Parent Caregiver Mentor Profile


PH Caregiver since 2015

“I’m a working mom of a teenager diagnosed with Chronic thromboembolic pulmonary hypertension (CTEPH). I’m navigating the fine line of parenting/caregiver and him taking charge of his own care. My son and I love to find Food Network featured restaurants when we visit new places.”

About Rayna:

  • Born in 1976
  • Lives in Virginia
  • Languages: English & Spanish

About Rayna’s Loved One:

  • Patient’s year of birth: 1999
  • Type of PH: CTEPH

Rayna feels comfortable discussing her experiences with:

  • online communities (facebook groups)
  • caring for an adult with PH
  • caring for a child with PH
  • communicating with children about PH
  • communicating with medical personnel
  • depression and emotional health
  • Teen transitioning to independence

Contact Rayna:

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Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.