PHA Events

Topic: Chat

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

Topic: Year end get together

Leader: Carla Kinsey

Email: moc.kooltuo@k_alrac

Phone Number: 586-530-0160

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

Topic: Happy New Year! How are you doing?

Leader: Colleen Schnell

Email: moc.liamtoh@4271ydalnolem

Phone Number: 716-297-1067

Topic: Strategies for living with PH

Speaker: Ashley Horton, MS, BCBA, LABA

Leader: Laura Hooley

Email: ten.tniopriafym@harual

Phone Number: 603-443-1791

Topic: Coping with Chronic Illness

Speaker: Jennifer Johnson, BSN, RN, CRNI

Sponsor: Accredo

Leader: Linda Gates

Email: moc.loa@26setagl

Phone Number: 504-559-1340

Topic: Check-in and Mindfulness

Leader: Rayetta Johnson

Email: moc.oohay@ytinereSgnisahC

Phone Number: 605-559-0560

Call in to connect, learn, and share strategies and experiences caring for your child with PH.

Meeting information will be sent to your email address when you submit your registration.

Leader: Jane Northrop

Email:moc.liamg@1691senobj 

Topic: Financial Planning 101: When a Diagnosis Demands a Long-Term Money Strategy

Speaker: Doug Threloff, MSPFP

Leader: Michele Freeman

Email: moc.liamg@puorgHPnogerO

Phone Number: 541-408-4943

Topic: PH Book Club

Leader: Alicia Kubes

Email: ude.uyn@sebuk.aicila

Phone Number: 201-874-4118

Topic: Holiday Party

Leader: Evan Holm

Email: ude.mnu.dulas@mlohve

Phone Number: 505-272-2815

Topic: Holiday Party

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

Topic: Oxygen and therapy equipment

Speaker: Brenda Saines, Heart Medical Oxygen equipment suppliers and Samantha Seeger, NP

Leader: Karen Sawyer

Email: moc.liamg@elppadiuluL

Phone Number: 517-420-6457

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

Topic: Chicago CERT – Gear Up, Get Ready

Speaker: Ralph Shelton, Chicago CERT Instructor

Leader: Susanne Liss, Margie Chan

Email: moc.liamg@01ssiljs, moc.loa@426nahcm

Phone Number: 720-334-4136, 773-398-9155

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges.

Meeting information will be sent to your email address when you submit your registration.

Leader:

Email: gro.noitaicossahp@troppus

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Meeting information will be sent to your email address when you submit your registration.

Leader: Michele Freeman

Email: moc.liamg@puorghpnogero

Topic: New Medications and Trial Studies for PAH

Speaker: Vallerie McLaughlin, MD

Leader: Beverly Lipmyer

Email: ten.tsacmoc@pilylreveb

Phone Number: 734-662-8433

Topic: Holiday and New Year Celebration

Leader:  Maribel Rosario

Email: moc.oohay@06codlrm

Phone Number: 787-943-5621

Topic: Meet and Greet

Leader: Betsie Miklos

Email: moc.liamg@solkim.eisteb

Phone Number: 703-938-7212

Topic: Open Forum

Leader: Pat Graham, Debbie Baugh

Email: moc.liamg@marglatap

Phone Number: 410-353-0350, 916-206-3567

Topic: Chat

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

Topic: PH and Nutrition

Speaker: Katherine Horne, MSNW

Leader: Kristine Ritenour

Email: 843-792-2127

Phone Number: ude.csum@ruonetir

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Meeting information will be sent to your email address when you submit your registration.

Leaders: Janessa Curnow and Shannon O’Donnell

Email: moc.liamg@epoHnoitareneGAHP

Topic: Chronic Thromboembolic Pulmonary Hypertension (CTEPH

Speaker: Stacy Mandras, MD

Leader: Jane Northrop

Email: moc.liamg@puorghpodnalro

Phone Number: 321-245-8435

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Meeting information will be sent to your email address when you submit your registration.

Leader: Carla Kinsey

Email:moc.kooltuo@CSP_alraC 

Topic: What’s Hot in the PH World? & Ask the Expert

Speaker: Aaron B. Waxman, MD, PhD, FACP, FCCP

Leader: Mary Clare McGraw, Wendy Berry

Email: moc.liamg@shpnotsob, moc.liamg@hpnotsobydnew

Phone Number: 781-820-4606, 610-203-8762

Topic: Relationships and PAH

Speaker: Abhijit Raval, MD

Sponsor: Janssen Pharmaceuticals

Leader: Marcie McGregor

Email: moc.oohay@rogergcm.eicram

Phone Number: 803-640-3406

Topic: Mental Health Wellness

Speaker: Ruby Corral, LMFT, PPSC

Leader: Annabel Mejorado, Marisela Navarro

Email: moc.liamg@odarojemlebanna

Phone Number: 626-383-4216, 323-532-5164