for the Pulmonary Hypertension Association’s end-of-year fundraising campaign.

Donate Now

Join Karly in Supporting PHA

Karly Loree, 30, felt isolated after her CTEPH diagnosis. But found hope and community in PHA’s CTEPH support group. That’s why she encourages others to support PHA’s mission by donating to our end-of-year fundraising campaign.

PH Professionals: Submit Your Proposals for 2023 PHPN Symposium

The Pulmonary Hypertension Association (PHA) is accepting abstract and speaker proposals for the 2023 PH Professional Network (PHPN) Symposium. The event is set for Sept. 28 to 30, 2023, in Arlington, Virginia. Proposals are due Jan. 16, 2023.

6 Sources of Financial Assistance for PH Therapy

Do the high costs of treatment prevent you from receiving treatment you need? The best solution for you depends on the kind of insurance you have, the type of medication you take and availability of financial assistance resources.

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PHA News, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

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Support Group Meetings
CO - NOCO (In Person)
Friday, December 9, 1:30 PM - 2:30 PM MST
MA - Greater Boston (Virtual)
Saturday, December 10, 9:30 AM - 11:00 AM EST
MN - Twin Cities (Virtua)
Saturday, December 10, 10:00 AM - 12:00 PM CST
VA - Southwest Virginia (In Person)
Saturday, December 10, 11:00 AM - 3:00 PM EST
MO - Columbia, MO (In Person)
Saturday, December 10, 12:00 PM - 1:00 PM CST
FL - Broward County (Virtual)
Saturday, December 10, 1:00 PM - 2:00 PM EST
OH - Dayton, OH (In Person)
Saturday, December 10, 1:00 PM - 3:00 PM EST
SC - Midlands, Columbia (In Person)
Saturday, December 10, 1:00 PM - 3:00 PM EST

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PHA Event Calendar

Patient-to-Patient Support Line: 1-800-748-7274

PHA News

The latest PH and PHA news and events, on the web and in your inbox each week.

PHA Classroom

Free educational resources for PH patients and families.

Connect with other patients and caregivers online or by phone.

Earn CME/CE credits at PHA’s educational website for healthcare professionals.